It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Myositis Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 09-02-2011, 04:45 PM   #1
Newbie
(female)
 
Join Date: Sep 2011
Location: Calhoun, ga
Posts: 2
txangel1019 HB User
Post polymyositis..seems neverending

3 years ago i was what u call normal. I was working.i has just taken a Semester off to plan my wedding. And then i woke up with pain n my.shoulder. By the next day it had gotten worse and i was screaming.in pain. Which says alot cause I had Always been able to deal with pain. The doctor said i overextended it. Well within two wks i was completely crippled. I was 21 and scared out of my mind. To top it off all my family live n tx. Thank god for my now husband. He had to wash me. Dress me. Roll me.over every 30min at night. Take me to the bathroom. Etc. 3 yrs later here i am n bed because the pain is soooo bad i feel as though Im gonna pass out. On top of polymyositis i have ra and colitis. And they just found a Cyst in my brain. I ran out of pain meds so its a day n bed for me. I take methotrexate. Celebrex. Vitamins. And 4 months ago i started retuxen a form of chemo. Which for a while was doing good. I was able to grip things. But since its getting close to my next dosage the pain is ridiculous. I Ws told not all cases have chronic pain. There is always someone out there who Hs it worse. Everything Happens for a reason. And god has a plan. I live by those sayings. U should to.

 
Reply With Quote
The following 3 users give hugs of support to: txangel1019
grunts123 (09-12-2011), lydmom (09-20-2011)
Old 09-20-2011, 09:22 PM   #2
Newbie
(female)
 
Join Date: Jul 2011
Location: Co.
Posts: 6
lydmom HB User
Re: polymyositis..seems neverending

Yes it does seem neverending, I am currently on Imuran and have been for years. I have some pain but not so bad as I have read others have. I was so weak at one time I was like you. I can now do some things but bending over and picking up things is hard for me. I can't run or jump simple things like making the bed is hard for me. I get angry and am determined to get stronger and the way I deal with this is to think positive which sometimes is hard but important. I will not let this beat me I will defeat this by getting stronger and i'm determined to do just that. Nothing is impossible with God and this I know for a fact cause at one time I could not walk, today I walk and do things that were impossible, next goal trying to run...a slow run but a run. I hope things get better for you prayers goin your way.

 
Reply With Quote
Sponsors Lightbulb
   
Old 09-20-2011, 09:34 PM   #3
Newbie
(female)
 
Join Date: Sep 2011
Location: Calhoun, ga
Posts: 2
txangel1019 HB User
Re: polymyositis..seems neverending

Quote:
Originally Posted by lydmom View Post
Yes it does seem neverending, I am currently on Imuran and have been for years. I have some pain but not so bad as I have read others have. I was so weak at one time I was like you. I can now do some things but bending over and picking up things is hard for me. I can't run or jump simple things like making the bed is hard for me. I get angry and am determined to get stronger and the way I deal with this is to think positive which sometimes is hard but important. I will not let this beat me I will defeat this by getting stronger and i'm determined to do just that. Nothing is impossible with God and this I know for a fact cause at one time I could not walk, today I walk and do things that were impossible, next goal trying to run...a slow run but a run. I hope things get better for you prayers goin your way.
I agree. All u can do is stay positive. This sickness has changed me but not all bad

 
Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
I was diagnosed with Polymyositis CROSTHWAITE Myositis 48 07-12-2013 09:12 AM
Polymyositis - is a safe pregnancy possible? rjbinion Myositis 3 01-25-2011 10:45 AM
10 wks pregnant w/polymyositis & high cpk level windowsill Myositis 5 09-18-2010 10:26 PM
New here...Polymyositis, Lymes, Parasite?? hunterleyk Myositis 8 06-04-2010 11:00 AM
I think I have polymyositis torismomk5 Myositis 11 05-30-2010 09:20 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



CROSTHWAITE (2), duncan1 (1), shar621 (1), sportie7 (1), Testkit (1), lydmom (1), blessedtobeme (1), dutchess99 (1), allizfullofluv (1), danni j (1)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 12:16 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!