im new, when any of you guys first got diagnosed with polymyositis, did anyone lose alot of weight (like 25 lbs), experience dysphgia, and naseal voice, and did these symptoms improve. Anyone on methotraxate have any bad symptoms like dry cough due to lung toxity
I was diagnosed in 2008 with cpk at 6900. I haven't had any of those problems then and now. I am on methotrexsate 8 /2.5 mg once a week. I have strted taking 500 mg of zithromax once a week. My reaumatologist would not discuss this with me but my primary Dr. gave me a 6 weeks script just to see if it makes me feel better. It does, I notice I don't have that flu like feeling all the time. I spent a week at Branson MO and never got wore out. I notice other people write about taking anti-biotics.