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Old 07-20-2006, 05:21 PM   #1
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Inpayne2 HB User
Is there such a thing as mild neuropathy?

I guess what I mean is can you be diagnosed with a mild neuropathy and still have some severe pain from it?

I was Dx'd with a sensorimotor neuropathy a few years back. It may or may not be caused by diabetes type 2 (glucose levels normal) they are now saying it showed up on the EMG /NCV test as being mild, even though the neurologist at the time made no mention of this. Especially when he was throwing anti-seizure meds at me.

The problem is I am getting some severe pain from it such as burining stabbing pains and of course numbness as well as allodynia on the top of both feet and the by the ankles. While it is pretty much constant if I go for a walk it becomes nightmarish. My current Internal med doctor and my old neurologist are saying that it is only a mild form of PN and should not hurt.
Is this true? or can neuropathy be painful in any form? I know it to be painful and feel the doctors don't know what they are talking about.

I also have cervical and lumbar degenerative disc disease and some hernaited discs in my neck and back that doctors are saying are normal and should not be the cause of my pain. Can someone fill me in? as I have clearly missed something here.

Thank you

Inpayne2

Last edited by Inpayne2; 07-20-2006 at 08:57 PM.

 
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Old 07-20-2006, 06:36 PM   #2
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Re: Is there such a thing a mild neuropathy?

inpayne2, what is allodynia? I tried looking it up and could'nt find it .boo

 
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Old 07-20-2006, 08:51 PM   #3
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Re: Is there such a thing a mild neuropathy?

Allodynia: Pain from stimuli which are not normally painful. The pain may occur other than in the area stimulated. Allodynia means other pain.

To put it another way I have spots on the top of my feet that if they are touched even lightly will send me through the roof. Wearing socks and shoes also causes severe pain.

if you do a web search you should find more information about it. It does seem to be common with PN, RSD and even Fibro or so I have been told


Inpayne2

Last edited by Inpayne2; 07-20-2006 at 08:52 PM.

 
Old 07-21-2006, 06:40 AM   #4
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Re: Is there such a thing a mild neuropathy?

any form of actual neuropathic pain IS painful.it doesn't really matter if the cause is considered "mild",it still hurts,sometimes very very severely.I would think these docs would really no much better than this.

from what you explained in your post,it doesn't sound really "mild" to me at all,infact it appears to actually cover a good portion of both feet??is that it?

the only thing that an emg would actually show is the level of actual nerve damage and nothing more,there is absolutely no way to tell just how "bad' someones neuropathic type pain will actually be by just looking at specific nerve damage,no way in hell.

you most definitely need to seek out a good pain management doc who actually knows just how really severe this can be and how totally devistating this crappy type of pain can be on your overall quality of life.your docs appear to be totally clueless here as to the full nature of the impact of neuropathic pain.

all it takes to start the process is nerve damage,thats it and it just keeps rolling along from there.the actual nerve damage is just the starting point and in no way the actual indicator of how really bad your pain can be.that is a very highly individual type of thing and takes in many varying factors as to how this will play out in any given patient who is unfortunate to have aquired it.

honestly,getting to a pain doc who really understands this type of pain and most importantly,the best possible ways to treat it is really the best advie I can give you at this point.my pain doc really saved my sorry butt from a lifetime of ongoing agony.no other docs I had seen,even my highly qualified experienced neurosurgeon really understood just what hell I was really living in.

neuropathic pain IS neuropathic pain.it will just vary in intensity and areas of coverage,but geez,it still hurts like hell.I would think your docs would realistically know this.i am thinking they just don;t want to have be the ones to try and treat it since it IS the most difficult type of pain to try and treat.they don't want that responsibility so they play their little games of it doesnt hurt,its just anxiety you know the type?they are pawning you off so they just don;t have to get involved in the process.docs do this all the time.its not "you" they don't want to actually treat,its your pain that they have a hard time with as it is a huge commitment for them to have to take on and may require(gasp!!) the use of narcotics,another thing most specialists don't even want to get into.

like i said before,good pain management is where you need to go to now.i am sure either one of your docs that dont believe this is actually painful,would be more than happy to refer you off to a pain managemnet doc.the thing is,you are sitting there actually reporting very severe pain to these idiots and they are basically telling you that you are lying to them?? i mean geez,any patient that reports THAT type of severe pain needs to have it fully evaluated by the doc who you are reporting it too,not to tell you,'well your case is mild so it shouldn't hurt"well,hello?"it is in my body and let me tell ya it hurts like hell" ya know?

I would seriously look for other docs to actually replace these ones you are seeing who think this is all only in your head basically.I don't think i could continue to actually see any doc who would tell me something like what you were actually told,while fully knowing the truth.you don't deserve to be disrespected like that by any doc at any time.

i wish you lots of luck in getting this under some good control.just get to a good pain doc and be patient as it may take alot of trial and error with various meds and other modalities that the pain clinic can also offer you to actually come up with a good pain attack plan.please let me know how things go,K? take care,Marcia
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Old 08-11-2006, 09:31 AM   #5
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Re: Is there such a thing as mild neuropathy?

I was also dianosed with mild neuropathy by a foot doctor I had the emg done and it came back as MIILD NEUROPATHY yeah like it is mild! It hurts to work everything my kids are little and they don't understand what this means besides mommy sits all the time now but it isn't like I want to sit it s painful to JUST walk. The doctor has put me on Lyrica it works to a point sometimes. They are going to do blood work to look for Diabetes and thiroid problems. Knowing my luck it will be diabetes man there goes the sugar, all knidding aside this iis NOT in your head. I would try going to a foot Doctor if you can good luck and keep your head up. There is a Doctor out there who will believe you KEEP LOOKING!

Your fellow MILD Neuropathy friend,
Andertonita



Quote:
Originally Posted by Inpayne2
I guess what I mean is can you be diagnosed with a mild neuropathy and still have some severe pain from it?

I was Dx'd with a sensorimotor neuropathy a few years back. It may or may not be caused by diabetes type 2 (glucose levels normal) they are now saying it showed up on the EMG /NCV test as being mild, even though the neurologist at the time made no mention of this. Especially when he was throwing anti-seizure meds at me.

The problem is I am getting some severe pain from it such as burining stabbing pains and of course numbness as well as allodynia on the top of both feet and the by the ankles. While it is pretty much constant if I go for a walk it becomes nightmarish. My current Internal med doctor and my old neurologist are saying that it is only a mild form of PN and should not hurt.
Is this true? or can neuropathy be painful in any form? I know it to be painful and feel the doctors don't know what they are talking about.

I also have cervical and lumbar degenerative disc disease and some hernaited discs in my neck and back that doctors are saying are normal and should not be the cause of my pain. Can someone fill me in? as I have clearly missed something here.

Thank you

Inpayne2

 
Old 08-11-2006, 10:09 AM   #6
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dee13 HB User
Re: Is there such a thing a mild neuropathy?

I was recently diagnosed with diabetes in June. But my feet have been feeling numb and burning since December '05. My MD sent me to a pain management doctor.

The pain dr. basically took my history and touched my feet and legs with various objects to see if I could feel hot, cold, sharp, etc. He also used a tuning fork on my ankle (which by the way left the bone in my ankle very sore for a week). He prescribed Lyrica,75mg., once a day for a week then twice a day for the second week.

After experiencing that drunken feeling in the middle of the night for a week, it eventually went away. However I haven't noticed an improvement in my feet. Went back for a 2 week follow up, told them of the swelling in my left foot (I have a history of swelling in this foot but not this bad. It has never been properly diagnosed.) and was told to give it a while longer. Come back in 2 weeks. Now its been a total of 25 days and no improvement in the numbness, burning and tingling of my feet. The swelling is now in both feet, toes and the area above my right ankle is very sore, almost like a bad sunburn. I feel like I can't bend my ankles, like a peg leg.

Has anyone else ever experienced this from taking Lyrica? What about Cymbalta? Has anyone had luck with this med? I'm trying to figure out if it could be from the other meds I'm taking; Avapro (300mg), a water pill and Glimepiride (2mg).

Any info would be most appreciated.

 
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