Doctors have tried for 2.5 years to wean me off Prednisone. Even with monthly IVIG infusion treatments,, I am unable to go below 9mg of Prednisone. My CK level elevates, and I get a good amount of pain from inflammation.
Has anyone ever had problems weaning off Prednsione?
I have had trouble with getting off of prednisone just like you. I was on prednisone at 10 mgs, and flared every time I tried to reduce it. Finally, after about 5 years of 10 mgs, I was able to get down to 7.5 mgs, but no lower. My bones have really suffered, and I try really hard to keep my daily steroid use to a minimum. I have had elevated cpks for quite awhile with a low grade fever (over a year), but I try to weigh this health issue with my others such as bone health. My doctor did switch me over to hydrocortisone (60 mg total a day) gradually with the thought that this would be easier on my kidneys. Maybe weigh the risks of this med with your overall health. Kind of a no win situation unfortunately. Hang in there.
Doctors have tried for 2.5 years to wean me off Prednisone. Even with monthly IVIG infusion treatments,, I am unable to go below 9mg of Prednisone. My CK level elevates, and I get a good amount of pain from inflammation.
Has anyone ever had problems weaning off Prednsione?
it took me 2 years to reduce from 10mg to 5mg, i spent 2 months to reduce 1mg, by by taking 10mg for 3days 9mg for one day, and so on. after 2 weeks i would add another day of 9mg. it is very slow but it worked for me. good luck
I have been on Medrol , a steroid, for 25 years and am having a hard time trying to get off of it. My cortisol levels go very low or the polymyositis kicks back in and we have to up the steroids.
