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Old 10-24-2007, 09:54 AM   #1
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SJFerggy25 HB User
Severe Pain All Test Results Negative

I was wondering if anyone could help me and give insight with my situation. Since this past April I have had severe pain in my right hip (so sensitive cloth's hurt) and the pain radiates through out my whole leg. So I have hypersensitivity in the right hip and pain thru the back of my leg and knee that radiates thru the front of the calf and finishes in the ankle. I have good days and some really bad days where I don't want to do anything and even sleeping hard to achieve due to the pain. I had an Mri and the results showed a cyst on the femur but doctor said I was probably born like that so not to worry about it. I also had a bone scan and that concluded normal. I just had an EMG and that test also proved to be normal. At this point I'm loosing all hope for answers and am finding myself depressed over this whole situation. I just want to get better but can't seem to find any answers or help. So if anyone has any advice I truly would appreciate it if you would share it with me. Thank you for your time and concern.

Last edited by SJFerggy25; 10-25-2007 at 01:27 PM.

 
Old 11-06-2007, 08:55 PM   #2
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little chicken HB User
Re: Severe Pain All Test Results Negative

hi there! just had a look at your problems with your right hip. I had hip surgery on both sides of hip, just recently. I would suggest that maybe you go to a spinal centre that performs hip injections. I did not know I had tears in both sides of my hips, I had hip injections, what happen was I was kept at the hospital for two hours to see if my pain dropped, it did. So maybe see someone from a spinal clinic, not a neuorogist. In some hip cases (50 percent) results from an MRI do not show any damage. Good luck!

 
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Old 11-14-2007, 06:00 AM   #3
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Re: Severe Pain All Test Results Negative

I would start doing some research on sciatica?the sciatic nerves pretty much run right thru the areas where you are having problems.this would not always show up on an MRI,it all depends on just what is affecting or inflamming the sciatic nerve.this happens to alot of people.do you actually have your own copy of your MRI and all other testing results?if not,you really do need to start gathering this stuff up and going thru it on your own.not every doc,espescially specialists will actually tell you everything that is in your own MRI reports.trust me on this one.they only tell you what they 'feel" is pertinent,not everything that could be a possible issue.it all depends on what their actual level of knowledge and experience is.did this doc actually look at your hard films or just the report only?marcia
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 11-14-2007, 02:01 PM   #4
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Re: Severe Pain All Test Results Negative

Good question. The doctors thought that it may have been the sciatica but ruled that out with the EMG a few weeks ago. As far as the previous MRI's I did see the doctor actually look at the films. At that point in time we were focused on a lesion on my femur right where it meets at the hip. So we did a bone scan to see if there was an active cyst that caused the lesion and he said the scan showed that it was an inactive cyst and not to worry about it. The doctor at that time was an orthopedic surgeon. When he called me to tell me that he wanted me to see a neurologist he told me that also he was looking for cancer and that he was happy to report that I was negative for that. So then I started seeing a neurologist (before both these people I was in physical therapy and discharged for not having any progress.) The neurologist put me on lidocane patches and that seemed to work for a few weeks. However they stopped working and this time the area with pain had spread thru the whole leg, into the foot and now the lower back. So the Doctor set me up for an EMG which also came back normal. I dont think she actually read the EMG test but the administerer of the test was a doctor and he said it was normal. So when I say her after that test she had me do a series of balance test and I guess I didnt do so well. So know shw wants me to get an MRI of the brain and upper spine to rule out MS. So I go in on friday and then we will have to go from there. Thank you for your advice on getting the test reports. How do you go about that? I think that is a great idea. Sarah

 
Old 11-16-2007, 07:56 AM   #5
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Re: Severe Pain All Test Results Negative

the big thing about sciatica,it isn't always an actual compression that casues the pain but more inflammation,which would NOT show up on an MRI or with an EMG.you can have all kinds of pain and other symoptoms going on that would not show anything upon an EMG.the EMG ONLY sees direct compression or actual damage since it measures actual nerve flow,there would be a slowing effect shown on EMG if these things were present.beleive me,this happened with my c spine,i had horrid pain and intermittant numbness and tingling but unfortuently i had a perfect EMG.confused the hell outta me til it was explained to me what actually will and will not get picked up with this type of test.

just exactly what did your doc mean by 'inactive' cyst'?i don't quite get that one?a cyst,a simple plain cyst is not active or inactive,but other lesions like vascular ones would be possibly classified that way.you just need some clarification on what type of actual "cyst' that is,or what it actually consists of.it may be in that report,amother reason to obtain all records.

this is very simple to do.i have to constantly obtain all my medical records along with every single testing type of result just so i can stay on top of every actual seperate medical condition i now have(yuck).all you have to do is just call every place that has treated you,including all docs,your own primary who does all your coordinating of care,and every place that has given you some level of testing,or hospital stays or er visits?all places/docs that have layed hads on you basically.just ask for the medical records dept or tell them you need to obtain all of your medical records from them on you.they will send you out a paper called a release of information?just fill it out and sign it and send it back to them and in about a weeks time or so,they will be delivered to your mailbox.pretty easy actually.

now some places do charge a copying fee but i personally have never had to pay even one cent for all of my records and i do this twice a year.it kind of depends on the place and their policys.most will give you a first set but if you should lose them or need them(the same ones,not new ones)they may make you pay some sort of fee.i have yet to actually have this happen and believe me,i have had alot of places to obtainmy records from.and that release of info that you sign is actually good for one full year,so if you need an update like six months down the road,you just call them and they will automatically do it without having you sign again til the first one expires.i keep all my most current records and test results in this kind of expanding type file?then i take this with me to every appt or if you should have to go to an ER,all you have to do is grab that file and go and all of your most recent stuff will be right there for the docs.this also gives them a baseline to work from too.very very helpful for them and you too.

it sounds like these upcoming tests are good ones for you right now.the brain and the c spine are two really crucial areas where something could be going on and really do need to be looked at.just make certain they do a set with contrast.this just really helps to highlight areas that do not always show real well on plain MRI,espescially within the brain.but it does help with the spine too.hopefully you will be able to actually pinpoint something as the cause here.i wish you lots of luck with this and hope you can at least get some answers soon.please keep me posted on all things,K?now make those phone calls.marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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