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Originally Posted by Pudsta  Hi Im still tingling constantly although not in as much pain with it as I was my mri of my brain and cervical spine was normal had a 2nd nerve test done only last week and that is now showing as all limbs normal where as one in January showed severe carpal tunel in left hand this has miraculously disappeared now so I'm not the wiser I kind of feel there's sum connection when eating it can get worse diabetes tests are normal but wonder if something has been missed as this can't be normal what symptoms do you have ? |
I was at a traffic light and before the light turned green I felt as if both hands and feet where on fire. It was like a bolt of lightning went through me. I had a sinus infection at the time. Everything worked so when the light turned green I went to a family members house and walked a lot until it settled down. Mainly my feet and fingers tingled, with lots of other weird stuff too. Feet and arms felt stiff. Electric bolts at my hips. Stuff like that. Couldn't feel hot/cold, wasn't all that hungry once I started to eat. It also felt like I had shingles on my lower shoulder later the night of the original incident but no rash. One day I had swallowing weirdness and from day one everything tilted to the right until I went to the chiropractor. For three or four weeks I felt fatigue but only when driving and usually early in the morning or night after 9:00 but again only when driving. Feet and hands felt swollen. Brain fog. Double vision.
Now I just have stiff toes and sometimes fingers and lips with a few burning or tingling sensations or a chill that runs up my legs and very dry eyes. But nothing at all like what it was the first three or four weeks. This all comes and goes. It doesn't keep me up at night any more.
My neurologist was not helpful at all. I've seen him for years for migraines. He saw me the day after, told me to come back in six weeks and told me to take an antidepressant that makes you sleepy. When I went back he said I had idiopathic SFN and sent me on my way. No tests no MRI. My GP tested me for all the normal causes of SFN and nothing came back as a possible cause. Every question I asked my neurologist he said "everyone's different" and when I asked him what he was basing his diagnosis on he said 32 years of doing this stuff. I stopped taking the antidepressant a month ago and my double vision went away along with the fatigue after three days.
I have found out it's Acute onset SFN. It may be a variant of Gillian Barre. I'm looking for a new neurologist.
My main question is if the SFN is progressive if it doesn't go away. In the articles I've read it seems it can take up to two years to either resolve completely or steady out.
I've been exercising at least three times a week and eating very clean along with taking vitamins. I go to the chiropractor once a week, too. I'm not diabetic but have occasionally tested as peri so I'm watching my glucose. Trying to follow the ADA guidelines. That's gotten my sugars averaging only in the normal ranges. I've lost 15 lbs.
This has been terrifying quite honestly.
