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Old 10-27-2009, 04:23 PM   #1
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wobbly weak thighs for 5 weeks anybody?

Ever since I went camping about 5 weeks ago, my thighs have been very wobbly and weak. It is freaking me out a little as I have never had anything more than muscle stiffness after exercise. A couple of weeks before the camping trip, I contracted some virus that left me and other in my family who caught it, quite fatigued. We all seemed to get over it though and I thought nothing of it; as I’ve been fatigued before. Hasn’t everybody? On the camping trip I had to pitch a large tent by myself. About 27 pegs on my haunches; but I also had to move the position of the tent several times and rip pegs out, so – in the end, I guess – I had to knock in – say – 35 to 40 pegs in extremely hot sun. Down near the ground, it was much hotter again. By the time I was finished, I was quite heat stressed. That night was the first time I noticed something funny. My thigh muscles were crawling. I didn’t think anything of it, but – after about a week – I found I had this really wobbly feeling in my thighs especially when striding at a mid range pace. I am not sure if the weakness is perceived or real, but it is quite pronounced. On the camping trip, I also chopped a lot of wood and completely did my lower back in. Could hardly walk because of lower back pain and had to have a couple of days off of work. I went to the G.P. and they did blood and fecal tests and found absolutely nothing except for very slightly elevated CK – which the GPs don’t seem too concerned about. They tested for thyroid and it was negative. They tested for iron and parasites and all the other standard blood tests. A week later I did my back again just bending down and I noticed that I had radiating pain across the front of my thighs. I Was sent to a neurologist who tested me with the machine that does the electric shocks and then the needles that they sink into your muscles to listen to the electrical sounds. She cleared me of motor neuron and has ordered an MRI. But that is not for weeks yet. I have noticed that my upper arms are also either fatigued or weak; which freaks me out a bit more. Riding my motor bike, my upper arms are now getting quite tired. Others are telling me that it is just anxiety, but – if it is – it is a pretty powerful physical effect. I really don’t know how to tell the difference between perceived weakness and real weakness, but I do occasionally feel considerably better. When I do feel less weak, I feel close to normal, apart from the fact that the muscles that previously felt weak and wobbly feel quite stiff and sore at this time. When I have these ‘normal times,’ I also have a funny creepy tingly feeling in my arms and scalp. I seem to still be able to climb stairs reasonably well without puffing or panting, but going down a slope is quite scary. I wanted to do a ‘sugar stress test’ but my GPs say that my ‘random blood sugar reading’ is fine, and it seems I will really have to push the point to get her to do it.
Anyway, does anybody have similar symptoms which – hopefully – went away eventually? Or does anybody have any idea what this might be?

 
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Old 11-03-2009, 06:54 PM   #2
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Re: wobbly weak thighs for 5 weeks anybody?

Oh well, no 'words of wisdom' from anybody yet. I am off for an MRI tomorrow. Symptoms are now in my upper arms as well. Very creepy and frightening. I guess I will keep posting as I find out more - if for nothing more than - to give some information to anybody else who googles these symptoms.

 
Old 11-10-2009, 07:50 PM   #3
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Re: wobbly weak thighs for 5 weeks anybody?

O.K., MRI came back with no problems except a bulging lower back disk which - apparently - is not impinging on any nerves. So now I am completely at a loss. I have another appointment in a month with my neurologist again - mainly just to find out why she hasn't asked for more tests. I don't know like a muscle biopsy or something. I have a sneaky feeling that she just thinks I am an 'anxiety case.' Which I'm willing to believe I am, but I would have thought her 'duty of care' would extend to determining this for certain rather than just having me chase her with another appointment. For me, the weakness feels real and the fatigue feels real. Does anybody have any helpful suggestions? I was hoping I could give some 'peace of mind' to others with the same symptoms by actually being able to say what was wrong. But - alas - no one seems to know. G.P.s are now just saying "lets wait a month and see if anything improves." Great.

 
Old 11-19-2009, 02:01 PM   #4
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Re: wobbly weak thighs for 5 weeks anybody?

Quote:
Originally Posted by togbabe View Post
O.K., MRI came back with no problems except a bulging lower back disk which - apparently - is not impinging on any nerves. So now I am completely at a loss. I have another appointment in a month with my neurologist again - mainly just to find out why she hasn't asked for more tests. I don't know like a muscle biopsy or something. I have a sneaky feeling that she just thinks I am an 'anxiety case.' Which I'm willing to believe I am, but I would have thought her 'duty of care' would extend to determining this for certain rather than just having me chase her with another appointment. For me, the weakness feels real and the fatigue feels real. Does anybody have any helpful suggestions? I was hoping I could give some 'peace of mind' to others with the same symptoms by actually being able to say what was wrong. But - alas - no one seems to know. G.P.s are now just saying "lets wait a month and see if anything improves." Great.

The symptoms you listed in your first post below are VERY similiar to what happened to me about 3 years ago!!! I was shocked to see your post. I'm sure I have posted here about my journey during the last 3 years trying to get information on what was wrong with me. I will tell you that I have learned a lot of things and may have found the culprit, but am waiting to be sure.

I too had an episode of my upper leg muscles having a crawling feeling. It was creepy and felt almost like a vague crampy feeling. Up until then I had been a very active runner and in good shape. Months earlier I had a muscle spasm in my back that would not leave. (MRI showed slight problem, nothing significant according to neurologist.) Other than that I was healthy, but with Type I Diabetes.

After the odd leg feeling, my leg muscles grew increasingly weak. I could barely walk up stairs. I had to support myself on the car door when getting out of the car! They did the electric needle test and it was negative. They checked and ruled out ALS, MS, Lupus, Arthritis, Fibromyalgia etc. I just lived with it. Eventually the weakness became sorness and I was VERY sore in my leg muscles. I was also VERY exhausted all the time. I felt like I was in a fog. Everyday things were a big ordeal. I also gained lots of weight.

Over the next two years the weakness got some better, but I was very stiff in my leg muscles much of the time. I mean VERY stiff as if I had ran a marathon! That is not right. The final straw was when I started getting stiffness in my upper arm muscles and had trouble putting shirts and bras on.

What I was diagnosed with was Hypothyroidism and placed on meds. Also extreme Vitamin D deficiency. I am in week two of a 50,000 units of Vitamin D per week regimin.

The doctors don't know for sure what caused the muscle problem. When I got on the Thyroid meds, I quickly felt like my old self again. Energy returned but the muscle problems remaind. I also feel better after 1 week of Vitamin D, but still am a little stiff. I will give it time to see for sure if that was the culprit.

If the stiffness, and some sorness and weakness, does not leave completely, I don't know what else to do. I really think they should do a muscle biopsy since this has affected my life negatively for 3 years, but the doctors have not seen fit to order it. I'm not sure what else to do. It's hard to get your life back to normal when my muscles are so stiff.

Your sypmtoms are the most like mine that I have found anywhere.

Last edited by Kendra01; 11-19-2009 at 02:03 PM.

 
Old 11-19-2009, 02:02 PM   #5
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Re: wobbly weak thighs for 5 weeks anybody?

Quote:
Originally Posted by Kendra01 View Post
The symptoms you listed in your first post below are VERY similiar to what happened to me about 3 years ago!!! I was shocked to see your post. I'm sure I have posted here about my journey during the last 3 years trying to get information on what was wrong with me. I will tell you that I have learned a lot of things and may have found the culprit, but am waiting to be sure.

I too had an episode of my upper leg muscles having a crawling feeling. It was creepy and felt almost like a vague crampy feeling. Up until then I had been a very active runner and in good shape. Months earlier I had a muscle spasm in my back that would not leave. (MRI showed slight problem, nothing significant according to neurologist.) Other than that I was healthy, but with Type I Diabetes.

After the odd leg feeling, my leg muscles grew increasingly weak. I could barely walk up stairs. I had to support myself on the car door when getting out of the car! They did the electric needle test and it was negative. They checked and ruled out ALS, MS, Lupus, Arthritis, Fibromyalgia etc. I just lived with it. Eventually the weakness became sorness and I was VERY sore in my leg muscles. I was also VERY exhausted all the time. I felt like I was in a fog. Everyday things were a big ordeal. I also gained lots of weight.

Over the next two years the weakness got some better, but I was very stiff in my leg muscles much of the time. I mean VERY stiff as if I had ran a marathon! That is not right. The final straw was when I started getting stiffness in my upper arm muscles and had trouble putting shirts and bras on.

What I was diagnosed with was Hypothyroidism and placed on meds. Also extreme Vitamin D deficiency. I am in week two of a 50,000 units of Vitamin D per week regimin.

The doctors don't know for sure what caused the muscle problem. When I got on the Thyroid meds, I quickly felt like my old self again. Energy returned but the muscle problems remaind. I also feel better after 1 week of Vitamin D, but still am a little stiff. I will give it time to see for sure if that was the culprit.

If the stiffness, and some sorness and weakness, does not leave completely, I don't know what else to do. I really think they should do a muscle biopsy since this has affected my life negatively for 3 years, but the doctors have not seen fit to order it. I'm not sure what else to do. It's hard to get your life back to normal when my muscles are so stiff.

Your sypmtoms are the most like mine that I have found anywhere.

Last edited by Kendra01; 11-19-2009 at 02:03 PM.

 
Old 11-20-2009, 07:04 AM   #6
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Re: wobbly weak thighs for 5 weeks anybody?

Thank you so much for your reply Kendra. The symptoms still haven’t gone away. I am getting sore doing – well – just normal things. I did get a doctor to give me a sugar stress test and it came back as – what she called – a “borderline diabetic.” She says it is just “something to watch.” I almost wish I could point to something like a thyroid problem – not to trivialize your thyroid issues. But at least then I could say it was something instead of ‘thinking the worst.’ I also want to get a muscle biopsy done and – like you – have no idea why it hasn’t been suggested by any G.P. I think that I will have to get a referral to another expensive specialist as my neurologist says the next stop is a ‘muscular skeletal specialist.’ I am lucky – I guess – that I now have an office job so I can sit down most of the day; but I even get a little anxious just getting out of the chair to go visit a co-worker. I am really sorry that this has affected your life for 3 years. You have done very well to persevere. At the moment they are testing me for adrenals, but I am really sick of tests that tell me I am ‘as healthy as a bull,” when I feel like – well, you know. My symptoms are a lot more like yours than you realize as I also have the feeling of being in a fog while trying to think at work and elsewhere. Maybe it is just from the fatigue. Additionally, I too was a very avid runner before this all started happening. Now – of course – I haven’t run since. Reduced to occasional walks for exercise. I was really hoping to make this post into one of hope for others by actually finding the problem, but – as yet – I haven’t got a clue. I am going to finish my adrenals test and then – I guess – off to the ‘muscular skeletal specialist.’ Other well meaning people tell me I’m just too stressed and it is “all in my head.” But – like you – I know it is not. I am not so naïve to not realize that anxiety makes me feel wobblier, but there is still an initial problem that has nothing to do with anxiety. The anxiety is caused by not knowing why this is happening. Anyway, please keep me posted – as I will you – and I hope you find your reason and get better. I really do. I can really sympathize with you.

 
Old 11-20-2009, 07:08 AM   #7
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Re: wobbly weak thighs for 5 weeks anybody?

Thank you so much for your reply Kendra. The symptoms still haven’t gone away. I am getting sore doing – well – just normal things. I did get a doctor to give me a sugar stress test and it came back as – what she called – a “borderline diabetic.” She says it is just “something to watch.” I almost wish I could point to something like a thyroid problem – not to trivialize your thyroid issues. But at least then I could say it was something instead of ‘thinking the worst.’ I also want to get a muscle biopsy done and – like you – have no idea why it hasn’t been suggested by any G.P. I think that I will have to get a referral to another expensive specialist as my neurologist says the next stop is a ‘muscular skeletal specialist.’ I am lucky – I guess – that I now have an office job so I can sit down most of the day; but I even get a little anxious just getting out of the chair to go visit a co-worker. I am really sorry that this has affected your life for 3 years. You have done very well to persevere. At the moment they are testing me for adrenals, but I am really sick of tests that tell me I am ‘as healthy as a bull,” when I feel like – well, you know. My symptoms are a lot more like yours than you realize as I also have the feeling of being in a fog while trying to think at work and elsewhere. Maybe it is just from the fatigue. Additionally, I too was a very avid runner before this all started happening. Now – of course – I haven’t run since. Reduced to occasional walks for exercise. I was really hoping to make this post into one of hope for others by actually finding the problem, but – as yet – I haven’t got a clue. I am going to finish my adrenals test and then – I guess – off to the ‘muscular skeletal specialist.’ Other well meaning people tell me I’m just too stressed and it is “all in my head.” But – like you – I know it is not. I am not so naïve to not realize that anxiety makes me feel wobblier, but there is still an initial problem that has nothing to do with anxiety. The anxiety is caused by not knowing why this is happening. Anyway, please keep me posted – as I will you – and I hope you find your reason and get better. I really do. I can really sympathize with you.

 
Old 11-20-2009, 07:20 AM   #8
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Re: wobbly weak thighs for 5 weeks anybody?

Actually Kendra, I forgot to mention, I also went on a course of doxycycline for just to rule out lyme disease. As it can have similar symptoms. In case I got bitten by a tick while out camping. Doctor said it couldn’t hurt. But no effect.’
One thing – though – I might try from reading your post. The vitamin D. I might start taking a supplement and see if there is any effect.
Sorry that the last post was repeated. My browser hung and when I refreshed the page, it looked like the post hadn’t gone so I did it again :-)
Again, thanks for your reply.

 
Old 11-21-2009, 02:57 AM   #9
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Re: wobbly weak thighs for 5 weeks anybody?

Hi Togbabe. Your symptoms sound very much like what I'm going through. At first I noticed the odd mild dizzy spell but recently they have gotten much worse and I lose balance, especially when going down slopes. I thought I had vertigo but after being but on a course of serc 16 I am as bad as ever. After speaking with a very brainy pre-med friend of mine she felt it could be down to stress, which is a really catch-22 diagnosis as this feeling of vertigo not only is brought on by stress but is also contributing to it!!! I now feel like I'm suffering from panic attacks as I am missing many lectures over this and I am in my final year of University. Unlike you two, I have never been very fit but in the last couple of months, not long before my dizziness worsened, I've been putting in time on an exercise bike...significant??? The vitamin D deficiency may also be true for me as I'm Irish and even though I have very low skin pigmentation, we just don't get any sun in this God-forsaken country!!! My G.P. did however do a lot of blood tests on me and he ruled out a vitamin deficiency. Still, I may as well take some supplements and I'll let you know my progress. Let me know if you find any helpful tips. Good luck to you both and get well!

 
Old 11-22-2009, 11:52 PM   #10
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Re: wobbly weak thighs for 5 weeks anybody?

Hi Billy, I am not really getting any dizzy spells or anything. I just have weakness in my thighs for some completely unknown reason. Anxiety can be a very powerful physical force. It can manifest itself in very physical ways. You already hit on the crux of the problem. It really is a catch 22. The weakness in my thighs gives me wobbly legs and effects my balance. Because I don’t know why this is happening, I get anxiety about it which as you – very wisely – pointed out makes me even more wobbly. The more wobbly I get, the more anxiety I get and so on and so on. What sort of tests have you been through?
I went to many G.P.s before they even did a ‘blood pressure test.’ You were saying that your vertigo got worse after starting your exercise regime. I am not a medical person but my wife is a nurse, and she was wondering if your blood pressure has been checked as this could affect your balance. I am wondering what you mean by vertigo? Do you mean that troubles with your legs causes balance problems, or that you are getting that awful weak feeling in your legs that vertigo gives you?
When I was younger I had panic attacks and I know they can be completely debilitating. If it is getting out of hand, maybe you should consider ‘stress or anxiety medication.’ I really wish I could be more helpful to you as I have suffered from panic attacks and it is horrid. It was about 20 years ago, but back then I went on a short run of prosaic – I think. Try not to stay on it though. Don’t let it become part of your life. But I was just thinking till you find some mechanism for dealing with the anxiety and get through your final year. Then you can deal with it more directly. This is what I did. With anxiety you’ve got to build methods, techniques and mechanisms to deal with the stress and the reasons it comes on. Sometimes – without some help – it is too high a mountain to climb. The use of ‘anti-anxiety medications’ can buy you that little bit of time to develop the coping mechanisms for when you don’t need the drugs anymore.
I wonder if you have been able to see an ‘ear nose and throat specialist’ for the balance problem? And – if not – can you get a referral from a G.P. to do so? Because it could just be an inner ear issue. Of course this is useless advice if – as mentioned above – your dizzy feeling is from weakness in your legs rather than in your balance. I am not sure – reading your post – which is the case.
Anyway, regarding the anxiety, don’t give in to it. It takes a little bravery, but you can lick it.

 
Old 11-23-2009, 09:14 AM   #11
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Re: wobbly weak thighs for 5 weeks anybody?

I know how terrible it is to deal with this. This weekend while shopping I had to go up a flight of stairs. They were pretty high. I have stairs at work, but they are not high and I tolerate them okay. I did pretty well I must say. I held the rail and took my time.
Later in the day though, my legs were VERY stiff. I walk like an old woman!

I'm glad you mentioned a muscle skeletal specialist. I never heard of that before. I am going to look for one. That is my last hope. I have done everything on earth I know to do....still no one knows what the problem is. My last option is to see a psychiarist. I will explain what has happened to me and ask him to treat me for any mental illness that could be causing my stiffness. If they can't treat my body, perhaps they can treat my mind. I have heard that depression can cause pain in your body, exept I have more stiffness than pain and I don't feel depressed. I have more energy and enthusiasm than I have had in years! Thanks to my thyroid meds. That changed my life.

Oh, I also have a lump on my clavicle bone. They untrasounded it and think it is harmless, but want to keep an eye on it. (It's not my thyroid.) They don't want to biopsy it either. That kind of makes me nervous.

Keep us posted please. I'll do the same.

Last edited by Kendra01; 11-23-2009 at 09:16 AM.

 
Old 11-23-2009, 03:59 PM   #12
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Re: wobbly weak thighs for 5 weeks anybody?

i did not read all the post..but the one i read...my first thought was adrenal fatigue. the virus you had may have weakend your immune system and your adrenals had to work a bit harder...look into adrenal fatigue with a 24 hour stress test, read about it.... do you get jittery hypoglycemic feeling? the blood work sometimes only shows am readings. just a thought

 
Old 11-23-2009, 07:44 PM   #13
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Re: wobbly weak thighs for 5 weeks anybody?

Confusa, thanks for your reply. I absolutely do get a hypoglycaemic feeling quite regularly which comes and goes. Which is why my wife was convinced I had diabetes. As it turned out I am a “borderline diabetic” needing – for the moment – no treatment. Basically insulin responds too slowly. When the hypoglycaemic feeling does go for short periods of time, my muscles feel quite stiff and a little sore – but behave quite normally – giving me a short break from the wobbly thighs. I am having my adrenals tested at the moment actually. These tests require me to urinate into a bottle of some chemicals for 24 hours. There are two separate tests they are doing and as soon as the results come back I will post exactly what the tests are called. I wish I had taken more notice. I think cortisol is one of them.

 
Old 11-24-2009, 03:42 PM   #14
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Re: wobbly weak thighs for 5 weeks anybody?

Hendra, I know you haven’t had a muscle biopsy, but if you get to your ‘muscular skeletal specialist,’ I am sure he will do one. I have been doing a little reading as well, and confusa has also replied to our postings talking about adrenals. I was wondering if you have had your adrenals tested? It is a bit of an annoying test. You’ve got to urinate into these two separate bottles for separate tests for 24 hours and one of them requires you stay away from a whole range of foods including things like fruit, nuts, tomatoes etc…. But adrenals are tied up with your whole metabolism and how you make and use the final energy your muscles use to move. Just a thought, but it can’t hurt to be checked. I am very glad to hear that your energy – at least – is back. See there is improvement! I was concerned to read you say that the ‘muscular skeletal specialist’ is “your last hope.” I don’t think that this is the case and it worried me that you are thinking this way. What you’ve got is not ‘life threatening,’ but very upsetting. You have seen improvement from your thyroid treatment and that is really great news. Imagine if you had the tiredness as well as the ‘thigh weakness.’ How much harder your life would be. I am not being condescending. I just don’t want you to talk about things being “your last hope.” You have made small improvements and there is no reason to believe you won’t make more. Others here are suggesting options that might help and – just like your thyroid discovery – they just might. You can get thigh weakness from muscular imbalance between your calves and your thighs as they are apposing muscles. You can get it from weak knees and connective tissue. You can get it from bad hip joints. These are all things that your ‘muscular skeletal specialist’ can rule in or out. So keep it going.

I haven’t heard back from Billy. I am wondering how he is going.


Quote:
Originally Posted by Kendra01 View Post
I know how terrible it is to deal with this. This weekend while shopping I had to go up a flight of stairs. They were pretty high. I have stairs at work, but they are not high and I tolerate them okay. I did pretty well I must say. I held the rail and took my time.
Later in the day though, my legs were VERY stiff. I walk like an old woman!

I'm glad you mentioned a muscle skeletal specialist. I never heard of that before. I am going to look for one. That is my last hope. I have done everything on earth I know to do....still no one knows what the problem is. My last option is to see a psychiarist. I will explain what has happened to me and ask him to treat me for any mental illness that could be causing my stiffness. If they can't treat my body, perhaps they can treat my mind. I have heard that depression can cause pain in your body, exept I have more stiffness than pain and I don't feel depressed. I have more energy and enthusiasm than I have had in years! Thanks to my thyroid meds. That changed my life.

Oh, I also have a lump on my clavicle bone. They untrasounded it and think it is harmless, but want to keep an eye on it. (It's not my thyroid.) They don't want to biopsy it either. That kind of makes me nervous.

Keep us posted please. I'll do the same.

 
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