Myasthenia Gravis - Neuromuscular Diseases Message Board

michellev1970 · 11-02-2007, 03:37 PM

I had a blood test done last month that showed I have the anti bodies for myasthenia gravis; I read on one of the websites for this disease that if you have the anti bodies it means that is a guaranteed diagnosis for this. Does anyone know? I have an appointment with neurologist in December, is there anything else this could be or is it for sure this? I don't know anything about the disease can anyone tell me about it? Will I be able to continue to work? I would appreciate anything anyone could tell me about it.
Thank you!!!!

rayefaye · 11-03-2007, 08:54 AM

Hi Michelle, there is a post on here called " My 15 yr. old daughter-what's wrong"" there's a woman there who talks about having Myasthenia Gravis. This post may help you out a lot.

Madalot · 11-03-2007, 09:31 AM

My father supposedly had Myasthenia Gravis. I say "supposedly" because I have been diagnosed with Limb-Girdle Muscular Dystrophy and my doctors believe it may be possible that he was misdiagnosed (he's deceased). Assuming he was NOT misdiagnosed, I can tell you that his biggest problem was his eyes. His was controlled with medication, for the most part, but you could tell if he was really tired because his eyelids would droop really badly.

The Muscular Dystrophy website has a lot of information (MG falls under the MD umbrella of diseases). I would recommend looking at that and/or contacting them for additional information.

michellev1970 · 11-04-2007, 01:05 PM

Thank you both very much for the replies

I am just very confused...

Gobsmacked · 11-05-2007, 08:55 PM

You are looking for Brocallie! She is wonderful and helped me out so much through the new diagnosis (and surgery) with my daughter. I'm new to this illness but may be able to answer questions if you have any. My daughter's symptoms were very obvious to the neurologist we went to (one of the 3 worst cases he has seen). She actually failed the nerve stimulus test before they even had her bloodwork done for the anti-bodies.
I pray that everything goes well with you!