elevated muscle enzyme labs - Neuromuscular Diseases Message Board

lalemu · 05-08-2008, 01:09 PM

Can anyone help me? My muscle enzyme labs came back the other day at 3000. I had the test repeated and they are down to 263 but I am so exhausted and my muscles hurt so bad. The mri of my arm did not show anything so I am confused. I am scheduled to go for an emg but am getting discouraged and just want to know what it could be. I am so sore and tired. I am only 48 years young. Any ideas of what I can do or has anyone ever experienced this?

TEdds83 · 05-08-2008, 03:33 PM

HI Lalemu! I am sorry you are feeling bad. I am right there with you. I am actually waiting for my doctor to call and tell me my muscle enzyme results. They took my blood yesterday to check for things. I have tired muscles and twitching that has gone on for months. We are starting with that test first and then I have more to come. It's a process of elimination I guess. Please let me know how you are doing and what you find out. That is weird that your number was high and then dropped like that. I wouldn't think it would be bad though, at least it didn't stay up high. Get to feeling better!

lalemu · 05-10-2008, 01:14 PM

Thank you for responding TEdwards. He is thinking that I have polymyolitis. Not sure if I spelled that correctly. You know, at this point, I just want them to tell me what it is instead of me thinking I'm going crazy. I did realize that the first time they took my blood I had worked 8 hrs the day before. When I had my blood re-checked I had been resting the day before (because I was exhausted from working the 8 hrs.) I am wondering what kind of role that plays and I will ask him next week. I am going for another MRI this week. This one is on my thighs. I'm wishing you luck with your tests and keep me informed. Thanks, Leslie

TEdds83 · 05-31-2008, 08:17 PM

How are you doing lalemu? Anymore results? I got my first test back. The CK enzymes...or whatever that test is. Mine was 80 which she said was normal. I guess the normal range is 24 to 195. So I feel good about that....but now what?? I have more tests on June 10th. This one is where they take needles into the muscles. Its all so freakish. I am having twitches like crazy now. They actually went away for a couple of weeks and now they are back. All I know is that I am under ALOT of stress. So I hope thats all it is. I hope you are well.