Neurofibromatosis - Neurofibromatosis Message Board

barris · 05-21-2001, 12:08 AM

Hello everyone.

I dont have cancer- but I have many tumors. I have had about eight removed, all of which were benign. I have about 20 this summer I may get removed. In 1997 my mother died of cancer. I cant help but think that my tumors are ticking time-bombs. Many times it is just sombering.

Elijah

barris · 05-21-2001, 09:49 PM

I guess the most important thing I can do is worry about something I dont even have yet.

Thanks bud,
Eli

[This message has been edited by moderator2 (edited 02-21-2003).]

hoekstra · 07-12-2001, 02:33 AM

hi elijah ! i have the same problem. i also have many tumors,which are benigne. but they spread like cancer.against cancer you can at least do something (surgery,chemotherapy) but against my tumors nothing can be done, but the anxiety stays. this is really terrible, i know how you feel. god bless you.

rosalita100us · 07-14-2001, 07:16 PM

when you were diagnosed didn't someone go over the cancer risks with you? You should be able to know that from whoever diagnosed with, then you donn't have to excessively worry about it.

barris · 07-14-2001, 07:22 PM

I was diagnosed fifteen years ago. It's all heredity.... My mother had, it as does my brother. It's okay. Sometimes I just sit and wonder if I should be reevaluated, to see if any new prognosis is warranted. I mean, I still have the tumors, but I just want to see if they have changed in any way (other than finding new ones every so often).

Thanks for yalls concern,
Elijah