It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Neurofibromatosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-08-2003, 07:51 PM   #1
Join Date: Apr 2003
Posts: 199
Question Neurofibromatosis Type 2 Anyone?

Just wanted to ask how you are dealing with it and such. I am rapisly losing my hearing----sounds like a dog barking all the time while being beamed up in the old Star Treck movies---drivin me nuts.

Sponsors Lightbulb
Old 07-13-2003, 01:34 PM   #2
Senior Veteran
Join Date: Jan 2003
Location: California, U.S.A.
Posts: 3,091
zuzu8 HB Userzuzu8 HB Userzuzu8 HB Userzuzu8 HB Userzuzu8 HB Userzuzu8 HB User

Hi Hermit- I'm so sorry to hear you are dealing with this rare disorder. I'm sure you've researched it a lot, but here's a link about it (from many different resources including the NIH (National Institutes of Health), National Library of Medicine, Mayo Clinic etc.) that might prove useful.

Have you considered entering any clinical trials? The NIH is recruiting all the time for this disease.
[url=" romatosis+type+2&DISAMBIGUATION=true&SER VER1=server1&SERVER2=server2&START=0&END =25&MAX=500&ASPECT=0"] romatosis+type+2&DISAMBIGUATION=true&SER VER1=server1&SERVER2=server2&START=0&END =25&MAX=500&ASPECT=0[/url]

Good luck,


Sponsors Lightbulb
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Neurofibromatosis type I tumor idacontreras Neurofibromatosis 1 07-20-2012 06:14 AM
Does anyone have Neurofibromatosis? kerrysmom95 Neurofibromatosis 5 05-11-2010 06:12 PM
Neurofibromatosis 1 Zayazmama Neurofibromatosis 10 04-27-2007 09:43 PM
neurofibromatosis bigdogs35 Neurofibromatosis 2 06-17-2006 08:42 AM
Schwannoma or Neurofibromatosis Tumor UPSET011 Neurofibromatosis 0 08-17-2005 08:38 AM

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 05:40 PM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2015 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!