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Old 12-15-2009, 04:43 AM   #1
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what do i do when neurologist says no evidence of abnormality on tests?

what do i do when neurologist says no evidence of abnormality on tests?but symptoms keep happening,retentative bladder with ongoing water infections that are not responding to antibiotics,i have to self catheretise 3/4 times per day.bowel problems retentative to fecal compaction,and now developed bouts of fecal incontinence,blood pooling in both feet,vascular says its common sign of neuro problems? pins and needles in legs numb patch in thigh,at night crawling sensation all over my body,then massive spasm in my back lh side causing severe pain,fatigued spent last 18 days in bed out of 21,had suspected cauda equina symptoms but nothing found on mri except degenerative changes?orthopedics say neuro defecit yet my neurologist says all test including spinal tap came back clear.Im at my wits end im 44 female running own business ,independant and now having to rely on husband and family if anyone can help any advice would be greatly appreciated.

 
Old 12-15-2009, 08:19 AM   #2
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Re: what do i do when neurologist says no evidence of abnormality on tests?but sympto

Knowing how NHS has flubbed many cases in the UK, I would first want to know what tests were actually run. I have had MS for 32 years and my spinal tap has always been normal. If there is a neurological problem, perhaps the MS Society in the UK can get you to a proper neurologist who deals with MS. At the very least the neurologist can refer you to another specialist once the McDonald Criteria have been ascertained.
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Old 12-15-2009, 02:17 PM   #3
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Re: what do i do when neurologist says no evidence of abnormality on tests?

Quote:
Originally Posted by mmbmand1965 View Post
what do i do when neurologist says no evidence of abnormality on tests?but symptoms keep happening,retentative bladder with ongoing water infections that are not responding to antibiotics,i have to self catheretise 3/4 times per day.bowel problems retentative to fecal compaction,and now developed bouts of fecal incontinence,blood pooling in both feet,vascular says its common sign of neuro problems? pins and needles in legs numb patch in thigh,at night crawling sensation all over my body,then massive spasm in my back lh side causing severe pain,fatigued spent last 18 days in bed out of 21,had suspected cauda equina symptoms but nothing found on mri except degenerative changes?orthopedics say neuro defecit yet my neurologist says all test including spinal tap came back clear.Im at my wits end im 44 female running own business ,independant and now having to rely on husband and family if anyone can help any advice would be greatly appreciated.
many thanks for response,test i have had are:mri x 3(lumbar,full spine,brain)ct scanx2 (abdominal/chest )last abdominal 2weeks ago results were right small kidney stone,EVR test,came back normal,spinal tap normal,Emg normal,bloods normal except for a low b12,but neurologist was not concerned,i am having urodynamic test jan 7th,
currently waiting for test results of urine,as on sataurday vile was a quart full of sediment?bowel specialist has done biopsy,barium enema,results normal except for a severe spasm in ascending colon which after 2 injections finally let barium go through,
right hand side of bowel is where i have been compacted 3 times!! i,ve lost 2 stone since april,this is when i believe it all started i sneezed in egypt and something popped by time i got home i was told i had a right side pars fracture some degenrative changes in spine i.e. dessicated discs,some bony spurs,some stenosis but nothing to indicate all symptoms of pins and needles,numb patches,then had another episode 29th of may back spasm and could not pass urine they refused to do a second mri as the sinal surgeon did not believe in 3 days i could have any significant change?i was catherterised and passed 1000ml,had a catherter in for 3 days and complete bed rest ,i then returned to some normality until 4 hours after leaving hospital i was readmitted into a&e fecal compaction,another week in hospital,this now took me to june was told had rectocele and advised to see neuro surgeon this i did privately I also had ultra sound and was told my bladder was not emtying properly, saw neurosurgeon and advised that i had all the symptoms of cauda equina ,full spine mri done result 13 july 09 no cauda equina just degenrative changes,advised to see neurologist,i also saw gyni who for safty sake arranged intermittent self catherisation,saw neurologist who ran all tests all negative took from july till today to get all results,in the meantime had 2 episodes of fainting,spasms ,not being able to walk,incontinence fecal,generally feeling fatigued,on antidepressants then 4 weeks ago found that if i sit for any length of time feet turned blue,vascular specialist explained i must have feet elavated,common side effect of ms? have abnormal sweats at night?am now on benorphine patches 7day release 10 micro plus diazapam,nefapam,ibuprofen,tramadol if and when required gp at a total loss as i am,colorectal surgeon also baffled i just feel at the end of my tether so frustrated as always having different episodes weekly ,feel private and the nhs are trivilising with my life,i need answers! to be able too carry on i just do not know where to turn. apologies for such a long post but needed to put as much info as possible to see if any 1 has had similr experiences many thanks Mandy x

 
Old 12-16-2009, 04:27 AM   #4
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Re: what do i do when neurologist says no evidence of abnormality on tests?

Have you considered a second neurologyopinion?

 
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