Is anyone working that has Myasthenia Gravis?
I was diagnosed 6 months ago with MG. I had the droopy eyelids to where they were little slits for me to see thru. I then had the double vision, extreme weakness in my arms and legs, trouble with swallowing and now it seems a big effort to breathe normally sometimes. The Pyridostism, Prednisone, and Mestinon have not helped alot other than my eyes stay open more. Now I just look tired all the time. Because of all these issues I had to close my daycare business and now I am without a job. I do not have any way of paying my bills except for my father helping me out. I am not married and my children are not financially set enough to carry their mother through this hard time. I don't have any insurance and the dr. is wanting me to have more testing as he thinks that I might have 1 or 2 more autoimmune diseases coming on. Has anyone else with MG been in this situation? If so, what did you do? I applied for Social Security Disability and was denied. My doctor keeps saying that most people can have a "relatively normal life", but I am not seeing it at this time! I also applied for Medicaid and was denied. I am at a lost as to how people with this disease are being able financially take care of themselves. Someone please answer with some ideas for working with this disease!! Waiting to hear back from you.