Re: Do I have some kind of a rare disorder?
Hello. I have had fibromyalgia, and I can assure you it's not a fake diagnosis. There are plenty of websites out there in which to research this terrible condition. No one knows for certain what causes it, but there are some theories out there. One is that FM (Fibromyalgia) is directly linked to P.T.S.D. (Post Traumatic Stress Disorder). I also have P.T.S.D.
I have had FM since my mid-twenties and I'm 43 years old now. It has only gotten progressively worse for me. I do know that it does run in families, but it is only a rule of thumb. There's always the exception to the rule, and this may be your case. Or perhaps you have family members who also suffer/suffered from FM but just were not diagnosed with it. It has only recently become an accepted and acknowledged condition/illness amongst most in the medical field.
I am wondering what, if anything, your doctor has given you for pain. How much pain are you in?
I'm new to this site, and this is my very first post. I read yours and thought I should respond as I do suffer from this cursed illness (FM). I deal with so much pain, as so many at this site do. The one great thing about reading about the others who suffer here, is the fact that I know I am NOT alone! I am very isolated in "real life", being on disability, and because of my lifestyle (dealing with so much pain all the time, I am aways at home alone).
I just wanted to let you know a bit of what I have experienced, and to let you know you are not alone either. I wish you all the best, and will be thinking about you. Take care!