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Old 02-27-2006, 09:56 AM   #1
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karie36 HB User
Re: Neurontin users

Cathy,

I know what you are experiencing. Not a good feeling I am telling you. It seems you and I have a a classic case of depression. I know I do. I know it seems you are a failure at your job, but you are not. Anyone that has stayed in the workplace as long as you and I, we are not a FAILURE WE ARE A SURVIVOR! I know it is rough right now but if you can hang in there a while you will retire. I have experienced the same feelings on past jobs but made it. I am now retired. Sometimes I feel I would like to go back to work part-time just for a change of pace. I cannot bring myself to do so.

Wanting to sleep is part of depression. It is my way of getting away from myself and the world. (Does that make sense?)

I am now going through degestive problems. I hope after tomorrow when I go back to doctor he can give me something to help with this problem.

Congrats to your husband and try to feel good for him even it it is hard. My husband has been my sole support through all my problems.

I have not been on the board for a while simply because I could not bring myself to turn on computer. We have also had sickness in my husband's family and I had to help him deal with that. Seems that is getting better.

We are going to get better also. It seems winter is a bad time for me just want to crawl up in chair and sit there.

Since I have been taking Neurontin (generic) my pain will come and go and not nearly as bad as it has been. I have read posts stating bad/good things about this drug but it has given me back a quality of life I was missing. Now the back/neck pain is there. I also have tingling in the leg and upper back.

So good to hear from you again. I like reading your posts it helps me also to deal with my problems. Waiting for your reply and if this depression continues you might want to ask your doctor what to do.

Keep your chin up,

Karie

 
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Old 03-02-2006, 04:43 PM   #2
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golfer7 HB User
Unhappy Re: Neurontin users

I was just currious if everyone in this thread was still taking neurontin and how much and with what other meds.

I have had sensory peripheral neuropathy, burnin/pain/numbness in Feet/Legs/Hands for about 3 years. Started in Feet for about 2 1/2 years and last 6 months has progress to my legs and hands.

I read where someone was asking about gabapentin. I found something on the internet tht I thought said that gabapentin was the chemical name for neurontin. I kinda took that as meaning that it was the exact same thing. I will try to find it and post the link.

I take 900mg 4 times/day of Gabapentin (neurontin) (3600mg/day). Each time my doc upped the neurontin, I became a zombie. I started having a pain that started behind my left new and went into my groin so she put me on Cymbalta also. Started at 30mg at bedtime. I noticed that it seemed to help me think clearer. I am a independet software developer so I have to think clearly to do my job, but then, don't most people. The last two times she has upped my neurontin, after about 2 weeks of zombie, she would up my cymbalbta. Now taking 120mg at bedtime. It seems to offset the zombie zone.

I still have pain and buring in my feet, especially when I walk a lot, but not necessarily, and the numbness has never gone away.

Just curious what eveyone is taking now.

Tony

FYI - I'm going to start a thread about a treament that my neurologists wants to do on me called IVIG (Intravenous Immunoglobulin Infusion Therapy). Not sure if it would work for anyone, but once you see the post it's worth a read.

Good Luck to All

Last edited by tgodar; 03-02-2006 at 05:54 PM.

 
Old 03-05-2006, 12:00 PM   #3
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CittyCat HB User
Re: Neurontin users

Hi Kari & Toni (do you golf, I do),

I have never heard of IVIG. I am on Gabapentin, Cymbalta, Tanzadine, Zonigrane & pamalor. I've made a decision to halve my tanzadine during the day cause it zombies me out, not the gabapentin. I've been on that so long it doesn't affect me at all I don't think.

The several Dr.'s I've seen think I have a predisposition to neuropathy because my first insident 6 years ago occured from sitting on an auto trip. It's in my left thigh. Then I got the full case in 2004, feet, head, etc. which was brought on by stress in the work place. My hands throb at times and my elbows burn and ache most of the work week. I'm hoping my body can hang in there till 12/07!!!

My new assignment in the District seems to be the blessing in desguise, I landed on my feet. I've got my own office, I know some of the women there already and I only have one function for which there are several ladies who can do back up for me if I'm out, mellow from that stand point. The women I left behind at the school who reassigned me is getting her dues, she is working her a--s off.

Karie I'm glad to see you on the board again, spring is on it's way. Hope all is well with your family.

Sincere love,
Cathy

 
Old 03-07-2006, 02:57 PM   #4
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countryman1965 HB User
Re: Neurontin users

Hello everyone,

i am new to this but i have been reading all i can find on here about neurontin. my problem started a few years ago with problems walking, after many test and treatments i was treated for a tumor on my spine that had pinched the siatic nerve going down my right leg, with chemo and radiation, the tumor that had been pinching the nerve for so long has shrunk.the doctors say i will never get any better but it shouldn't get any worse. i had been taking morphine and vicadin for the pain but now my pain managment doc has taken me off the vicadin and started me on neurontin about two weeks ago 100mg 3x a day. my problem is it doesnt seam to help with pain and seams like all i want to do is lay in bed and i have been more depressed than before, i do have foot drop and wear an afo brace for that. and i have a couple months left of the cancer treatment. now i will be going through a bone marrow transplant. my questions are. 1 will depression go away in time after being on neurontin, 2 will i every want to get out of bed again and 3 do i need to be on neurontin longer than a couple weeks to see any relief in pain.

thanks for all of your information , i hope you all are doing well

Ron

 
Old 03-08-2006, 07:35 PM   #5
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golfer7 HB User
Re: Neurontin users

Ron,

In my experience, it may take some time and may also take higher dosages, but everyone is different.

I started on 300mg gabapentin(neurontin)/3 times a day (900 mg). I know what you are talking about with depression, feeling like you just want to lay around and stare at the ceiling.

My Dr. put me also on 30mg Cymbalta. I was up and down for months. I finally now feel like I can think straight and am in a good mood considering. Even though they have a lot of the same side affets, it seems like the Cymbalta offets some of the bad side afects of the gabapentin, especially the depression and tiredness. Cymbalta is used to treat depression, but aslo for nerve pain like the gabapentin. I was on paxil for depression in 1999-2001 (Y2K Stress). I wonder now if that is what caused my neuropathy.

It took me 4 months to get where I am currently at, only problem, I am currently on 900mg/4 times day (3600mg) gabapentin and 120mg Cymbalta. I still have bad pain/burning when I walk a lot, and sometime when I don't do anything, but I use to have BAD pain/burning all the time 24/7. I still have pain/burning 24/7, but it has gone from an 9 on 1-10 scale to about a 3-4, but this is when I don't do a lot of walking. So much for golf.

I need to get back to working out AND playing golf. Not sure how much I need to up my meds for that.

good luck to you

golfer7

 
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