Re: General Dystonia with spasmodic torticolis
It sounds like dystonia to me, but I am not a doctor. There are medications, botox injections, and other medical treatments to help. Sadly there is not a cure for dytonia.
I too have been told it's all "stress" related and my own brain is making this happen. When my onsets occurred, I was not under any stressful situations, nor was I holding on to unresolved issues from the past. They even tried telling me, it was the "stress" of raising two small children, well my dears, then you just summed up most parents with "stress" events that would lead them to medical conditions. When I was in ICU the neurologist team sent in the physiologist team to assist me, who then in return told the neuro team, it's not stress induced, it's neurological .
For me, they dumped me on my family doctor who witnessed my body twisted and shake. He placed me on Baclofen, which eases the issues. The neuromuscular center read my file and are having me looked at for dystonia, along with another neurologist whom came to the same theory. Tell your mom not to give up, to keep on pushing! I wish her all the best, and you are not alone!
Last edited by melandter; 04-16-2012 at 06:24 PM.