Nerve pain and I'm new to this forum - Neuropathy Message Board

shelley224 · 09-09-2007, 01:20 PM

Ok let me tell you what's going on with me. It all started back in 03. I got zapped in my right eye. Then the nerve pain started to go down my arms, then I started having tingling in my face, then it got so bad I didn't want to talk or eat. I had in my chest, the back of my neck. I also have the pain in my legs and my feet. At first my neurologist said I had Trigmenal Neuralgia. She left to go to Vanderbelt. My new just told me there treating the symptoms, cause they really can't find out what it is. I have gone through MRI'S they did find non-specific leasions on the brain, but they ruled out MS. Oh ya, did I mention I have nerve pain up and down my spine. Sometimes my muscles feel like there sticking to my nerves. I'm on Tegretol, Pamolar and Baclofen. It has helped me a great deal, but it seems like now I'm getting more and more break through of pain. Oh ya, antoher thing it also affected the top of my head when it did it felt like my head was frost bitten, just different them the burning. I know if I tell my doctor that the pain is coming back a litte she'll just raise my dosage, I don't want that yet. I'm sure glad I found this forum cause I felt so all alone. It's hard for other people to understand. Thanks for hearing me out. Not alone in Michigan. Shelley

GriffSS · 09-09-2007, 11:17 PM

Sorry you're in the dilemma you're in but havs no doctor suggested Gabapentin (Neurontin)?

shelley224 · 09-10-2007, 03:48 PM

I was on neurotin and it didn't help. All it did is put weight on me, and cause real bad tremors.

Jaime_Aus · 09-10-2007, 10:18 PM

Hi Shelley,

Sorry to hear you are really suffering with nerve pain. I don't really have any advice. But I know what it's like to suffer with nerve pain, especially in the neck and head. I have the burning pain on the top of the head, like you mentioned. I was diagnosed with Occipital Neuralgia, after many months of tests and MRIs. I have tried many meds also, but still haven't found the best one. They all seem to have too many side-effects.
I hope you can find the right treatment/meds, or even the right diagnosis, soon, because nerve pain is no fun!

~Jaime~

Quote:

Originally Posted by shelley224

Ok let me tell you what's going on with me. It all started back in 03. I got zapped in my right eye. Then the nerve pain started to go down my arms, then I started having tingling in my face, then it got so bad I didn't want to talk or eat. I had in my chest, the back of my neck. I also have the pain in my legs and my feet. At first my neurologist said I had Trigmenal Neuralgia. She left to go to Vanderbelt. My new just told me there treating the symptoms, cause they really can't find out what it is. I have gone through MRI'S they did find non-specific leasions on the brain, but they ruled out MS. Oh ya, did I mention I have nerve pain up and down my spine. Sometimes my muscles feel like there sticking to my nerves. I'm on Tegretol, Pamolar and Baclofen. It has helped me a great deal, but it seems like now I'm getting more and more break through of pain. Oh ya, antoher thing it also affected the top of my head when it did it felt like my head was frost bitten, just different them the burning. I know if I tell my doctor that the pain is coming back a litte she'll just raise my dosage, I don't want that yet. I'm sure glad I found this forum cause I felt so all alone. It's hard for other people to understand. Thanks for hearing me out. Not alone in Michigan. Shelley

kyetzbac · 09-14-2007, 02:21 PM

Shelly:

Nerve pain is no fun at all!!!! I have been suffering from Occipital Nerve Neuralgia (or so they say). I have been on Neurontin and it does not work at all. It just makes you sleepy. I really don't think there is any cure for nerve pain. Did you have some bad dental treatment? That's what usually causes Trigeminal Nerve Neuralgia. I have just been doing massage pillows and the heating pad and that seems to work the best for the pain. Good luck.