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Old 05-06-2011, 05:49 AM   #1
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Ear problems causing neurological problems?

Sorry if this seems long winded but it is complicated. I have been unwell for over two years and looking for a logical answer. When I finally went to the doctor in August 2009, I was desperate for help.

The first thing was the 'unwell' feeling, which is there all the time and I think has been for many years. Part of it is the constant head pressure, but also the feeling you have when coming down with the flu, something not right.

Other symptoms included nausea, shortness of breath, aching muscles, light and sound sensitivity, dizziness, tinnitus, loss of balance and tingling. I often have a pain in my head behind my right ear. When the pain gets worse that is when things start going wrong. I have had a few occasions when I have not been able to walk at all, but often my legs feel so heavy, walking is difficult. Sometimes my speech is affected. I stammer or canít get the words out at all. Too much sound or light seem to trigger the pain, and problems.

I have also had an ongoing problem with my right ear. After complaining of the pain behind my ear for months, it was discovered on the MRI that I had fluid in the right mastoid. The doctors did not feel this was significant. I have had three long courses of antibiotics for ear infections. At one stage my ear was oozing and the bacteria, kluyvera species isolated. My problems improved dramatically on the first courses of antibiotics, but came back after I went off them. Three hearing test have shown the hearing is a little down on my right ear, and the pressure is wrong. The fourth ENT was the only one who believed I had an ear problem at all. Next week I am going to have a drainage tube put in my right ear which should equalize the pressure. I am hoping it will take the pressure off my brain and stop the short circuits as I call them.

I have changed my diet, excluded grain, dairy, soy and processed foods. I have been taking lots of supplements and am certainly better than I was a year and a half ago. A hair analysis found very high mercury levels and I have got them down to just high. I had all my amalgam fillings changed and stopped eating deep sea fish.

The medical profession have not been able to understand it and have given me a psychiatric label, somatoform disorder, lots of physical symptoms without a physical cause. Due to this label I have had a lot of trouble getting any sense out of the general medical profession. I donít know how an oozing ear fits into that. I seem stuck with that diagnosis until I can prove otherwise.

I went on sick leave from my job as a teacher in October 2009. I have recently run out of sick leave and had to retire due to my problems. I cannot read for any length of time, watch telly or listen to music. At my superannuation medical, the physician said he had seen a man with a middle ear fistula, who had light and sound problems. That physician also said you are really undiagnosed after all this time. I agree. I do not have a fistula, but I do have middle ear, light and sound problems. No-one before had connected these, but now I see it is the only thing that makes sense.

Does anyone have neurological problems, which have been caused by ear problems? I have posted on the neurology board because I thought someone may have both, but have never considered a link. I would be very interested in any comments,

Thank you,
Gjoy

 
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Old 05-21-2011, 08:29 AM   #2
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Re: Ear problems causing neurological problems?

I developed digestive, vertigo and weird neurological symptoms after a mercury filled tooth was ground down (for a crown), that was 15 years ago. Vertigo lasted 1 month and I have not been 100% normal ever since. I also wake up with nausea in the mornings. I truly believe that the mercury caused my ear/neurological problems.

Curious, how long ago were your amalgams replaced? Did you do any mercury detox?




Quote:
Originally Posted by gjoy View Post
Sorry if this seems long winded but it is complicated. I have been unwell for over two years and looking for a logical answer. When I finally went to the doctor in August 2009, I was desperate for help.

The first thing was the 'unwell' feeling, which is there all the time and I think has been for many years. Part of it is the constant head pressure, but also the feeling you have when coming down with the flu, something not right.

Other symptoms included nausea, shortness of breath, aching muscles, light and sound sensitivity, dizziness, tinnitus, loss of balance and tingling. I often have a pain in my head behind my right ear. When the pain gets worse that is when things start going wrong. I have had a few occasions when I have not been able to walk at all, but often my legs feel so heavy, walking is difficult. Sometimes my speech is affected. I stammer or canít get the words out at all. Too much sound or light seem to trigger the pain, and problems.

I have also had an ongoing problem with my right ear. After complaining of the pain behind my ear for months, it was discovered on the MRI that I had fluid in the right mastoid. The doctors did not feel this was significant. I have had three long courses of antibiotics for ear infections. At one stage my ear was oozing and the bacteria, kluyvera species isolated. My problems improved dramatically on the first courses of antibiotics, but came back after I went off them. Three hearing test have shown the hearing is a little down on my right ear, and the pressure is wrong. The fourth ENT was the only one who believed I had an ear problem at all. Next week I am going to have a drainage tube put in my right ear which should equalize the pressure. I am hoping it will take the pressure off my brain and stop the short circuits as I call them.

I have changed my diet, excluded grain, dairy, soy and processed foods. I have been taking lots of supplements and am certainly better than I was a year and a half ago. A hair analysis found very high mercury levels and I have got them down to just high. I had all my amalgam fillings changed and stopped eating deep sea fish.

The medical profession have not been able to understand it and have given me a psychiatric label, somatoform disorder, lots of physical symptoms without a physical cause. Due to this label I have had a lot of trouble getting any sense out of the general medical profession. I donít know how an oozing ear fits into that. I seem stuck with that diagnosis until I can prove otherwise.

I went on sick leave from my job as a teacher in October 2009. I have recently run out of sick leave and had to retire due to my problems. I cannot read for any length of time, watch telly or listen to music. At my superannuation medical, the physician said he had seen a man with a middle ear fistula, who had light and sound problems. That physician also said you are really undiagnosed after all this time. I agree. I do not have a fistula, but I do have middle ear, light and sound problems. No-one before had connected these, but now I see it is the only thing that makes sense.

Does anyone have neurological problems, which have been caused by ear problems? I have posted on the neurology board because I thought someone may have both, but have never considered a link. I would be very interested in any comments,

Thank you,
Gjoy

 
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gjoy (05-22-2011)
Old 05-22-2011, 09:55 PM   #3
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Re: Ear problems causing neurological problems?

Thanks MrIT for replying. I really appreciate it. I was beginning to think the whole world must think I'm crazy.
I am really confused about the mercury thing. Although hair analysis showed over the top levels of mercury the general medical profession did not believe it. The naturopath said it confirmed her suspicions. I have been taking natural chelators, glutathione, chlorophyll, vitamin c, lipoic acid, and some other herbal mixes. I had my amalgams removed by a natural dentist with a good reputation and am a little better since. I had blood and urine tests for mercury which came back within the normal range. I even saw a toxicologist, who didn't believe hair analysis either. I am just trying to find a cause for this thing that is making my life so difficult. I had almost discounted the mercury as meanless, but now you have got me thinking about it again. One physician said the analysis was not done by a lab meeting Australian standards. Maybe I should try again to find the one that does and see what they say. Maybe the mercury is causing the ongoing ear problem as was your experience. Have you tried to get rid of the mercury yourself?

Many thanks,

Gjoy

 
Old 05-23-2011, 06:56 AM   #4
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MrIT HB User
Re: Ear problems causing neurological problems?

In my research, blood test is useless (unless you had recent high mercury exposure). The combination of stool, urine & hair tests is recommended (stool is best). I just spent $400 USD 2 months ago only to find out that the blood test is meaningless in my case.

I am recently having my mercury fillings removed (4 are done, 3 to go), so I can not detox yet. The remaining 3 will be removed in 2 weeks. As I understand, it can take months to years for your body to fully eliminate the mercury. (Similar to quitting smoking). I used to live near a garbage incinerator that I am sure emitted high level of pollutants including mercury. I moved away from the incinerator 10 months ago. My ears don't bother me, I specifically was just feeling sick all over, like I was being poisoned, and have digestive & recently, anxiety problems too. I am currently a smoker and did quit years back for several months with no positive changes. I do feel somewhat better with 60% of my mercuries removed.

Remember this, mercury is a neuro toxin, it can cause all kinds of weird medical issues. I have been systematically eliminating other possible causes over the past 1-2 years (i.e. heart tests, gall bladder test for the nausea, blood work, etc.). All come back normal. The doctors can't find anything wrong with me, yet these is a problem. They just treat the systems and not look for the cause (i.e. they prescribed me ativan for the anxiety). This is very frustrating!

Read up on mercury. The composer of the Boston Symphony had vertigo and tinnitus, removed his mercury and is doing much better. You are not alone and we need to be consistent in determining the cause(s). "60 Minutes" did a 30 minute investigation on this in 1990. (60 Minutes is a respected investigative show here in the USA).

Are you having constant discharge from you ear? Did your doctor check run other tests of your symptoms (nausea, shortness of breath, aching muscles, light and sound sensitivity, dizziness, tinnitus, loss of balance and tingling)?

Last edited by moderator2; 05-23-2011 at 07:04 AM. Reason: please do not post a commercial website

 
Old 05-23-2011, 05:59 PM   #5
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Re: Ear problems causing neurological problems?

Hi MrIT,

After you made me think about it yesterday, I contacted the National association of Testing authorities here by phone about a recognised laboratory for hair analysis for toxic elements, particularly mercury. They said there wasn't one. The laboratory I used Interclinical I have talked to on a number of occasions. They have to my satisfaction answered questions on standards, environmental contamination and there analysis process. The parent company is in the US. I am in a catch 22. The doctors here wont recognise it because the lab is not registered here, but there is no alternative. They would rather give me a psychiatric label.

I know exactly your frustration as the majority of my tests have been normal also. The medical profession are excellent at treating symptoms without worrying about the cause.

The ear was discharging on and off for several months. The GP was the only one who saw it. My ear has felt odd all along. I had quite a few tests early on but because i had such a range I think I was too much for most of the specialists. I know my heart and lungs are working well. The breathing problems I had have improved considerably. I could not walk any distance without getting puffed out. I also had episodes of breathing cramps where I couldn't breathe at all until the cramp let go.

I have see lots of different doctors, but then it has been a long time. I can't believe how things have not progressed in all this time. I am feeling a bit cheated out of many months of my life.

When I talked to the last ENT about the mercury he said it could well be the mercury causing the fluid. In did try to work on that for 9 months before having the grommet. At the moment it does not seem to have helped, but I have also had a cold just to complicate things. I see the ENT tomorrow.

Thanks for your thoughts.

Gjoy

 
Old 05-23-2011, 08:04 PM   #6
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Re: Ear problems causing neurological problems?

Gjoy,

In you initial post you mention that you had your amalgams removed by a natural dentist. Did her/she use a rubber dam? Did he/she follow proper amalgam removal protocol (i.e. Huggins protocol)? If they did not, you may have been exposed to high levels of mercury, hence, you confirmed it with the hair analysis. However, if your inner ear is not right, this can cause havoc within the body. Do you still have pain behind your ear? Pain tells us something is wrong as you know.

I find that using a good antihistamine (i.e. Zyrtec) helps to clear my ears and makes me feel better. They do tend to make most people somewhat sleepy though. You may want to try this for a few days prior to any surgery or implants.

Also, try to correlate when your symptoms started with any dental work, new medications, accidents, contaminated food incidents, jolts to your head, etc. This approach can be helpful in finding the cause of your issues.

Sounds like you are getting close to the cause(s) of your symptoms. Please keep us posted on your findings.....

glad to help.....

 
Old 05-23-2011, 10:17 PM   #7
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Re: Ear problems causing neurological problems?

Thanks MrIT for your interest.

The dentist did not use a rubber dam, instead he gave me naturopathic drops before the removal and made me chew on chlorophyll tablets so my teeth were coated. The hair analysis was first done in July 2010. I had my amalgams removed in December of that year. The hair analysis was done again in February 2011 and results were much better.

I still have the pain behind my right end. Sometimes it goes right up my head and other times across the back. It was very bad for the first few days after the grommet, which makes me think that it must be from my ear. It settled down for a day or so, and became worse again with the head-cold. On Sunday we had a family birthday function which was very noisy. That pain just got worse and worse. My poor head was aching so much by the evening it kept me awake. Strange isn't it. That night the tingling was just berserk and the throbbing of the pain. That pain is eased with antibiotics. I wish someone could work out why.

I hope you are right and I am close to finding a cause. My GP said about 20 months ago we need to know the cause before we can find a solution. I never dreamed I would still be in limbo this far down the track. I will be interested in hearing what the ENT thinks tomorrow. Hope he is still interested.

Don't worry I have been looking for the pattern for a long time. Just can't work it out.

I have been taking a echinacea mix for my ears and find that effective, but thanks for the suggestion.

I read the best thing about being sick is you can learn how to be well. I really try to do all the right things. I am hoping one day soon to be jumping out of my skin with energy. I hope you can learn lots from your experience also.

Gjoy

 
Old 05-28-2011, 03:00 AM   #8
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Re: Ear problems causing neurological problems?

Well I have seen the ENT again and he says the grommet is in properly. I said I haven't been feeling any better and he said I can't expect to feel better quickly after being unwell for so long. It may take months for improvement. Must admit I am a bit disillusioned about the whole thing. I am to have my hearing tested again and reviewed in four months. I suppose I shouldn't have got my hopes up at all that this might help.

I emailed the testing body after no luck over the phone. They have given me a number of an institute that may be able to test my hair for mercury. I will make some enquiries on Monday, but wonder if anything would show now anyway. The very high results was last August.

gjoy

 
Old 05-28-2011, 04:24 AM   #9
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Re: Ear problems causing neurological problems?

Gjoy,

Sorry to hear that you have little or no improvements....

Can you elaborate more on the grommet and how its works, etc....

There are many hair testing labs in the USA that should be able to do the test. Again, stool and urine tests are the best with hair being third (when it comes to mercury testing).

Oh, one more thing, do you have any kind of coating on your tongue? Whitish in color perhaps? Tongue should be pinkish....if not, maybe you have yeast/fungus infection, this seems to be a secondary complication in my case and can also cause the symptoms you described.

MrIT


Quote:
Originally Posted by gjoy View Post
Well I have seen the ENT again and he says the grommet is in properly. I said I haven't been feeling any better and he said I can't expect to feel better quickly after being unwell for so long. It may take months for improvement. Must admit I am a bit disillusioned about the whole thing. I am to have my hearing tested again and reviewed in four months. I suppose I shouldn't have got my hopes up at all that this might help.

I emailed the testing body after no luck over the phone. They have given me a number of an institute that may be able to test my hair for mercury. I will make some enquiries on Monday, but wonder if anything would show now anyway. The very high results was last August.

gjoy

Last edited by MrIT; 05-28-2011 at 04:25 AM.

 
Old 05-28-2011, 06:30 PM   #10
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Re: Ear problems causing neurological problems?

Hi Mr.IT,

Each time I have had a hearing test over the last 18 months I have had the same result. My hearing is slightly worse in my right ear, though still pretty normal, in fact good. The physician said I don't know how you can hear so well with all that scarring. I have burst my right ear drum twice. The tympanometry test has always shown a high pressure in my right ear. The idea of the grommet is to equalise the pressure, also it should stop the infections by allowing the air in, it creates an environment where bacteria cannot grow. I started going to ear specialists because of the pain behind my ear. With the MRI and a later CT of the temporal bones fluid was found in the right mastoid. I have said all along that is where the pain is. They say if you have a mastoid problem you would be deaf. No-one has explained the pain. The grommet ENT said it may be coming from your ear, and as the grommet is a small procedure I thought it worth a chance. The pain behind my ear was much worse and travelling across the back of my head after the grommet, so maybe he is right.

The urine test I had was normal for mercury. The testing clinic I used parent company is in the US, Interclinical. The problem is it is not recognised here by the medical profession, so I am just a psych case.

No I don't have any coating on my tongue. The naturopaths and natural doctors are on to that sort of thing. They would recommend a sugar free diet and also not too much fruit. What are you doing to help yourself with that problem?

Thanks

Gjoy

 
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