question - Neuropathy Message Board

mom9302 · 02-18-2005, 12:32 PM

My mom has neuropathy(sp). It just seems as if her doctors tell her she might as well go to bed and never get out of it. I don't know if she likes the attention or if her symptoms are that severe. She calls almost daily with new big problems and I just don't know what to do. I mean for instance yesterday she called to say she had a blood clot move into her eye and busted and that she was told to to go back on her plavix. She had just went off of the plavix for hand surgery next week which has now been canceled due to this blood clot. I guess what I need to know is their anyone else out there with these problems or is my mother just lucky(haha) to get them all.

Tatt · 02-19-2005, 01:05 AM

I'm not sure if I understand your question. I have neuropathy and if my doctor acted as if I needed to go to bed and wait to die, I'd be looking for a new doctor. I'm only 42 and I still have a lot of living to do yet. When I first got neuropathy, I was very freaked out and terribly depressed. I DID take to my bed for several months. I was in a lot of pain and wasn't getting much help from my doctors. But life goes on, whether you stay in bed or not. Kids need to be fed, house needs cleaned, laundry must be done, life needs to be lived. It's horribly painful for me to take even one step, but it hurts whether I'm laying in bed, or playing with my kids. I choose to live.
It's very hard, and really painful. My life is very different than it was before I got this. I can't do many of the things I did before, but I do what I can.
What is your mom doing? How old is she? Is she on medication? Neuropathy can be mild or severe. It can spread all over your body, or stay where it is. How long has she had it? I can tell you that it hurts like a #%@*^*%$#! Maybe she needs some motivation to do things. Can she get around? I started out in a wheelchair and now I just need a cane or a strong arm to use for balance. Do her feet hurt very bad? Do shoes hurt her? I bought several pairs of very soft Deerfoam slippers to wear. I wear them everywear. Even in a restaurant or grocery store. Maybe all your mom needs to get her motivated to keep moving forward is a lunch date with you. Does she have any hobbies or interests? I took up beading and now I sell my stuff on ****. I can't go to work at a regular job, but I can contribute financially doing this.
We're all going to die someday. And if you lay in bed hoping it comes fast, it will. I just can't do that, and it breaks my heart when I hear of others that can't deal with this. Can your mom type? Would she like to talk to others that have the same thing she does? She has a lot of options, maybe you just need to help her see what they are. Good luck to you!

mom9302 · 02-19-2005, 08:07 AM

my mom likes attention. She is on multiple meds she has other major health problems. It just seems she says that the doctor tells her what she wants to hear. This is my opinion and opinions of almost of our family if it benfits her the doctor said it she never wants any family members to go with her to the doctor. She has a home health service that takes her to all her appointments. And with all the new privacy act laws it is hard to find out any information about her unless she wants you to know I have really started to push to know things but it seems like I hit a brick wall with her. She gets mad at me because she says I act like there is nothing wrong with her but sometimes I think her mind adds to her problems.