leg pains/numbing what is the cause? - Neuropathy Message Board

arvc · 09-23-2007, 11:56 AM

Will they eventually find my problem or can it go undetected? I've had some swelling in my ankles, needley feelings, numbness, aching, and feeling like something is crawling in my veins. Does this sound familiar to anyone? What tests did you have done? I already have heart disease(arvd) that I have a pacer/defib for because my disease affects my right part of my heart. I have lung problems. I have severe migraines at times and mild to medium migraines daily. I have a larger than normal spleen and a kidney that drips slower than the other. It seems like I'm falling apart. My doctor seems to be aggitated with me that I am back with "another" problem. When I complain it usually takes a while to figure out the problem, but eventually they do. I am no hypochondriac!! I get really upset that they act like I am telling a big one. I recently decided to apply for regular disability, my doctor didn't seem thrilled! I don't know what else to do or say? I think I have pushed myself far enough for 6-7 years now. Any help or advice is much appreciated!!!!!!!!!!

AnnD · 09-23-2007, 12:21 PM

Change doctors and get a fresh one...doctors generally get agitated with their patients because the patient isn't doing what they are asked to do to help themselves. Any number of you problems can cause you legs to swell but it is generally the heart/lung thing you have going on. Are you on a diuretic? Is your weight a factor in all this?

arvc · 09-23-2007, 01:43 PM

My doctor has never really ask me to do anything that I haven't done! They tell me I need to lose weight, I would say I'm atleast 65lbs over weight. I have tried to lose the weight, but being on steroids for my lungs makes it harder and my heart racing makes it difficult to exercise. My heart problems are genetic and they can't explain the lungs or the other. I do not take dieurectics anymore because I get dehydrated and this causes female problems. I'm just tired of the we don't know what to tell you attitude, so go back to work they say. If they felt like me, they wouldn't say that. I was just hoping someone had some suggestions for tests to have performed. I do take tons of beta blockers, 240mg sotalol and 50mg toprol xl a day.

AnnD · 09-23-2007, 01:46 PM

Ask your doctor to refer you to a nutritionist.

woondog · 09-23-2007, 08:41 PM

Hi... perhaps you might have diabetes-related peripheral neuropathy?
This class of sufferers have both loss of sensation in the extremities
and pain which is related, in many case, to the amount of blood sugar
ingested .Usually, we have "lightening strike pains", all over the legs
and feet, which means a "jolt" When I got it, it came about every 20 seconds.
The only time it did not cause pain was when I took double doses of
vicodin and that helped just a little. Now, I am on nortryptiline and

dilaudid. For the first time in about 15 or 20 years, the pain is under
control.
The "jolt" consists of a stabbing pain which lasted, in my case for
3 days ...every 21 seconds.
the woondog