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Neuromuscular Diseases Message Board
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Old 10-09-2009, 08:22 PM   #1
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How long did it take to get diagnosis?

I got the results from my muscle biopsy today. Its mild non-specific myopathy. So I guess there is mucle damage but they can't pin point what is going on. How do they come up with a true diagnosis if the muscle doesnt give indication as to what it is?

How long did you all have to test before you got a diagnosis? Whats after a muscle biopsy?

Last edited by Jayhawk9; 10-10-2009 at 01:09 PM.

 
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Old 10-10-2009, 05:17 PM   #2
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Re: How long did it take to get diagnosis?

Hi Jayhawk, I was wondering if you were experiencing the problems with your calf muscles and not with your knees. I suffer from Cervical Dystonia which is severe and uncontrollable muscle spasms of the neck. It took over a yr of suffereing through muscle spasms that would cause my head to turn to the left and my shoulder would draw up to the point my chin was resting on my shoulder. It took a yr to get this diagnosis and it was my family doctor who picked up on it. By then I had lost the use of my left arm in fact my left hand touches my shoulder and it's locked in this position. That's how long it took to get a diagnosis. There is also other types of Dystonia that effects different areas or the whole body. Try researching what you can on the Dystonia and you might find some answers there especially if the problems you're experiencing are muscular.
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RSD (Reflex Sympathetic Dystropy)
Cervical Dsytonia- severe muscle spasms in the neck
Arthritis

 
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