I have NF. It is a disorder that causes tumors to grown on the body on nverve endings. The person also has Cafe Au Laits ..which are just brown splotches on the body.
Sometimes the tumors can be left alone and no reason to remove there. Other times you have no choice. Ive had 3 removed. One from my back, neck and brain. Sometimes peopel get nothign but CALS but other times it is a lot worse. It is 50% inherited and the other 50% is Sponatneous Mutation. That would be me. A great website is www.nf.org
they have great info and describe the 2 types of NF. There is Nf1 and NF2.
It is worth checking out.
hope this helps a bit.
Nancy - Connecticut