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Old 10-14-2010, 09:04 PM   #1
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Join Date: Oct 2010
Location: Tempe Az
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Jramierez3 HB User
Dermatomyositis

Hello I am 26 years old and I have DM. I have rashes on elbows, knees, arms, and one knuckle. It took over month to diagnose me but was given proper treatment (ivig and prednisone). They stopped prednisone and continued ivig treatments every 3 weeks. My ck levels where at 42000 at one point went down to 1200 over 2 months and just last week their up to 4000. They just started me on presnisone 60mg this week due to my ck levels elevating. I dont know if the 60mg prednisone got me weaker but once I told my doc about my arms and standing being weaker they put me on 30mg prednisone and 10 mg methrotrexate. This is my third month with DM.This disease affected my muscles severely. I cant raise my arms,or neck when laying down, swallowing problems(currently using a peg tube to eat), and cant stand or walk without assistance. I get physical ,occupational and speech therapy but are limited since I'm can only do so much. I mainly want to get my throat back so I can eat through my mouth. Will I ever walk or see any results with prednisone? What type of therapy should I do to get my legs and arms back? Im ready frustrated....

 
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