Re: Chronic pain
Sorry for the delay. I don't visit this thread very often.
A couple of years ago I visited a surgeon after the pains were getting worse in my hand. Thankfully then the pain was primarily in one location, and erratic pains in a secondary. The tumors were serious risk to operate on, and as you know, there was a good chance they could grow back.
The solution was interesting, and the NF specialist I saw later had never heard of doing this. The script was for lidoderm patch to be applied tot he pain area for one week (12 on/12 off) and then use a lotion solution for pain in others.
This is where it gets interesting. The lotion the pharmacy mixed was of lidoderm and gabapentin (seizure med!). From what I've been told, the gabapentin "retrains" the nerves to help with the pain. It's been 2 or 3 years since I did that, and the pain is starting to come back (horrible week last week).
I'm going to call the doc and see if they can reissue the lotion to see if that will work, or if I may need to take a plunge. Not wanting to have my hand operated on after just having a few operations the last few months.