I have neurofibromatosis and anm 40, It can manifest it self in many different ways. HOWEVER I hear that usually around puberty is when it is diagnosised. Do you haave any cafe a lauit' (the milk and coffee looking brown spots? usually there must be five or more for any consideration.
go to www.nf.org
they have a ton of information there and a great message board! If you have any questions I'd be happy to answer I'll check in