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Old 09-23-2007, 07:39 PM   #1
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GramAww HB User
Cool Hi, I'm New & Have Neuropathy, among other things..

Hi All,
New to the board.
I have neuropathy.. had it for about 6 years now.
We thought it was from chemotherapy or radiation, for my colon cancer..( got that when i was 34!)
But, was also recently (finally!) diagnosed with Fibromyalgia, and diabetis.
My gen doctor isn't keeping up with ALL my issues, so I referred myself to the pain management specialist. ( who , so far, has been a godsend.)
The gen doc said I have HBP ( funny thing is, I have a monitor at home, and it is always around 100/73 , or less.) It was high ONCE in his office and he stuck me on lisinopril. I think it was because they didn't use the "fat girl cuff", and that makes a difference!
Anyhow... The doc had me on 50 mg of lyrica. The pain management doc, upped it to 150 Mg 2x daily. Gradually increased it to 300 MG 2xdaily.
I missed 2 doses last week ( because I have rotten insurance and have to pay for lyrica myself) Yesterday, I began the 300 MG. WOW am I fuzzy!
My neurop is very intense, goes all the way up my legs to my knees. The pain doc even thinks the pain in my back is also from neurop.
I have a paralyzed diaphragm on the right side. ( don't know why) and the pain is right there, at my shoulderblade. I had intercostal injections for that, and it helped alot!
Anyway.. the neuropathy is only slightly better. I do not sleep at night , at all. I sleep maybe 2 hours, at most.
I've tried cymbalta, and neurontin, both of which did NOTHING.
I am tired of being in pain.
The only pain med I have is percoset 325 mg, which is like taking a baby aspirin, as far as I am concerned.
I just want to be out of pain, and not be so fuzzy.
I really could use a pal to talk to about all this stuff. My husband just doesn't understand it all. ( no, you can't throw your leg over me in the middle of the night, as it HURTS!) Or he doesn't understand why I have brain fog. Or why some days I can't move, and other days I am rearranging the liv room furniture.
Is it all right if I hang around here and chat and get advice and all that?
Thanks!

 
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Old 09-24-2007, 12:38 PM   #2
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Re: Hi, I'm New & Have Neuropathy, among other things..

Just keep one thing in mind: If the pain medication your doctor gives you
does not work. Ask for something stronger. If he won't give it to you, get a
new doctor. I know the pain you are suffering from. I had it for 25 years.
In this day and age, there is no need for suffering. Don't be shy.
Read my back blurbs re: pain mediation. the woondog

Last edited by woondog; 01-27-2008 at 12:10 AM.

 
Old 09-24-2007, 08:53 PM   #3
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Re: Hi, I'm New & Have Neuropathy, among other things..

Thanks so much Woo.
I've read some of your back posts.
Trying to figure out who has what, who's been here a while, and who'll have the answers to my questions.
I didn't want to come in and be a whiney baby.. but .. I feel like just a kid with all this, and I needed to whine for a minute, as I am just so sick and tired of being in pain.

 
Old 09-24-2007, 09:58 PM   #4
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mushroomLady HB User
Re: Hi, I'm New & Have Neuropathy, among other things..

Hi GrammAww, I can truly understand what your body is going thru right now. Used to have nerves pain and chronic pain for 15 years! Pain killers do not seem to KILL the pain. PAIN is History to me now. I stop taking doctor's prescriptions. M on alternate medicine. 100% natural. It not only relieves the pain but also treat all my health problems Without side effects. I'll explain further if you are ready to try alternate medicine.
thank you and God bless you.

 
Old 01-26-2008, 03:44 PM   #5
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williedoug HB User
Re: Hi, I'm New & Have Neuropathy, among other things..

i need help i started taking lyrica it helped the pain but now it is the whoo filling in the head and tired all the time . no insuance

 
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