It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Neuropathy Message Board
Post New Thread   Closed Thread
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 04-25-2005, 09:55 AM   #1
Senior Member
 
Join Date: Jul 2002
Posts: 112
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
acl828 HB User
Neuropathy...incredibly frustrating!

Pardon the pity party here but it just seems that I've fallen into some kind of Black Hole. To make a long story short, I had a very bad fall in January 2001, didn't go to the doc until April (when I could hardly walk), went to various docs up the chain of severity, and now, 3 surgeries later, am a mess! I am in constant pain and nothing seems to get it gone.
I suffered badly from January 2001 until August 2002 when I finally agreed to a single level fusion. Now that it's 4 years later and I'm still in so much pain, I look back and wonder if I waited too long and all this pain is coming from nerve damage that can't be fixed. My first sugery was revised to a two level fusion and then the third, they removed the hardware. I did actually have a small window of relief in 2004. From March through August I was doing so well that I'd gone back to school and was much more active. Unfortunately, the old familiar pain returned in August but I didn't go to my Neurosurgeon right away.
At the beginning of December he ordered an MRI and the results were that now, the level above, L3 has gone hinky. I've done the epidurals (none helped). I've done PT (made it worse). I take Lorcet (helps a little but nothing totally stops the pain). I've also been told they see Arthritis in my back and the PT said I have Neuropathic Radiculopathy (I hope I said that right). Anyway, I was just wondering if anyone else has this same diagnosis and what treatment regimens (successes and failures) you have endured. I thank you for your time and for all inputs.

 
Sponsors Lightbulb
   
Old 04-25-2005, 04:28 PM   #2
Junior Member
(female)
 
Join Date: Apr 2005
Posts: 13
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Kiki9 HB User
Re: Neuropathy...incredibly frustrating!

Hi acl828, sorry to hear about all the pain. Neuro pain is hard to treat, I've had neuropathy for 26 years, plus 7 herniated disks & spinal narrowing w/arthiritis. The only thing that ever helped me was ultram & clonapin for the pain & spascitiy. Yoga & gentle stretching help sometimes. Good luck with any treatment course you pursue. -Kiki

 
Old 04-25-2005, 07:24 PM   #3
Senior Member
 
Join Date: Jul 2002
Posts: 112
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
acl828 HB User
Re: Neuropathy...incredibly frustrating!

Thank you Kiki. I pray I don't have 22 more years of this ahead of me. Seven herniated discs? If you don't mind me asking, have you had any surgeries? Surely you don't manage that with only meds and stretching.
Neuro pain is a booger bear. I have wished many a day I could go back to the day in January '01 when I fell and caused all this. Thanks again for your reply.

 
Old 04-26-2005, 03:55 PM   #4
Junior Member
(female)
 
Join Date: Apr 2005
Posts: 13
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
Kiki9 HB User
Re: Neuropathy...incredibly frustrating!

Hi acl828. I've never had any spinal surgery - it took several years of 'begging' to get pain meds from my doctor (I threatened to go to alternative 'smokable' sources for relief before he would prescribe anything). I'm not a good surgical canidate because the CIDP has effected my capcity to maintain my blood pressure & respriatory functions (especially when I'm stressed or ill). The spinal surgery may have helped if it had been done before my vertebra began to fuse - so the only treatment is pain meds & stretching. I pray that you don't have another 22 years of neuro pain - rather I pray that we all have a cure - or at least adequate treatment- for our our ailments. -Kiki

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
recently dx small fiber neuropathy LoriAllen Neuropathy 8 09-12-2010 04:34 PM
Small Fiber Neuropathy#2 will54 Neuropathy 110 05-10-2010 12:07 PM
Can anxiety/stress alone, can cause Neuropathy like symptoms? stargrave Multiple Sclerosis 7 03-06-2010 05:18 PM
Neuropathy? machine Neuropathy 2 12-17-2009 10:05 PM
Small Fiber Neuropathy will54 Neuropathy 107 02-03-2009 05:24 PM
Neuropathy Lynne720 Back Problems 6 01-14-2008 10:10 AM
Diabetic Neuropathy Constant Pain chara23 Diabetes 32 12-22-2007 01:36 PM
newbie to neuropathy diagnosis jm1311 Neuropathy 11 12-05-2004 02:09 PM
Neuropathy caused by chemotherapy reiki gal Chemotherapy 3 05-24-2004 02:06 AM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off











Message Boards
  • Open to All Other Health Topics
  • It's Life - Off Topic Discussions
  • Natural Disaster Sympathies and Support
  • Health News
  • HealthBoards Testimonials
  • Suggestions for New Boards
  • Registration/Membership/Site Problems
  • Health Issues
  • General Health
  • Abuse Support
  • Acid Reflux / GERD
  • Acne
  • Share Your Acne Story
  • Acne Tips
  • Acute Respiratory Distress Syndrome (ARDS)
  • ADD / ADHD
  • Addiction & Recovery
  • Addison's Disease
  • Aging Issues
  • Allergies
  • Alternative Medicine
  • Alzheimer's Disease & Dementia
  • Amputation / Prosthetic
  • Amyotrophic Lateral Sclerosis (ALS)
  • Anemia
  • Aneurysm
  • Anger Management
  • Angina
  • Anxiety
  • Share Your Anxiety Story
  • Anxiety Tips
  • Arthritis
  • Asperger's Syndrome
  • Asthma
  • Autism Spectrum
  • Autoimmune Disorders
  • Back Problems
  • Beauty & Cosmetics
  • Bell's Palsy
  • Bipolar Disorder
  • Birth Control
  • Blood and Blood Vessel
  • Bone Disorders
  • Bowel Disorders
  • Brain & Head Injury
  • Brain & Nervous System Disorders
  • Brain Tumors
  • Breastfeeding
  • Burns & Injuries
  • Cancer
  • Cancer: Bladder
  • Cancer: Bone
  • Cancer: Brain
  • Cancer: Breast
  • Cancer: Cervical & Ovarian
  • Cancer: Colon
  • Cancer: Esophageal
  • Cancer: Kidney
  • Cancer: Lung
  • Cancer: Oral
  • Cancer: Pancreatic & Liver
  • Cancer: Prostate
  • Cancer: Rectal & Anal
  • Cancer: Skin
  • Cancer: Stomach
  • Cancer: Testicular
  • Cancer: Throat
  • Cancer: Thyroid
  • Cancer: Uterine
  • Candida
  • Caregivers
  • Carpal Tunnel Syndrome
  • Celiac Disease
  • Cerebral Palsy
  • Chemotherapy
  • Children - Special Needs
  • Children's Health
  • Chronic Fatigue
  • Codependency
  • Colds & Flu
  • Swine Flu (H1N1)
  • Cosmetic / Plastic Surgery
  • Costochondritis
  • Crohn's Disease / Ulcerative Colitis
  • Cystic Fibrosis
  • Death & Dying
  • Degenerative Diseases
  • Dental Health
  • Depression
  • Share Your Depression Story
  • Depression Tips
  • Diabetes
  • Hypoglycemia
  • Diet & Nutrition
  • Digestive Disorders
  • Disabilities
  • Divorce & Separation
  • Dizziness / Vertigo
  • Down Syndrome
  • Drug Interactions
  • Dyslexia
  • Dysphagia
  • Ear, Nose & Throat
  • Eating Disorder Recovery
  • Endocrine Disorders
  • Endometriosis
  • Environmental Disorders
  • Epilepsy
  • Epstein Barr Virus (EBV)
  • Exercise & Fitness
  • Eye & Vision
  • Family & Friends of Cancer Patients
  • Family & Friends of the Mentally Ill
  • Family Planning / Adoption
  • Fibromyalgia
  • Foot Problems
  • Gallbladder
  • Genetic Disorders
  • Grief & Loss
  • Hair Loss / Alopecia
  • Hair Problems
  • Headaches & Migraines
  • Health Insurance Issues
  • Healthcare Professionals
  • Healthy Lifestyle
  • Hearing Disorders
  • Heart Disorders
  • Hepatitis
  • Hernia
  • Herpes
  • High & Low Blood Pressure
  • High Cholesterol
  • HIV Prevention
  • HIV/AIDS Living With
  • Hormone Problems
  • Hospice
  • Human Papillomavirus (HPV)
  • Hypochondria
  • Hysterectomy
  • Immune Disorders
  • Incontinence
  • Infant Care (up to 18 months old)
  • Infectious Diseases
  • Infertility
  • Share Your Infertility Story
  • Inner Ear Disorders
  • Interstitial Cystitis (IC)
  • Irritable Bowel Syndrome (IBS)
  • Kidney Disorders
  • Knee & Hip Problems
  • Lasik Eye Surgery
  • Learning Disorders
  • Leukemia
  • Liver & Pancreas Disorders
  • Lung & Respiratory Disorders / COPD
  • Lupus
  • Lyme Disease
  • Share Your Lyme Disease Story
  • Lymphedema
  • Lymphomas
  • Men's Health
  • Menopause
  • Mental Health
  • Mesothelioma
  • Military Health Issues
  • Miscarriage & Still Birth
  • Mononucleosis
  • Multiple Sclerosis
  • Muscular Dystrophy
  • Myositis
  • Nail Problems
  • Neurofibromatosis
  • Neurology
  • Neuromuscular Diseases
  • Neuropathy
  • Nutritional Disorders
  • Obesity
  • Obsessive Compulsive Disorder (OCD)
  • Occupational Health & Safety
  • Orthopedic
  • Osteoporosis
  • Pain Management
  • Chronic Pain
  • Share Your Pain Management Story
  • Panic Disorders
  • Paralysis
  • Parenting Issues
  • Parkinson's Disease
  • Personality Disorder
  • Phobias
  • Pituitary Disease
  • Polio
  • Polycystic Ovary Syndrome (PCOS)
  • Post-Traumatic Stress Disorder (PTSD)
  • Postpartum Depression (PPD)
  • Pregnancy
  • Share Your Pregnancy Story
  • Pregnancy Tips
  • 2010 Mommies
  • 2011 Mommies
  • Pregnancy-Teen
  • Prostatitis
  • Psoriasis
  • Rape / Sexual Abuse
  • Rare Disorders
  • Raynaud's Syndrome
  • Reflex Sympathetic Dystrophy
  • Relationship Health
  • Restless Leg Syndrome
  • Rosacea
  • Sarcoidosis
  • Schizophrenia
  • Scoliosis
  • Self-injury Recovery
  • Senior Health
  • Sexual Dysfunction Treatment
  • Sexual Health - General
  • Sexual Health - Men
  • Sexual Health - Teens
  • Sexual Health - Women
  • Sexually Transmitted Diseases
  • Shingles
  • Shoulder / Rotator Cuff Problems
  • Shyness
  • Sickle Cell Anemia
  • Sinus Problems
  • Sjögren's Syndrome
  • Skin Problems
  • Sleep Disorders
  • Smoking Cessation
  • Speech & Language Disorders
  • Spinal Cord Disorders
  • Stress
  • Stroke
  • Sudden Infant Death Syndrome (SIDS)
  • Teen Health
  • Thyroid Disorders
  • TMJ Disorder -TemporoMandibular Joint
  • Tourette Syndrome
  • Transplants
  • Trigeminal Neuralgia
  • Trying to Conceive (TTC)
  • Urology
  • Vaccination & Immunization
  • Vitamins & Supplements
  • Weight Loss
  • Weight Loss / Surgical
  • West Nile Virus
  • Women's Health



  • TOP THANKED CONTRIBUTORS

    Neuropathy

    RisingParrot (33), Aussie100 (18), captinsane1 (14), Ruby8 (12), awlright (9), tingles (6), jverive (6), daisymaegrif (6), Ihate2w8 (6), cocoa100 (4)

    Site Wide Totals

    thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (465), mscat40 (421), tetonteri66 (419), jennybyc (404), sammy64 (391), jgrangran (362)

    All times are GMT -7. The time now is 10:24 PM.



    Site owned and operated by HealthBoards.com™
    Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
    Do not copy or redistribute in any form!


    SEO by vBSEO ©2011, Crawlability, Inc.