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Neuromuscular Diseases Message Board
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Old 05-05-2010, 11:05 PM   #1
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anikolich HB User
can anyone relate?

I'm 33, I've been suffering from severe neck pain,chronic neck cracking, numbness in fingers and toes, severe fatigue, severe migraines since I was 20 years old. I was diagnozed with scoliosis at 12, it progressed at 25, and its at 45 degrees now and it all hurts all the time. About a year ago my wrists started hurting and now they are stiff. I have seen at least 100 different doctors and still no help. My body feels like its on fire, inflammed muscles most of the time. I didn't have trouble swallowing as a child, however, i did walk on my tip toes for at least 10 years. I have had brain mri, cat scan, mri or whole spine. scoliosis and a few herniated disks, nothing major showed up! I did end up going on daily migraine meds. The meds helped the migraine but the simptoms are all still there and they are progressing. I want to get diagnozed and want to help myself. Can anyone point in which direction? I do think that it could be neuromascular desease, but I am not sure of anything.
Thank you so much,
Angela

 
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