SarahNina

Hi Lena-Marie,

I also had normal EMG/NCS (small fiber damage doesn't show up). My diagnosis was made based on my symptoms which are consistent with small fiber damage. For starters I have a deap seated ache on the soles of me feet when pressure is applied and lots of burning which is classic of small fiber PN but I know a lot of people with large fiber damage have buring as well. I'm confused about that part. I also frequently feel a pressure in my feet as if there were turnicates around my ankles causing my feet to fill up with blood. I only experience pins and needles in heat (water or weather). As we all know, symptoms can vary so much from individual to individual. My pain is also perfectly symmetrical. I've been tested for just about every known cause and I'm negative on all tests. I also had a normal thermal and vibration sensory test which tests the extent of small fiber damage (although not really reliably).

My neurologist wants me to consider going to Johns Hopkins to get a small fiber nerve biopsy (only a few places in the country do it) because I'm so young (25). She's perfectly confident that I have the correct diagnosis but thinks that maybe it would provide useful information. I forgot to ask her if the biopsy would show any regrowth if it's there.

I was misdiagnosed with plantar fascitiis for 3 years. I only figured out what was wrong with me after an MRI confirmed that I did not have PF and the orthopedist referred me to a neurologist. I saw 3 GPs, 2 podiatrists, 3 orthopedists and 3 neurologists before I found someone who really knew what I had.

I hope this helps.