I have been reading the posts here for some time and finally got up enough nerve to post.
I apologize in advance that this is so lengthy but I wanted to give you as much info as I could to see what your thoughts are.
Nausea daily, intermittent (relieved temporarily with hydrocodone), worse upon awakening in a.m. Usually no nausea at sleep. Nausea began suddenly 11/2005 with sudden increase in balance issues, ENT doc diagnosed with BPPV and had Epley. Severe decrease in appetite for several months with loss of about 40 pounds and then ENT said I do not have BPPV due to continued nausea. Nausea has never completely resolved but has continued to slowly improve since latest event on 01/08/07.
Constant disequilibrium (running into things causing lacerations, bruising, staggering, dropping things). Rotational chair testing at U of M showed I had a balance problem and was told it was not caused by inner ear.
SOB since about October of 2006 but appears to have improved some since last event on 01/08/07.
Left-side loss of sensation, head to toe, (as if a line has been drawn down middle of body), worse in face.
Constant left ear fullness and minor hearing loss. Minor hearing loss verified by testing.
Memory/thought process impaired, personality change.
Exhaustion, constant, varies in intensity.
Chronic daily back pain for years.
Symptoms affects all my ADLs. My life as I knew it has been taken away.
New onset in last six months of left side nerve pain in limbs, particularly the leg, hands & feet, on/off daily and a sense of uncoordination and weakness on left periodically daily. Since about 01/12/07, same symptoms have begun on right side and appear to be slowly increasing but not as significant.
Left-side intermittent tingling of face and extremities.
Lightheadedness - new in onset since latest “event” on 01/08/2007 but appears to be improving since then.
Periodic tinnitus/ringing, left ear, many times a week and occasional periodic inner ear pain on left as well as occasional stabbing pain on left side of head.
Occasional jerking/bouncing eyes, difficulty focusing and occasional nerve jumping/jerking of left eyebrow.
Choking on saliva or food occasionally.
Negative endoscopy and colonoscopy in 01/2006 (after onset of BPPV-like symptoms in 11/2005).
Extensive lab work normal including ANA, thyroid, diabetes.
Several EMGs/nerve conduction studies and a BAER, all negative (as far as I am aware).
Carotid artery MRA negative in 01/2007.
Cyst found on spine.
Multiple cysts on right kidney and scarring, saw urologist, told to just follow.
Past Medical History
Chronic ear infections as child, told I have scarring as an adult and periodically told I have excess fluid in ear.
A urethral obstruction as an infant, unable to urinate, had seizure due to high temp, necessitated treatment.
Chronic UTIs as a child and young adult (bacteria became resistant after so many antibiotics).
Significant environmental allergies.
Morning facial edema, feet and leg edema.
Osteoporosis/osteopenia, osteoarthritis, chronic back pain, myofascial pain syndrome, possible fibromyalgia.
Very sensitive to many medications causing extreme sedation and/or nausea.
Capillary telangiectasia on pons of brain stem (or cavernous angioma), first diagnosed in 2001.
Past Surgical History
Diskectomy & Fusion C6-7 1999
Breast Biopsy, benign, 1998
Sinus Surgery 1998
Lysis of Adhesions 1983
TAH/BSO due to extensive endometriosis and large cysts 1973
Singulair 10 mg at h.s.
Rhinocort Aqua Nasal Spray daily
Vivelle Dot Patch 0.375 mg
Stopped Clonazepam 1 mg one at h.s. on 02/02/07
Tried Effexor in mid January, stopped it and started amitriptyline 10 mg one at h.s. on 02/09/07, stopped 03/15/07, and then started on Nortriptyline HCL 50 mg one at h.s. All have increased my appetite. Effexor made me feel very drugged.
Hydrocodone 7.5/750, 3-4 q.d., p.r.n.
Do you think my symptoms s/l neuropathy and chronic fatigue? I was diagnosed by a specialist at a university hospital as having "migraines". I have only had one migraine in my life! This specialist could not explain my nausea or fatigue and body pains. I later came across information on neuropathy and I thought this fit all of my symptoms! I couldn't believe it! My family doc is treating me per the specialist's recommendations for meds and it is just trial & error finding one that works. I hate that my appetite has increased as I am at a healthy weight I want to stay at but it is slowly increasing. I am wondering if I shouldn't ask about Neurontin or Lyrica. Do either of these tend to increase weight? I need something for the nerve pain that will also help me sleep which the low dose antidepressants I have tried did help that issue as well. I am thinking about seeing my rheumatologist to see what his opinion is (he has diagnosed me with myofascial pain syndrome in the past, chronic pain, and possible fibromyalgia).
Thank you for taking the time to read this.