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Old 01-10-2013, 04:06 AM   #1
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My husband and narcolepsy

Hello,
My husband first took a sleep study test and it came back with nothing abnormal. He then took the mslt sleep study (where they take naps) He went into rem twice during the naps. During the third nap he went into rem at two minutes and during the forth nap 0 minutes. He works crazy hours and just got done doing a 24 hour duty before the study. Now the doctor is saying he has narcolepsy. He has no signs of cataplexy. And she said this would be a mild case of narcolepsy. But the issue is, is that my husband is in the military and he is afraid it is going to hurt his career (which it will unless he was misdiagnosed). I guess what I am trying to see is if the test could ever be wrong? They are wanting to do another test basically they are saying they would bore him to sleep. (well to see if he will fall asleep I am guessing) He functions normally during the day if he is kept busy. If he gets bored he will doze off. But thats not at work. He has never had any issues at work or even at home. I'm not sure if his hours have anything to do with why he might have been misdiagnosed. I am reading up on narcolepsy and I am sorry I just don't see it thats why we are pursuing the other test. I'm just curious if anyone else has been misdiagnosed or if there is any way he could have been. Thank you in advance!!

 
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Old 01-11-2013, 10:22 PM   #2
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Re: My husband and narcolepsy

hello,
just recently started taking nuvigil (max dose) it has made an amazing difference in my life..i took the mslt test too..no rem at all.....i fall asleep at traffic lights...have fallen asleep talking on phone to customer,,have fallen asleep standing up (leaning on a counter)..

after about 5 seconds i always start dreaming...i can even tell u exact details about the dream...yet the mslt test did not diagnose narcolepsy

so..i guess what im trying to say is..i feel the test can be wrong..at least in missing the diagnosis..

hope this helps..

just found this..googled "effectiveness of mslt"
its a long article in the new england journal of medicene...he;res one quote:

The MSLT has also been shown to
have a high test-retest reliability of 0.97 in normal subjects which
is not affected by test intervals or level of sleepiness.12 Based on
these and numerous other studies, the Practice Parameters state
that “the MSLT is a validated objective measure of the ability or
tendency to fall asleep.”1 (p115)
The Practice Parameters also recommends that the MSLT be
used to measure sleepiness and diagnose narcolepsy.1 If a worker
is being evaluated for narcolepsy then this is an essential and
appropriate test. However, there are a number of problems that
have become apparent when the MSLT is used in other situations.

Last edited by jenjen393; 01-11-2013 at 11:36 PM. Reason: wanted to repost corrected copy

 
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Old 01-11-2013, 11:40 PM   #3
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Location: PA
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Re: My husband and narcolepsy

hello,
just recently started taking nuvigil (max dose) it has made an amazing difference in my life..i took the mslt test too..no rem at all.....i fall asleep at traffic lights...have fallen asleep talking on phone to customer,,have fallen asleep standing up (leaning on a counter)..

after about 5 seconds i always start dreaming...i can even tell u exact details about the dream...yet the mslt test did not diagnose narcolepsy

so..i guess what im trying to say is..i feel the test can be wrong..at least in missing the diagnosis..

hope this helps..

just found this..googled "effectiveness of mslt"
its a long article in the new england journal of medicene...he;res one quote:

The MSLT has also been shown to
have a high test-retest reliability of 0.97 in normal subjects which
is not affected by test intervals or level of sleepiness.12 Based on
these and numerous other studies, the Practice Parameters state
that “the MSLT is a validated objective measure of the ability or
tendency to fall asleep.”1 (p115)
The Practice Parameters also recommends that the MSLT be
used to measure sleepiness and diagnose narcolepsy.1 If a worker
is being evaluated for narcolepsy then this is an essential and
appropriate test. However, there are a number of problems that
have become apparent when the MSLT is used in other situa

 
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