Hi, I also Have NF Type 1.
I was diagnosed at 13 when a Tumour was pressing on a nerve in my leg.
I was given my diagnosis and not another word was spoken about it for ten years..
I had the "lumps and bumps" but thats as far as my condition went
In 2005 I was diagnosed with a Nuerofibromasarcoma, Grade 3. Also, in my leg.
I have 2 children with the condition, and My getting it was a "freak" occcurance.
I am the ONLY member of my family to have ever had NF, Bar my children who inherited it.
I do understand there can be a link from having an epileptic parent to having NF, but as people with NF will know, there is Not a great deal known about why NF even exists.
All we really know is that its a genetic mutation of a chromosone.
Happy to talk to other suffers