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Old 05-11-2007, 06:54 PM   #1
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What kind of doctor for per. neuropathy??

What kind of doctor would be most effective to consult or treat neuropathy?
Some doctors do not very much about this painful burning that I experience or how to treat it. Has Lyrica been helpful to any?
Thank you:

 
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Old 05-11-2007, 08:31 PM   #2
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Re: What kind of doctor for per. neuropathy??

my absolute best advice to you would be to seek out a really good pain management clinic.they really are the best by far at treating just about every type of pain.espescially neuropathic type pain syndromes.they also actually believe that it really exists and that it isn't just 'all in your head" or just must be "anxiety" or something.they can just offer you so many differenty modalities to try and control this type of hidious crap that other docs just cannot possibly offer you.i didn't find any real actual control or real relief until i hit the doors of my current pain clinic.they just understood me,much better than the host of varying specialists i had been seeing.

lyrica is a good med for your type of pain.i personally had alot of side effects with it but it really helped my pain alot,both the neuropathic central pain syndrome and the RSD i had,the side effects were just too much for me to keep dealing with so i had to stop.but this works really well in other people and they have no complaints.the one big thing you need to remember is that all people will each have their very own highly individual response to any given med.its all in how our body systems function and the metabolism we have.

but i would most definetly ask your primary for a referral to one of the many pain management clinics out there.they are just the place you really should be right now for the best possible treatment options.i do wish you lots of luck with your treatment and hope they can really help to get it under at least some good level of control.please let me know how things are going,K? marcia
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Old 05-11-2007, 08:43 PM   #3
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Re: What kind of doctor for per. neuropathy??

i agree
its important you find a doctor thats able to identify and target pain management and pain conditions, their causes and ways to treat them.
however
there is NO replacement for a doctor you feel comfortable with. My GP is a sports medicine guy, and being that i have many joint pain and mobility issues that are exacerbated by neuropathy, its a great balance. he just perscribed me lyrica to try (he and i talked about risk of side effects cuz my body goes nuts with drugs) so i just took an incredibly small dose just now.
i'll let you know how i do.
bottom line-make sure u and ur doc get along and really know each other. i have plenty of friends with chronic illness who HATE their specialists and just go for the MRI/annual etc update. but they have a chiropractor, or gp, or other doctor who they love who is their REAL counsel or support in their condition. its all about your comfort level. all the knowledge in the world or specialized experience wont make you feel better shaking their hand.

 
Old 05-12-2007, 02:58 PM   #4
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Re: What kind of doctor for per. neuropathy??

I have been searching for the right doc for 2-1/2 years for small fiber neuropathy. Been diag. with fibromyalgia, cervical myelopathy, spinal stenosis and finally (via nerve biopsy ) sm. fiber neuropathy. Have gone to 3 neurologists so you can see it is hard to diagnose.
Have tried Lyrica, Neurontin, etc., etc.. Am now going to a pain doc. and since I needed a referral I would suggest going to a Neurologist 1st.
Good luck.

 
Old 05-12-2007, 03:56 PM   #5
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Re: What kind of doctor for per. neuropathy??

i tried cymbalta first. that was horrific. turned me into a manic depressive. ugh.
just tried a first tiny tiny dose of lyrica last nite.
made me a little out of it, slow thinking...and a slight headache. but no neuropathic relief. maybe if i continue? im also seeing a chiropractor, so maybe ill hang out on external treatment for a while before i try chemical relief again..

 
Old 05-13-2007, 05:58 PM   #6
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Unhappy Re: What kind of doctor for per. neuropathy??

Definitely try to get to a Pain Management Specialist. After 18 years of chronic pain - I was diagnosed with Pudendal Neuropathy, the diagnosis in itself a blessing. I tried Lyrica and it actually increased my pain level. That and the vision problems caused me to stop at 100mg.
I have just started on Neurontin and am finding the same side effects that I encountered with Lyrica, again at the starting dose of 100mg.
I am interested in hearing if anyone noticed an increase in pain level on either of these medications.

 
Old 05-19-2007, 09:39 AM   #7
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Re: What kind of doctor for per. neuropathy??

Quote:
Originally Posted by Laurette View Post
I am interested in hearing if anyone noticed an increase in pain level on either of these medications.
I had the same experience. Still no luck with any medications.

 
Old 05-20-2007, 09:03 AM   #8
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Re: What kind of doctor for per. neuropathy??

i had a huge increase in all my more neuropathic type pain with cymbalta.it also increased an already present type of RLS component i have in my RSD knee.it was hidious.quick,very quick taper was done and that was even worse than while "on' the cymbalta.nasty for me anyways.it is always possibleto have an increase with neuropathic type pain when tryig just about any of the types of meds we have to take to try and control this crap we live with.you have to remember that the nerves themselves are screwed up in some way(or we would not actually have that pain at all) and very unpredictable in how they will actually respond to any med that controls any level of nerve synapses and flow.it just kind of comes with the territory from what i have been reading with many other people with nerve damage of some sort.damaged nerves are just unpredictable and kind of have their own little agenda.all you can do really is the trial and error stuff with any med.everyone is very highly individual as to their body make up and actual damage and will respond in their own personal way to any type of med we take,not just meds for neuropathic pain,you know what i mean?good luck,marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 05-21-2007, 09:35 PM   #9
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Re: What kind of doctor for per. neuropathy??

Hi,

I have peripheral neuropathy and fibromyalgia, along with restless leg syndrome, arthritis (can't believe it!), stress fractures, and a Morton's neuroma. The pain can be incredible at times.

For quite a while I was able to control most of the pain with diet, supplements, and exercise. I still think this helps as the pain is unbearable when I get lazy and don't follow a strict no sugar, no white flour diet.

I am on Lyrica 300mg 2x/day, Requip 1mg, B-12 injections daily, Ultram SR, and Combunox for breakthrough pain. This regimen helps also. The only times I can't sleep well is when I have walked more than I should.

I was on Cymbalta but it did increase the pain and made me feel depressed! Even with all this weird stuff going on, I use biofeedback to keep my spirits up and I certainly don't want to take anything to make things worse.

I am now entering a study to see how peripheral neuropathy is connected to restless leg syndrome. They already know that both can be caused by a sleep disorder. Interesting to see what will happen after I complete the study.

I went to my GP, then to two neurologists, an ortho, a podiatrist, and then a pain doc. Everyone has different experiences but the ones who really help me are my GP, the pod, and the new neuro I am seeing and going through the study with. This guy has written so many articles on these issues and I'm eager to see what he has to say at the end of the study.

I would definitely start with the neuro and get all the tests done.

Susan

 
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