Neuropathy - Neuropathy Message Board

cookie51 · 05-27-2004, 08:42 PM

Hi,
I was just told I have neuropathy, also fibromyalga, but my question is, I had surgery on my ankle(fracture- pins and plates ) on both sides of my ankle due to a fall from foot drop, my question is has anyone with neuropathy ever had buring viens? I have a blood clot due to foot surgery, and have my blood drawn every week for 6 mths. and when they stick the needle in my vein, it burns like a hot poker. Anyone ever hear of that ?
Thanks Cookie

iamemak · 05-30-2004, 11:17 PM

Hi. I am new here.(tonight) I have been reading several of the catagories and don't know exactly where I belong.
When I saw your post, I had to respond. I really don't know where to start but I do know the kind of burning pain you are talking about !!!
I have that pain often. Not everyday but it is really part of my chronic pain that I have had for over 4 years now.

That Burning, Stabbing pain, I don't have to be stuck with a needle to get it., but I truely understand that pain.
It is a terrible pain.

When I decide exactly where I belong, I will post and tell you all my pain/ and problems. I don't know what one to put it under but... I have damaged nerves........................so........ ..... where should I go to post??? any suggestions? ok?
Thanks.
and

cookie51 · 06-01-2004, 09:12 PM

Hi Jamie, Just read your post, I think this site is good for your nerve pain, also like me mine is from back surgery and damage to a nerve and I have drop foot, which caused my neuropathy, so I sometimes go on different sites, I think I can really go on most of these sites because I have so many things wrong with me I to dont know where to start. Back to the burning with the blood draw, I was surprised, it burnt so bad, they had to do it again because the blood was not coming out so they did it again, and that to hurt like fire. I never had that happen before, but I have fibromyalgia,so i think that has something to do with the burning pain. Well I hope all is well with you and will post later.
cookie

NancyH · 06-01-2004, 09:52 PM

I know this is the place for chronic burning stabbing pain, I mean that's what neuropathy is all about right? I have left and right ulnar nerve neuropathy as well as neuropathy in my feet do to the pernicious anemia I was diagnosed so late with back in 96. I to have damaged nerves called polyneuropathy and perepheral neuropathy. This is not fun to have it is horrific pain at times and just what does everyone else here take for this pain? I haven't found anything that works enough to make me want to party but I do take an analgesic to take the edge off. Curious as to what others have been able to find that helps with nerve pain.

plkelly · 06-02-2004, 01:24 PM

Like some of you, I also visit different sites. I was originally diagnosed with trigeminal neuralgia almost 9 years ago. The past couple years, I've had TMJ problems, so I visit both the sites. Until Easter I had been pain free for nine months after starting orthodontia treatment. Wore a splint 24/7 for about 6 months, then got upper braces last September, then lower in January. But recently I have had the worst pain ever--can't even swallow or sip coffee or talk in the mornings without those horrible lightning bolts going off in my jaw. Sometimes in the afternoon after my meds kick in I guess, it calms down a little. I have started on Tegretol again, and this morning saw the doctor--she thinks I have both TN and TMJ and is switching me to Neurontin. I see the acurpuncturist again tomorrow. One of the worst things about this type of pain is that others don't understand what it's like. I get a couple words out--'can't talk now'--and they start asking questions. Or the fact that when I don't have the pain, I really have no pain at all. It goes through 3-4 month cycles. (Except for the last time when it lasted for 7 or 8 months, but never like this. I could talk, just had to be sure not to hit a trigger point).
Patsy