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Old 04-27-2007, 03:08 PM   #1
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Unhappy hi, really looking for a solution to my neck problem

Hi, I'm new and just lost about what is going on. Woke up last Friday and was in horrible pain, had it all across top of back and it ran down into my hand. It even made my armpits scream with pain. Called my Dr and they said that if I hurt that much, they could see me in a month and to just go to an ER. Saw a PA, she said that it looked like Radiculopathy and said to go see a neurologist. I found my last MRI and Diskography results. These are results from MRI: c3-4 small amount of air adjacent to right lateral aspect of vertebral body. Disk annulus appears within normal limits. Minimal posterior buldgin which flattens the thecal sac. C4-5 Punctare air in soft tissues adjacent to right aspect of vertebral body. There is prominent hypertophic change of left unconvertebral joint with moderate left neural formanil narrowing. There is left anterior veretbral spondylosis. Disk space is very small and punctate air and contast centrally. Slight irregularity posterior left aspect of disc just below the osteophyte seen. Increased epidural space attnuation in this region and on (lists an image) thre is also identified posterior focal smudging hyperattenuation. These findings suggest an annual tear with leakage of iodinated contrasst into the epidural space at this level. These findings should be correlated with clinical findings during siscograpy at this level. Right unconvertebral joint demoonstrates mininal hypertrophic change w/o neural frminal narrowing.
c5-6 vertebral body spondylosis and hypertrophic change with right neural formaninal narrowing. c-6-7 irregular posterior broad based disc bulge w/o significant spondylosis. Hypertrophic foraminal narrowing identified.
it goes on like this.
Now, I am losing feelings in my fingers and at night it's even more painful than when I broke my shoulder and arm and my foot in a fall. However, my primary doc chooses this time to take away pain mds and only offers some lidocaine patches. I have muscle spasms so terrible that I cannot turn my head, look up or look down. I had spend time in a wheelchair after 2 separate auto accidents and some torn disks there. I can't seem to make anyone to understand that I am in such agony and need help. Surgery for lower back almost killed me with complications. I guess I am looking for someone to help me understand what is going on in my neck, I had a accident as a teen and have had the spasms in my upper back for 40 years, I deserve some sort of a break from this. Does anybody understand in real people speak what is wrong with my neck and can I be fixed or will it keep getting worse. Excuse my typos but I can't bend the fingers on my left hand now along with the fact that they have no feeling in them. I'm in agony, live alone most of the time, my husband travels for weeks at a time out of the country. I am also trying to get ready to move someplace in a few months and need some help. well thats all my hand and arms can take for now. pls help me I think that my dr has grown tired of me and maybe her practice, but she is not as eager to help as once upon a time. i am abandoned and alone in this.

 
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Old 04-29-2007, 07:30 AM   #2
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Re: hi, really looking for a solution to my neck problem

Hi lizabeth, I sorry to hear about what you're going through. Those doctors in Wilson are like some of them here in Johnston Co. a bunch of quacks. Maybe you should check out Pitt Memorial Hospital in Greenville, which has a better facility and it like Duke is to us compared to Johnston Memorial Hospital. I suffer from Cervical Radiculopathy, Reflex Sympathetic Dystrophy and Cervical Dystonia which the first two deal with nerve damage in my neck, shoulder and arm. Cervical Dystonia is where I have severe and uncontrollable muscle spasms in my neck which can cause my neck to turn to the left and my shoulder will draw all the way up to my left ear. All of these conditions are very painful so you need to find someone who knows how to treat this conditions. Like I said if there is a way possible that you could go to Pitt Memorial Hospital even if you have to go through the ER maybe someone there can help you or at least refer you to someone. Because I have heard of the horror stories about Wilson Hospital and Pitt is a very good hospital.

 
Old 04-29-2007, 11:03 PM   #3
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Re: hi, really looking for a solution to my neck problem

Quote:
Originally Posted by rayefaye View Post
Hi lizabeth, I sorry to hear about what you're going through. Those doctors in Wilson are like some of them here in Johnston Co. a bunch of quacks. Maybe you should check out Pitt Memorial Hospital in Greenville, which has a better facility and it like Duke is to us compared to Johnston Memorial Hospital. I suffer from Cervical Radiculopathy, Reflex Sympathetic Dystrophy and Cervical Dystonia which the first two deal with nerve damage in my neck, shoulder and arm. Cervical Dystonia is where I have severe and uncontrollable muscle spasms in my neck which can cause my neck to turn to the left and my shoulder will draw all the way up to my left ear. All of these conditions are very painful so you need to find someone who knows how to treat this conditions. Like I said if there is a way possible that you could go to Pitt Memorial Hospital even if you have to go through the ER maybe someone there can help you or at least refer you to someone. Because I have heard of the horror stories about Wilson Hospital and Pitt is a very good hospital.
Hi Ravefave, Thanks for your response. I have found who appears to be a very overly qualified Neurosugeon here in Wilson, right on Forest Hills. When I got my first diganosis, I lived in VA and had some really good Drs there. Our little 'hospital' isn't good and my doc just says go there. I went to the clinic in Greeneville, but our insurance won't pay for going to a place associated with a teaching hospital.
All of the conditions you mentioned I know that I have them ongoing now as well, and they sure do hurt, a lot. But, we look ok, so without spending a ton on MRI's and other tests, everybody thinks we are just acting out for drugs. My dr cut mine down to half in the past month. I don't understand what's up with her. She wanted to to go the a pain clinic in Rocky Mt, but I checked on that and it's according to what I got from the hospital, nothing more than a lot of PT and helping you work through the pain, and let's not forget our drug addiction. My meds are the only thing that make me feel sort of normal and I'm getting worse. If you want to hear what the new Dr tells me, write back and I'll let you know.

 
Old 04-29-2007, 11:06 PM   #4
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Re: hi, really looking for a solution to my neck problem

just re-read your post and I'm so sorry to hear that you have RSD. I believe I can imagine how miserable you are. Do you get treated by a Rheumy or Neuro for it?

 
Old 04-30-2007, 04:50 PM   #5
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Re: hi, really looking for a solution to my neck problem

For right now I have a regular doctor who takes care of me which so far he has done a real good job. For the most part what he prescribes works real well but sometimes my biggest problem can be the muscle spasms. Sometimes they get so bad I have to go the the ER and get a prednisone shot when they get so bad the medicine doesn't help. Have you checked with that Neurosurgen on Forest Hills Dr. yet? Sometimes you can find a local doctor who is just as good, it just trying to find the right one. I'm sorry that your insurance won't allow you to go to Pitt because it a teaching hospital because I've heard of such things about that hospital. But I do think you need to see someone else about your problem and not someone who thinks it all in your head, I've been there and done that too. It wasn't until I finally lost use of my left arm that someone finally figured out that something seriously was wrong with me. Now my left arm is frozen where my left hand touches my left shoulder and no one can straighten it back out again. Also I have lost a lot of use of my right arm, I can't lift it no higher than my waist and I think that shoulder is starting to freeze up as well. I'll try and maybe ask around and see if I can find someone who can recommend someone in Wilson. I read also that you are moving, are you moving somewhere else in NC?

 
Old 04-30-2007, 08:26 PM   #6
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Re: hi, really looking for a solution to my neck problem

i have appt with him tomorrow, my family doc here has decided to carve away at all of my pain meds and i think she is tired of treating me. we have moved a lot, so making a credible request is getting tiring for me. I will move again by years end and will need new dr and the whole thing starts over again. My daughter dates a drs son here in Wilson and he said this guy is great to go see him. keep checking and i will let you know how he is. i am sorry for my typing, but now i am losing feeling in my fingers at night so getting pretty bad. hands have had it for the day. will try to write back tomorrow. take care.

 
Old 05-01-2007, 12:12 PM   #7
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Re: hi, really looking for a solution to my neck problem

I hope your doctor vist goes well for you today and hopefully this doctor can help you or at least recommend someone.

 
Old 05-02-2007, 02:46 PM   #8
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Re: hi, really looking for a solution to my neck problem

hi again, he was all business and has a really great pedigree and is a member of one of the pain associations. he was not happy that my dr did not see me when I had the trouble start up with my hands and arms or see me after my visit to er. he did a nerve conduction study and it wasn't good, so he set up an immediate mri which i will have thursday. in the meantime, he gave me a new med for epileptics and i have to start slowly with dose and titrate up. he's also a neurpsychologist so he's working on you the whole time to see if you are a faker or really in pain and that's different for me to see. I think I know someone else who lives in your town, but I don't know her married name. Her husband is going to need a good pain doc, he's had about 8 surgeries on his foot after falling from a ladder. Oh, since I am not from this part of NC but from the piedmont, I plan on moving to around Asheville after I sell here. I just can't stand how hot it gets here and miss a real winter so much. If all goes well and my hands get better, I hope to go on a house/condo trip the second week of June. I don't know why my insurance won't pay for teaching hospitals, but they don't and when I went to the pain clinic in G'ville the dr missed totally giving me an epidural and it wasn't for me.
Also they make you bring someone with you, and I don't have that option since I am really alone except for my daughter who graduates HS in June.
Hope you are doing well. I may have had enough with my family doc and it's possible that I might want to see the one you go to. Haven't read the rules of the board about stuff like that, so I don't know if you can tell me. I just know that the one I see is getting too full herself now. When we moved here there was such a shortage of docs that she was the only one who would see me, she was new in town. I did spend a week in this hospital after having major problems with my back surgery. All together I spend about 4 weeks in intensive care here and in Wake med and Durham Regional. It was a total nightmare and I believe that everyone thought I would die from all that happened to me. Still here though, and about the same as I was prior to the operation. But when a doc tells you that if you hurt that much to go to the er and has time to see you, it really rubbed me the wrong way and I resent her for it. After when they called me to come in, she gave me to the PA to see and she was rude and just nasty. Would love to hear horror stories about this place if you feel up to it. Thanks.

 
Old 05-02-2007, 06:05 PM   #9
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Re: hi, really looking for a solution to my neck problem

Ashville is a nice place, I like the mountains more than the beach. My doctor is Dr. Stan Watson from Smithfield, the office name is Horizon Family Medicine. There's also a pain management clinic in Clayton I went to one time call The Summit which is a branch off of Johnston Memorial Hospital. The doctor's name was Dr. Utawada, I believe that's how you spell it, he was real nice. My moma has a friend who has had a lot of bad experiences at Wilson Hospital, I can't remember all the stories but they're not good ones. Hopefully, this doctor can help, I know I wouldn't go back to the other one that's for sure. Also there's a Dr. Landau in Kenly which is about 20 miles south of Wilson on 301 who I've heard good things about. I can't give you his number or address but I can give you his name and city. He's not a pain specialist but he is a regular doctor. But it's a shame that you have to run through all these hoops before anyone will believe you but I also know how that goes to. I was in pain for years and was told he was all in my head even got diagnosed with being manic-depressive. The doctor felt like my pain was coming from depression from where I just ended a 10 yr marriage to a drug addict and alcoholic. I then went from being depressed to being manic-depressive somehow but after I lost just about everything I took myself off of all that medication and finally return to work. Then 3 yrs later I got diagnosed with RSD, Cervical Dystonia and Arthritis but by then it was too late the damage was done and was irreversible. So I hope you can get help before it gets even worser on you.

 
Old 05-02-2007, 08:05 PM   #10
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Re: hi, really looking for a solution to my neck problem

Hi again Faye, I cannot tell you just how much better you have made my life knowing that someone else around eastern NC has much of the same problems I have too and knows the area as well. I didn't even know that Pitt
Co was close and that is the hospital you go to. Thanks for the infor about the drs. I know that I went to see a dr, but not in Kenly when we first moved here. You have had a really rough time for sure, why do they always go play the depression card on people in pain w/o searching for an answer? It really burns my butt. My BFF frome when we were in VA was delighted to hear that the dr on Forest Hills was also a neursychologist because he goes through sort of syke exam on you when he is talking to you, and you don't know it. One dr with his speciality is how she got help initially. Now she has found a psychopharmacologist to take care of her meds. She has been her pt for 15 years and has never lacked for good care and treatment of her pain.
I have a link to all of them in the US that her dr gave her. It's a shame that so many marriages turn out like yours because a partner drinks and can't deal with us being in such pain that they abandon us. I'm alone now too, but different reason, he got transferred to Mexico over a year ago. My friend got hit by and 18 wheeler 15 years ago and spent a year in rehab as a resident and her body is a wreck. I have been like this for about 40 years and it's a monster task to find a dr. If things go well with this guy, you may want to come to Wilson and see him. He's the only dr with all of the specialties anyplace close to us. All we want is to have a better quality of life, what we have left of it, and after a while most drs want to call us 'cured' and get us off the meds. It's proven that we are not addicts and won't be because we are in pain constantly. I just hate it, we have moved 14 times and I have to go through this every 2 or 3 years, and will be going through it again. Just have so much to get done in the next few months before my baby goes off to college and I have to leave this house, sell it. So since this isn't where I am from, I have no need to stay here in this big house alone. I am supposed to move to Mexico, but it's just so darm hot there. So I am going to get as high in the mountains as I can, with a real winter and summers that are not almost as bad as where my husband is. Also, wanted to know if you get disability? They won't let me, I was a stay at home mom, so don't have enough credits and can't get on till my husband turns 62, so I have 6 years to go. I can't even get a parking permit from a doc here, not even when I was in a full body cast and the darn dr nearly killed me. BTW the family doc I see here is Dr Heron and she ussed to be nice. I don't know what happened to her. Except she married a shrink. And once I was 5 mins late for an appt and she won't take you if you are late, she has so many rules now, her staff is quitting there is always a turnover. I love the office people, and they are my friends, but if she gets close they clam up and look busy. Rich Duke DR.
oh well, thanks for letting me rant and for the help. I wish they could fix both of us, cause I know how awful it is when our necks are so messed up. Don't you wish once in a while they would hurt theirs just for a day or two and nobody will believe or help them. I only want them to understand this misery, but I suppose you have to live it to know. Have a good night. and Thanks again.

 
Old 05-03-2007, 05:33 PM   #11
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Re: hi, really looking for a solution to my neck problem

Yes, I got my disability about a yr ago. My first husband's problems began before we were married and just continued to get worse. So I divorced him when my childern were real young and really don't remember too much about him, they haven't seen him in about 10 yrs. But I did remarry to a guy from Philadephia who has been a true godsend who has been there every step of the way and knows that I can't do a whole lot of normal things. But he helps me out with the housework, works and helps pay the bills and gets along with my two daughters who are now 17 & 21. I hope when you move to Mexico, you can find a place in the mountains because I know it's got to be hotter there than here. As far as that dr. you mention who changed abruptly and wouldn't see you because you were 5 min. late that's terrible, you just never know about these doctors nowadays. The doctor who diagnosed me surrendered his license for the second time about 6 months after he diagnosed me because he had a drug problem. It took me a few doctors to get the one I have now who so far has been a good one. I wish you well especially when you have to move to Mexico and have to find a doctor there.

 
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