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Old 03-13-2013, 05:26 PM   #1
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Is this occiptal neuralgia?

Since the end of december, I've had this tingling sensation in the back right side of head. Lately, every day starts the same. I get up feeling fine and within 20' or so, the tingling starts. The problem is that it is intermittent and seems to move around. One minute it's at the back side of head, next it's at the top, sometimes near the eye (like a sinus infection). The worst is when it momentarily feels like I've lost my balance (vertigo-like).

The pains aren't "zapping" like described online, just ranging from dull pain to tingling to sometimes burning like. My scalp in the pain spots hurts sometimes when I touch it. My PCP says it sounds like neuralgia. I had xrays of upper spine due to unrelated neck pain and all was fine. The only relief lately is going to bed and waking up fine then slowly the pain starts again.

I had what I think was very similar several years ago, but this time seems worse. Two things I can think of are a lousy work/computer sitting position where I favor my left side and lean to that side most of day. The other is stress. Thoughts?

 
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Old 04-10-2013, 04:18 AM   #2
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Re: Is this occiptal neuralgia?

I find I get pains like this from working at my PC, it could all be down to how you sit, how high is your chair etc., or as you say maybe stress. Try and clear your head and think of nothing, hard I know but try.

 
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Old 05-15-2013, 08:06 PM   #3
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Re: Is this occiptal neuralgia?

I have had tingling on the top of my head and sensitive scalp bone for many years, I have gone to every dr known to man. No answers. I have had lots of other symptoms also. the only thing I come up with is lyme disease.I am now taking lyme meds and stilll tingling. I also have neck pain and a little bit of a balance issue. I have a whole story but I am falling asleep and cant get into it now. Just wondering if this sounds like anything that you guys have.

 
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Old 07-15-2013, 01:15 PM   #4
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Thumbs up Re: Is this occiptal neuralgia?

Hi.
Have not been on in a while but was diagnosed with occipital neuralgia back in Nov 2011 and after the usual tests, MRI, CT, blood work, etc, seem to be at square one.
So I try and cope with the head pressure coming from within, around the eyes, across the bridge of the nose, ear pressure. ENT said there is no infection and the ears are clear.
I am also being treated for severe acid reflux, barrette's esphogus. SP?
I even asked the ENT if that could account for the pressure in my head since there are so many cavities in the head. He doubted it.
I can lay down and feel fine. As soon as I am upright, it comes back. Some days it is not too bad. I think sometimes, it depends on the barometric pressure....but then again, desperate for some answer.. so that sounds good. Depression constant, anxiety and brain fog.
Lately, I am having nerve trembling in my arms and hands. Waiting for my appointment with a VA doctor. I really don't hold out much change from them. Just thought I would add my 2 cents...I wish I had more answers for everyone out there. My family has just about given up on me. They shake their heads and tell me what a shame and that I need to just suck it up and move past it. Yeah right. Hope everyone is doing ok out there.

 
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Old 07-22-2013, 06:42 AM   #5
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Question Re: Is this occiptal neuralgia?

Hi, I'm new to this board, but have a question. Have you sought out an answer from a headache specialist? I was diagnosed w/suboccipital neuralgia (bilaterally,) by a neuro-ophalmologist @ Johns Hopkins Eye Institute, back in 2007. The way I was diagnosed, was the following: He pressed on the areas @ the base of my skull, where those bony projections are located. I almost jumped out of my chair!! He then gave me injections into the most painful areas, of a combo of a steroidal mixture & a numbing substance, like marcaine. I've had to have quite a few inj's since, but they relieved my symptoms for awhile each time.
My symptoms were, & still are: severe stabbing pain from the back of my head, up the sides to my temples & around my eyes, w/tingling, some numbness @ times, & vision problems. I was in ERs 3x b4 this, & was incorrectly diagnosed w/trigeminal neuralgia, varients of migraines, & unfortunately, somatotization d/o! :-( I would strongly suggest a neuro-ophalmologist, over a PCP, or headache clinic, if you are still having these symptoms. The Headache Center that I went to, treated me for uncontrolled migraines, of many varients. I ended up in another hospital, w/a severe reaction to ergot alkaloids in combination w/an SSRI antidepressant. BIG NO NO! I am now disabled from the lasting results of that-being heart block, all organs starting to shut down, brain slowing/damage, seizure activity, & quite a few other problems. I wish you a pain/trouble-free life, filled w/hope, & good quality of life!

 
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Old 07-22-2013, 08:23 AM   #6
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Re: Is this occiptal neuralgia?

Dee
Have you been checked for lyme disease. There is a company in california called Igenix. They are the best lab for lyme testing. I strongly suggest that you call them and get their kit. They will send it to you with all the info you need to get your blood tested through them. I have lyme and have some of your symptom. Also I would suggest that you search the lyme board. Good luck and keep us posted.
LaLa

 
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Old 08-10-2013, 06:51 AM   #7
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Re: Is this occiptal neuralgia?

Sorry it's taken so long to reply, Lala. I've finally found a dr. to write a scipt for bloodwork yesterday. Included are: Lyme titers, Epsein Barre titers, Rheum. Factor, ANA, CRP, CBC, T3, T3, & TSH. Will get BW done on Monday, & I'm Very interested in the Lyme Titers. In the spring of '89, I had all the symptoms..rash around R knee, spreading to lower leg, then red, swollen, painful knees, ankles, & unable to walk or go up & down stairs. Also, had severe headache, fever, throat infection, & malaise. I didn't have insurance or any money at the time, so (POOR CHOICE,) didn't go to a doc. I had just moved from PA to KS, to recup at my Mom's, after complications of a sm
bowel obstruction, laparotomy, & no sick pay for 8 wks. Thanks for your advice!!
Denise

 
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