New here, no diagnosis, looking for imput
Hi, I am new to this site. I posted the same info on the fibromyalgia boards but didn't get much response there and they thought my symptoms didn't match all that well, so I thought I would post it here as well.
I am 29 yr old female who has been suffering from muscle pain, muscle spasms, muscle twitching, nerve like shooting pain and fatigue for 3-4 years. Pain originated with spasming rhomboid muscle in back and has snowballed from there, approx. 1.5 years after original upper back spasm I started having pain, muscle fasiculation, twitching, tingling and numbness at random in my limbs, and trunk, and especially in the quads, glutes, calfs and upper arm muscles. It comes and goes and at its worst included electrical like shooting pains in my head and legs. I have done been to many doctors including a neurologist, had a MRI of my neck, x-rays of cervical, thoratic and cervical spine, nerve conduction and eeg tests (all came back negative), neurology consult and rheumatology consult did not yield any information. I have negative test results for Lyme disease, celeac disease, inflammation, thyroid problems, and Sjorgen's. I have tried massage therapy, physical therapy, chiropractic, acupuncture, nutritional supplements, more physical therapy and alternative chiropractic have all had some positive improvement but for only a limited time and then symptoms regress. Currently the muscle spasming and pain is mainly confined to the left uppper back and neck area and down to the underarm area and bottom of the shoulder blade with pain referring down the left arm. I still have some involuntary movement (which comes on randomly and lasts a few seconds at a time) in my glutes, hamstring, quads, triceps, and abdomen and side of ribs(more frequent on left side but also occassionally occurs on right side). My doctor and I feel that I have many of the fibromyalgia tender points and I notice that when my pain is really bad my muscles will feel like they are burning (mostly in arms above elbow and legs above the knee), I also have IBS like symptoms, gastro consult did not yield any known cause.
Looking for anyone who may have similar symptoms or some idea of what this could be. Thanks!