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Old 10-11-2010, 04:42 PM   #1
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Join Date: Oct 2010
Location: Middleburg, Fl USA
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Iodine64 HB User
tapering off Medrol

I have been on Medrol for 25 years for Polymyositis. I am having a hard time coming off of it. I have tried the every other day method. I have been to 2 endos and neither of them have been willing to do any thing but have me tapper down a half pill a month. This has been going on for 6 years. I read on one post that someone used ACTH. I had mentioned this to one endo and he was totally against it. My cortisol level goes down to one and I feel almost dead. This goes on until the next blood work so then they increase the dose and we start again. If anyone can offer some help I would appreciate it.

 
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medrol, polymyositis, tapering steroids



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