Neuropathy help here - Neuropathy Message Board

IBS Free · 02-28-2006, 08:12 PM

I had peripheral neuropathy, numbness, and pain(severe nerve damage), had severe pain in lower back, legs. Could hardly button a shirt, walk down or up a step, without holding onto something. Could barely balance. MDA diagnosed it Charcot Marie Tooth Disease. I found a holistic MD doctor who did Lipid Exchanges by IV. I feel like I have been given a miracle! I had 13 of them and got all the feeling back in my extremities and no more pain or numbness anywhere.

6foot3 · 03-01-2006, 05:56 PM

So what are Lipid exchange's by IV. Iv'e studied alot about lipids and how they interact in the Cell Membranes thru diet but never have heard of an Lipiid Exchange. Also ''Charcot Marie Tooth'' syndrome is an Genetic disorder so im a little leery when i hear of a genetic cure without Gene therapy however im open to learn......

6foot3 · 03-07-2006, 07:48 PM

This is interesting info IBS... Although you could do these things by diet .(choline is lecithin) (glutathione with whey protein) .. Although i would be curious if they added fish oil to the lipid exchange by i.v. and see what happens? and have you noticed any improvements.......

IBS Free · 03-07-2006, 10:03 PM

Yes I got all the feeling back in my hands, feet, legs, arms. No more pain anywhere. See my first post. I went into detail about my before and after. I took 13 treatments. She did have me take phosphatidylcholine by mouth with butyrate(these 2 are the oral form of lipid exchange) as well as do the IV Lipid Exchange. At the time I was getting Lipid Exchange I was also suffering from IBS, so the gut was sort of leaky, not able to absorb everything I took orally.

jane76 · 04-04-2006, 12:07 PM

is this Lipid Exchanges by IV only available in the states,im from the uk and my partner has type 1 diabetes and really suffers wth his legs,doctors give him all different medication (tablets) but nothing eem to help him at all,its unbearable for him it was mainly at night but now its beginning to effect him during the daytime too,can anybody please help me or give me some advice