My son and I both have NF he inherited it from me and I inherited it from my mom.
We have the Cafe Au Laits ( Brown Splotches) we have freckles underneath our arms.
We have the NF1. My son is 9 years old and I get him checked every year at the NF Clinic at the Childrens Hospital in St. Louis. to see if any Tumors have developed anywhere. We both get our eyes and ears checked yearly to make sure our Vision and Hearing is O. K. and that no Tumers have Developed on our nerve endings. www.nf.org
is a great web site to check out.