Re: Is there such a thing a mild neuropathy?
any form of actual neuropathic pain IS painful.it doesn't really matter if the cause is considered "mild",it still hurts,sometimes very very severely.I would think these docs would really no much better than this.
from what you explained in your post,it doesn't sound really "mild" to me at all,infact it appears to actually cover a good portion of both feet??is that it?
the only thing that an emg would actually show is the level of actual nerve damage and nothing more,there is absolutely no way to tell just how "bad' someones neuropathic type pain will actually be by just looking at specific nerve damage,no way in hell.
you most definitely need to seek out a good pain management doc who actually knows just how really severe this can be and how totally devistating this crappy type of pain can be on your overall quality of life.your docs appear to be totally clueless here as to the full nature of the impact of neuropathic pain.
all it takes to start the process is nerve damage,thats it and it just keeps rolling along from there.the actual nerve damage is just the starting point and in no way the actual indicator of how really bad your pain can be.that is a very highly individual type of thing and takes in many varying factors as to how this will play out in any given patient who is unfortunate to have aquired it.
honestly,getting to a pain doc who really understands this type of pain and most importantly,the best possible ways to treat it is really the best advie I can give you at this point.my pain doc really saved my sorry butt from a lifetime of ongoing agony.no other docs I had seen,even my highly qualified experienced neurosurgeon really understood just what hell I was really living in.
neuropathic pain IS neuropathic pain.it will just vary in intensity and areas of coverage,but geez,it still hurts like hell.I would think your docs would realistically know this.i am thinking they just don;t want to have be the ones to try and treat it since it IS the most difficult type of pain to try and treat.they don't want that responsibility so they play their little games of it doesnt hurt,its just anxiety you know the type?they are pawning you off so they just don;t have to get involved in the process.docs do this all the time.its not "you" they don't want to actually treat,its your pain that they have a hard time with as it is a huge commitment for them to have to take on and may require(gasp!!) the use of narcotics,another thing most specialists don't even want to get into.
like i said before,good pain management is where you need to go to now.i am sure either one of your docs that dont believe this is actually painful,would be more than happy to refer you off to a pain managemnet doc.the thing is,you are sitting there actually reporting very severe pain to these idiots and they are basically telling you that you are lying to them?? i mean geez,any patient that reports THAT type of severe pain needs to have it fully evaluated by the doc who you are reporting it too,not to tell you,'well your case is mild so it shouldn't hurt"well,hello?"it is in my body and let me tell ya it hurts like hell" ya know?
I would seriously look for other docs to actually replace these ones you are seeing who think this is all only in your head basically.I don't think i could continue to actually see any doc who would tell me something like what you were actually told,while fully knowing the truth.you don't deserve to be disrespected like that by any doc at any time.
i wish you lots of luck in getting this under some good control.just get to a good pain doc and be patient as it may take alot of trial and error with various meds and other modalities that the pain clinic can also offer you to actually come up with a good pain attack plan.please let me know how things go,K? take care,Marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.