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Chronic "Tightness" in left side of head (Help!)


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Old 05-15-2017, 03:57 PM   #1
Jerry1985
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Chronic "Tightness" in left side of head (Help!)

Hi Everyone,

For the past 15 years I've had a chronic, and unrelenting, sensation of "tightness" of the area just in front of my left ear across to, and including, the area in and around my left eye. It's like having a constant migraine, and when it feels intense feels like the sensation fans out to my left temple/forehead as well (when I wake in the morning, or go outside without sunglasses on, my left eye area feels so "tight" it can feel like a struggle to open it under those circumstances - at least initially).

As well as this "tightness" sensation (from the area in front of the left ear across to the left eye) being constant my eyesight is affected in that I can never perceive the tip of my nose but instead always perceive both sides of my nose as 'separate shadowy transparent images' (I've read that cranial neuropathy 4 could cause this). The constant sensation of "tightness", where I described it, makes me feel like I'm perpetually in a brain fog and can never concentrate properly and I also feel like colder weather exacerbates the sensation.

No amount of exercise, stretches, analgesics or muscle relaxants have done anything for this and generic neurologists have been utterly hopeless (ie: "Oh your MRI of your brain is fine? Well then I'll tap your knees and elbows and prescribe you some muscle relaxants!" - which was a complete waste of time and money). I've also seen several opthamologists and TMJ specialists and they have said my eyes themselves and the TMJ are fine.

I've made an appointment to see a facial nerve specialist in the coming months (it's an incredible long wait to see her) and wanted to ask the opinion of others as to whether my constant sensation of "tightness", over the area described, over such an extended period of time could be caused by a form of cranial neuropathy or facial nerve impingement?

Thank you.

Last edited by Jerry1985; 05-15-2017 at 04:00 PM.

 
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Old 05-16-2017, 11:21 AM   #2
old soul20
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Re: Chronic "Tightness" in left side of head (Help!)

You might have a migraine Men get them and they can be intractable. Obviously I can't diagnose you, but its possible. The visual disturbance and one side headache both come with a migraine.

Mind started getting bad during the last year of college. For a long time, no one really believed me. It took a long time before I finally found a Dr. to treat hem. They were 24-7 and finally landed me in a hospital for ten days. I still have them, but they are a 7 or 8 instead of 11 now.

There are vascular tests as well as MRIs and CATscans. Find a Dr. you are comfortable and stick with it. Only a Dr. can tell you what you have. Sometimes it takes a while to find one who will treat your unseen pain. Just don't give up in your search.,

old soul

 
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Old 05-16-2017, 04:05 PM   #3
Jerry1985
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Re: Chronic "Tightness" in left side of head (Help!)

Quote:
Originally Posted by old soul20 View Post
You might have a migraine Men get them and they can be intractable. Obviously I can't diagnose you, but its possible. The visual disturbance and one side headache both come with a migraine.

Mind started getting bad during the last year of college. For a long time, no one really believed me. It took a long time before I finally found a Dr. to treat hem. They were 24-7 and finally landed me in a hospital for ten days. I still have them, but they are a 7 or 8 instead of 11 now.

There are vascular tests as well as MRIs and CATscans. Find a Dr. you are comfortable and stick with it. Only a Dr. can tell you what you have. Sometimes it takes a while to find one who will treat your unseen pain. Just don't give up in your search.,

old soul
Hi,

Thanks for your response, though the reason I don't think it's a migraine is because the sensation of 'left sided tightness' has literally been constant over the last 15+ years (as bad as headaches and migraines are, there are periods of times when they lapse and go away before coming back. My 'left sided tightness' hasn't gone away for one moment since this started in May 2002).

Also, in regards to eyesight, I don't have an 'aura' or the typical migraine visual symptoms. My strange, and also constant, visual distortion purely relates to not being about to perceive the tip of my nose and always seeing both sides of my nose concurrently as 'two separate shadowy images'.

I've tried everything there is to try and am so frustrated with feel like for over 15 years I've been in a constant state of chronic pain (ie: "chronic left sided tightness of the head"). The only thing I can think of that could cause such chronic symptoms would be if there's a problem with a branch of the Trigeminal nerve (ophthalmic?) or some other branch of the facial and/ or vestibular nerve that's been affected (when I was a teenager I had a bad habit of constantly twisting around my left ear, so not sure if I somehow damaged by that and it lead to a cascade effect with interrelated nerves?).

Thanks.

Last edited by Jerry1985; 05-16-2017 at 04:08 PM.

 
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Old 05-16-2017, 06:11 PM   #4
old soul20
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Re: Chronic "Tightness" in left side of head (Help!)

You would have to pull pretty damn hard on your ear to cause nerve damage. Much harder than would have been comfortable or even slightly painful.
Your best bet is a neurologist, and if you don't get an answer, get a second opinion. Some problems that are not seen can be missed and take several tests to find.

Pain or tightness that you can't see or that does not show up on a test sometimes gets written off as "its all in your head" (pun not intended).

The trigeminal nerve has several branches to it hitting various parts of the face. I don't know if a GP could find that and would probably sent you to a neurologist.

As for migraines, mine started before I was eighteen and has been constant for over twenty years now. I rarely get auras, and when I do, they are not the traditional kind. They can be different for sufferers and often although triggers can be identified, nothing shows up on tests. Mine are rare, barely responsive to any medication, so they can be constant.

You may need some patience to find the problem. You may have more than one thing going on as well, complicating diagnosis. We like to think Dr.s have all the answers, but they don't. If you have an opportunity to see a specialist, take it. Like most things, worrying about it probably actually makes it worse.

Old soul20

 
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Old 05-17-2017, 12:42 AM   #5
shadowne
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Re: Chronic "Tightness" in left side of head (Help!)

Have you tried posting at livingwithfacialpain? It is for sufferers of trigeminal neuralgia, GPN and other facial neuralgias. When was your last MRI? A trigeminal nerve compression doesn't always show on an MRI, especially if it was a few years ago.

 
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