Myasthenis Gravis newly diagnosed
Hi all, happy New Year!
I have just been diagnosed with MG and from everything I have read I am really scared. This all seemed to start in July 2010 when I had what at that time was diagnosed as bell's Palsy. Twice within a few weeks time in 2011 I thought I had a recurrence of Bell's.
My GP was not so sure.
She thought I had had a T.I and sent me off to a neurologist. He questioned the heck out of me and at the end of that I said-this is just something silly right? Aside from my normal pain issues I didn't feel bad-older and weaker but I chalked that up to turning 50-so imagine my shock when he said I think you have "Myasthenia Gravis"
I was in shock and have been doing tests for over a month now. Started on Pyridostigmine. Nasty stuff. I get the worst stomach cramps with it but I can swallow and enjoy eating without choking so its worth it. My droopy eye issue has gone into remission but my vision remains to be a problem. I have double vision but in a different way than I have ever experienced. It isn't two images overlapping-it is 2 images. Like a split tv screen. And then there is this ghosting-which is when I try to read a book or magazine or any kind of print I have like a ghost gray image above and below the line of print.
I don't really have any questions right now. I think I am still having trouble accepting and believing that this is real.
What I am hoping for from you guys is to hear your stories and how you are dealing with this crazy disease and how has your life changed or if it has changed.
Cervical fusion C-3,4 June 2004
Lumbar fusion L3,4-5 November 27 2006