It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-03-2007, 04:05 PM   #1
Newbie
(female)
 
Join Date: Jul 2007
Location: FLORIDA
Posts: 7
YELLOWDRESS HB User
Burning and Tingling from Head to Toe

Can anyone give me any suggestions or information. I am in my mid 50's and feel like I am plugged into an electric socket all the time. I have burning and tingling from head to toe. Also have muscle twitching. I have been recently diagnosed with mild diabetes and can't imagine I have neuropathy so soon or so extensive from this. Has anyone else had these symptoms and can give me some info.? Thanks

 
Old 07-18-2007, 02:55 AM   #2
Senior Member
(female)
 
Join Date: Nov 2006
Posts: 201
Teacupforme HB UserTeacupforme HB User
Re: Burning and Tingling from Head to Toe

Go to "neurotalk" forum. Lot's of experts there on neuropathy.

 
Sponsors Lightbulb
   
Old 08-06-2007, 11:00 AM   #3
Newbie
(female)
 
Join Date: Sep 2005
Posts: 9
zestytx HB User
Re: Burning and Tingling from Head to Toe

I was having the same horrible symptoms and thought I was going to have to live with it the rest of my life. So depressing. I was also suffering from mildly elevated blood sugar and was told the tingling was a result of that. My pancreas was terribly irritated, too. I finally decided to stop all diet drinks with aspartame in them, and no more sugar free jello, either. My endocrinologist already had me taking fish oil capsules to try to bring down my high triglycerides. Anyway, within two weeks, that crazy tingling disappeared (after nearly 20 years) and the feeling is coming back into my hands and feet. My pancreas feels SO much better, too. The diet drinks were making me SICK. And messing with my blood sugar. Give it a try if you drink them. It might work!

 
Old 08-06-2007, 01:41 PM   #4
Newbie
(male)
 
Join Date: Jul 2007
Location: Minneapolis, MN USA
Posts: 3
mplsrob HB User
Re: Burning and Tingling from Head to Toe

Quote:
Originally Posted by YELLOWDRESS View Post
Can anyone give me any suggestions or information. I am in my mid 50's and feel like I am plugged into an electric socket all the time. I have burning and tingling from head to toe. Also have muscle twitching. I have been recently diagnosed with mild diabetes and can't imagine I have neuropathy so soon or so extensive from this. Has anyone else had these symptoms and can give me some info.? Thanks
I have been dealing with neuropathy in both legs & feet for several years. I sometimes use Lydocaine oitment, just to try to 'quiet' my feet.

 
Old 09-10-2007, 06:38 PM   #5
Newbie
(female)
 
Join Date: Sep 2007
Location: canton, michigan
Posts: 3
shelley224 HB User
Re: Burning and Tingling from Head to Toe

I also have the same thing going on. Wouldn't wish this on my worst enemy. My doctors are treating the symptoms.I hate this just wish I could feel normal again. Do you feel like electric shocks also? Cause I do. My muscle also spasm especially my back. I'm on tergretol baclofen and pamelor all for the nerve pain. I also get zapped in the eye. I feel it also my face and my tongue and teeth. Ouch not fuuny at all.

 
Old 09-18-2007, 07:21 PM   #6
Junior Member
(female)
 
Join Date: Sep 2007
Location: usa
Posts: 49
hypnotiic HB User
Re: Burning and Tingling from Head to Toe

hi yellow dress. i just wanted to know how you are feeling from the neuropathy?? i developed it also. VERY SUDDENLY! it was after a spinal anesthesia for a c-section. i have the same symptoms as you accept i cant feel when i have to urinate and i lost my appetite.. its accecting my autonomic system too. Hopefully it doesnt get any worse.. im only 17!! write back..

 
Old 04-28-2008, 09:41 AM   #7
Newbie
(female)
 
Join Date: Apr 2008
Location: Illinois
Posts: 2
kiniakoni HB User
Re: Burning and Tingling from Head to Toe

I'm having similar symptoms and am wondering if your cause was ever determined? I get the 'brain shocking' thing, numbness/tingling in face, lips, tongue, burning down both arms. Have been on Inderal LA for about 2 weeks for my migraines & Pamelor for 1 week - today started Neurontin, but not with good affects (lips & finger tips are blue!?). Anyway, just wondering if they ever determined your cause or how you're doing now?

 
Old 04-28-2008, 02:29 PM   #8
Veteran
(male)
 
Join Date: Oct 2006
Location: OZ
Posts: 382
Aussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB User
Re: Burning and Tingling from Head to Toe

Quote:
Originally Posted by YELLOWDRESS View Post
Can anyone give me any suggestions or information. I am in my mid 50's and feel like I am plugged into an electric socket all the time. I have burning and tingling from head to toe. Also have muscle twitching. I have been recently diagnosed with mild diabetes and can't imagine I have neuropathy so soon or so extensive from this. Has anyone else had these symptoms and can give me some info.? Thanks
Hi, even some prediabetic people can get the same PN symptoms as full blown diabetic's can, i was only at a prediabetic stage and got nerve damage through it, a fasting blood glucose showed nothing for me, they said i was actually normal, but a neuro that specializes in PN ordered a 3 hour glucose tolerance test and found i was prediabetic, i was also low on B12 as well, the combination was destroying my nerves.

The peripheral nerve's are all the nerves outside the spine & brain and there are many reasons why they can get damaged, diabetes is very common but there is over 200 known causes and even with the most extensive workup's some still remain idiopathic in nature, your best chance of finding the cause/s is finding a neuro that is a neuropathy expert, as they will give you all tests needed, has anyone at least done your b12 levels yet ?

I would certainly work on that mild diabetes state your in, could be the reason or could be even a contributing factor to your problems.

I wish you my best, nerve pain is the pits.

 
Old 04-28-2008, 11:16 PM   #9
Junior Member
(female)
 
Join Date: Apr 2007
Location: dallas, texas, usa
Posts: 33
CAROLYN000 HB User
Re: Burning and Tingling from Head to Toe

Quote:
Originally Posted by YELLOWDRESS View Post
Can anyone give me any suggestions or information. I am in my mid 50's and feel like I am plugged into an electric socket all the time. I have burning and tingling from head to toe. Also have muscle twitching. I have been recently diagnosed with mild diabetes and can't imagine I have neuropathy so soon or so extensive from this. Has anyone else had these symptoms and can give me some info.? Thanks

 
Old 04-29-2008, 03:54 AM   #10
Junior Member
(female)
 
Join Date: Apr 2007
Location: dallas, texas, usa
Posts: 33
CAROLYN000 HB User
Re: Burning and Tingling from Head to Toe

I have just had an appointment tody with a Nuero specialist at UTSW here in
Dallas. She took down all my medical history. She told me that those with
even pre-biabetes can develop PN. On her computer, she found that the
arterial surgeon also noted I had poor circulation to my lower extermities and
coulld also cause PN. I am on a clinical trial to supply oxygen at home to see if I can avoid becoming a full-blowned diabetic. I will take a nerve
conductive test, she said this would be more objective than all the tests
she ran in her office today. She said balance is a real problem and little
can be done to improve. So guess I will have to live with my walker. She
spent an hour with me and I am so appreciative.

 
Old 04-29-2008, 10:14 AM   #11
Member
(female)
 
Join Date: Feb 2008
Location: South River, NJ USA
Posts: 74
cream9518 HB User
Thumbs up Re: Burning and Tingling from Head to Toe

Hi yellow dress, have PN for almost a year now. I am not diabetic and had every test imaginable. The last test a skin biopsy confirmed that I had some nerve ending damage and was doomed with PN! Started with burning feet and now it has traveled up my ankles and legs. Tried all kinds of drugs that did not help and ended up with Lyrica. Large doses did not help and now am on 200mgs of Lyrica a day. Nothing has changed and I guess I am doomed with this pain. I also take 5mgs of endocet (percocet) when cannot tolerate the burning feeling. Heres praying that your test will show up something and God speed.
Cream

 
Old 05-12-2008, 08:58 PM   #12
Newbie
(female)
 
Join Date: May 2008
Location: Crewe, VA, USA
Posts: 3
nrds8485 HB User
Re: Burning and Tingling from Head to Toe

I am wondering if any of you have had a heavy metal test. I went to military doctors for 5 years complaining of numbness and tingling in my feet and difficullty getting up and walking. I've had nerve conduction tests four times and all sorts of MRI's. I also have developed Tachycardia and irregular heart beat. After absolutely no help I went to a local Neurologist who did a heavy metal test and told me I had arsenic poisioning and that I had to find out where I was getting it. Due to the fact that I have a hole in my septum and that the arsenic could not be detected after moving from the office where I worked, it was determined I got it by breathing the dust there. I was the only one in that office. It was an old historical building and I worked there for 12 years. The last neurologist I saw at Walter Reed Army Hospital had also told me I had a high level of arsenic, but he didn't tell me to worry about it nor to come back or anything. I took 400 mg. Neurontin three times per day. I gained 20 pounds in two months. One side effect from that medication is weight gain. I lost 10 pounds right away when I stopped the medicine. I was told I have arthritis in my feet, ankles and legs and that is one reason I have so much stiffness and difficulty with getting up and walking. I changed to a local Neurologist and was prescribed Lyrica instead of the Neurontin and Darvocet instead of the Naproxen the army doctor had prescribed for the arthritis. I found Vitamin B12 with something that helps it to stay in your body like the shot. It cost $40 for 120 capsules. The arsenic eats the sheaf from the nerves and the B12 helps to replace that. I do feel somewhat better, but have an awful long way to go. I cannot find anyone else who has the problem I do. I'm told most people with neuropathy are diabetic and I am not. I would like to find someone else who breathed arsenic like I did that I can talk to. If anyone has any suggestions about how to ease the tingling and numbness so you can sleep, please let me know!

 
Old 05-13-2008, 06:55 PM   #13
Senior Member
(female)
 
Join Date: Jul 2007
Location: Alabama
Posts: 212
anwise67 HB Useranwise67 HB Useranwise67 HB Useranwise67 HB Useranwise67 HB User
Re: Burning and Tingling from Head to Toe

hello nrds. I developed neuropathy while working as a chemist. In 2004, I tested normal for arsenic and lead but later found out that a urine sample should have been taken, not blood. After working with an occupational/environmental physician, it has been determined that I developed neuorpathy as a result of chronic exposure to organic solvents. I also have muscle twitches, constant numbness, cramps, pain, burning, and some tingling. I am taking 400mg of Lyrica, 75mg of nortriptyline, darvacet(prn), and All-flex(prn). I take my second dose of lyrica about 1 hr before bedtime. This dose makes me drowsy so that i can fall asleep easier. The pain is definitely worse at night. I had read something previously about using vicks vapor rub to trick the temp. sensors and I tried it last weekend. It did seem to cool the burning down. I will definitely do it again.
What is your prognosis? Mine is not very good b/c of the length of the illness. Finally dx with neuropathy after having a biopsy that showed decrease nerve fibers, axonal swellings, and branching.

 
Old 05-16-2008, 10:36 PM   #14
Newbie
(female)
 
Join Date: May 2008
Location: Crewe, VA, USA
Posts: 3
nrds8485 HB User
Re: Burning and Tingling from Head to Toe

Hello Anwise, thank you for your post. Yes, the arsenic test must be urine. I had a test with blood also and the doctor thought it was done with urine and got really excited when it showed a level of 3. The test before was with urine and the level was 36.9. After I was out of the old office for a month and another test was done there was none at all. I know that they use to treat wood with arsenic and they use to also sprinkle it for termites. There was a white granular powder that came down the wall by my desk and I use to dust it off, thinking it was mold. Then I remembered that while my husband was stationed in Hawaii we had mold on one of our walls while we lived on post. It was soft, not granular. So I suspect that what was on the wall at the office may have been arsenic. I've called the EPA and everything else and no one would test the building. It was sold so the company I work for moved my office to another building. I told the person who bought it about what had happened to me before he closed on the purchase of the building and all he said was, "please don't tell anyone. I want to rent it out". I just couldn't believe it. I am concerned about whoever is going to be in that place. I was there for 12 years. I have been on Lyrica for a week now and Darvocet for the pain and tingling. It does help me to sleep and I also take the last pill of the day before bedtime. My husband also worked in laboratories. He mostly worked in chemistry. I have no idea what the prognosis is. The neurologist told me to go back to the military doctor and tell him what they found and when I did the military doctor said they were not going to see me anymore because it is worker's comp. My employer does not have worker's comp because I was the only employee. I had to change doctors to get care. I have a local doctor now and she did refer me back to the neurologist whom I have not seen since he found the problem. I needed another referral from the military doctor and couldn't get it. The neurologist was very upset with my doctor because he said I needed care. From the research I've done the arsenic can cause lung cancer, kidney cancer and cancer in the septum. I just pray that none of that ever happens. I just keep keeping on and I would have quit my job a long time ago because I felt so bad, but I would tell myself that If I did I probably would sit down and never get up. I didn't know it was killing me. I still work and when I am on my feet a lot during the day I can hardly walk later at night. I did that today because I cleaned one of our rental houses. Again thank you for your response.

 
Old 05-17-2008, 06:40 AM   #15
Senior Member
(female)
 
Join Date: Jul 2007
Location: Alabama
Posts: 212
anwise67 HB Useranwise67 HB Useranwise67 HB Useranwise67 HB Useranwise67 HB User
Re: Burning and Tingling from Head to Toe

I like you cannot believe how people can just have a total disregard for you. I think that it is b/c they know exactly what has happened and are trying to hide their neglegience. I am also concerned for the people that still do my old job. At least they know what happened to me and hopefully will take better precautions to help themselves. The building has also undergone major renovations and I know that was done b/c of my case. They thought that I would just role over and accept the small monetary award, but I am a fighting their denial of my claim. My blood arsenic level was about 1 and the lab that did the test wrote on the test results that they needed a urine sample to verify their results. My doctor never called me or mentioned this to me even though he knew my concerns and my occupation. I only know now b/c of my workman's comp case and I was able to read all of my medical records. I think that exposure is so rare(especially chronic exposure) that they never really get any training about it. The first 3 neurologists had no clue and that is why I sought out an occupational/environmental doctor. He was able to look at the whole pix, not just the medical side. It is so important to find dr's you trust and I finally found a neurologist that actually listened to me and I drive 4 hours one way to see him. He did my biopsy last November and I finally new after almost 2 years what was wrong. My problem is that I kept doing the same job for another 9 months while we went through the gammet of possible neurological conditions so what I've got now is for life. I am glad that you are back with a good doctor. Has he ever mentioned IVg therapy or anything else that is on the horizan to help people like us?

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Chronic red burning scrotum greenie911 Men's Health 82 02-24-2009 01:57 PM
Chronic Red Burning Scrotum oreo19 Men's Health 84 12-26-2008 06:39 PM
Chronic Red Burning Scrotum Thread 4 uptownnotown Men's Health 81 09-07-2008 09:31 PM
Burning, Tingling In Head norfin Open to All Other Health Topics 3 04-01-2008 10:49 PM
Burning/Tingling Penis and Scrotum TinglingWilly Sexually Transmitted Diseases 4 10-30-2007 07:05 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 01:54 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!