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Old 09-20-2010, 07:48 PM   #1
Join Date: Sep 2010
Location: Austin, TX
Posts: 6
rjbinion HB User
Myositis convention in St. Louis

Is anyone going to the myositis in St. Louis this week? Has anyone on this forum every gone? I am planning on attending and was not sure what to expect...

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Old 10-02-2010, 08:05 AM   #2
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Join Date: Jun 2003
Location: kansas city, mo
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jode HB User
Re: Myositis convention in St. Louis

Never been. What did you find out.

Old 10-04-2010, 01:12 PM   #3
Join Date: Sep 2010
Location: Austin, TX
Posts: 6
rjbinion HB User
Re: Myositis convention in St. Louis

Originally Posted by jode View Post
Never been. What did you find out.
Lots of good information! I would recommend this to anyone newly diagnosed or has had the disease for a while. They just posted next year will be Sept 15th in Vegas. Who can beat that?
It was amazing the availability of the doctors, from John Hopkins, etc. I probably saved myself about $400 in copay by just being able to mingle and talk with them.
Everyone should plan on going, if you are able!

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