Kathim: I've had pains in a lot of places that I don't have PN - latest are sharp, achy pains in my upper thighs, arm, knees. I'll be curious to read what happens with your ultrasound. Are they looking for clots? Do you have warm sensation and swelling (which can occur with clots)? I've mentioned my pains to dr., but they didnt' say anything (since, I assume, they don't know what or why). Let us all know what happens with your tests. I've just gotten used to the array of pains-it seems different hour by hour, day by day. Hard to believe our body can just do all this for no reason at all (at least no reason they can find or discover medically, yet).
Originally Posted by Kathim
Hopefully someone can give me an answer so I dont worry so much over this !!
Lately my calves in my legs have been throbbing as well as most of my lower leg.....Is this part of PN or is this maybe additional problem going on?????
It seems no one replied with a similar complaint so dont know what to make of that !!!
Yes.....I do believe the cardiologist is checking for possible clots which I assume I dont have..........My cardiologist is very good but have found out from a nurse friend that I also probaby should have had a blood flow analysist test..so when I go to Cardio on the 19 will ask her about that also.
I will definately let you know how it all goes. The next two weeks are my Dr weeks........I have two different rheumatology appointments and a neurology appointment and my cardiologist appointment so hopefully I will know something more !!
My main concern is if the Lupus caused this or??????? AND.....one Rheumy is still skirting the Lupus diagnosis so............
My life right now feels as tho I live in the saop "AS THE WORLD TURNS"
I hooked up with a gal on my Lupus chat @ pro Health Saturday night and she has the same.....peripheral Neuropathy and Lupus....she is one of the first I have actually met and been able to talk to and compare....it was quite interesting as to what all "SHE" has been through.
Kathi, Have you been dx'd with Lupus for sure? I am to be tested for Lupus and also MS as the doctors don't know yet what is the cause of my PN. Yes, you are right, it is just like living in As The World Turns. I was dx'd with something else at first, but the doctor at UCLA says that I don't have that, so now its another waiting game. I had no idea that PN had anything at all to do with Lupus did you? Interesting.