Re: Severe Pain All Test Results Negative
the big thing about sciatica,it isn't always an actual compression that casues the pain but more inflammation,which would NOT show up on an MRI or with an EMG.you can have all kinds of pain and other symoptoms going on that would not show anything upon an EMG.the EMG ONLY sees direct compression or actual damage since it measures actual nerve flow,there would be a slowing effect shown on EMG if these things were present.beleive me,this happened with my c spine,i had horrid pain and intermittant numbness and tingling but unfortuently i had a perfect EMG.confused the hell outta me til it was explained to me what actually will and will not get picked up with this type of test.
just exactly what did your doc mean by 'inactive' cyst'?i don't quite get that one?a cyst,a simple plain cyst is not active or inactive,but other lesions like vascular ones would be possibly classified that way.you just need some clarification on what type of actual "cyst' that is,or what it actually consists of.it may be in that report,amother reason to obtain all records.
this is very simple to do.i have to constantly obtain all my medical records along with every single testing type of result just so i can stay on top of every actual seperate medical condition i now have(yuck).all you have to do is just call every place that has treated you,including all docs,your own primary who does all your coordinating of care,and every place that has given you some level of testing,or hospital stays or er visits?all places/docs that have layed hads on you basically.just ask for the medical records dept or tell them you need to obtain all of your medical records from them on you.they will send you out a paper called a release of information?just fill it out and sign it and send it back to them and in about a weeks time or so,they will be delivered to your mailbox.pretty easy actually.
now some places do charge a copying fee but i personally have never had to pay even one cent for all of my records and i do this twice a year.it kind of depends on the place and their policys.most will give you a first set but if you should lose them or need them(the same ones,not new ones)they may make you pay some sort of fee.i have yet to actually have this happen and believe me,i have had alot of places to obtainmy records from.and that release of info that you sign is actually good for one full year,so if you need an update like six months down the road,you just call them and they will automatically do it without having you sign again til the first one expires.i keep all my most current records and test results in this kind of expanding type file?then i take this with me to every appt or if you should have to go to an ER,all you have to do is grab that file and go and all of your most recent stuff will be right there for the docs.this also gives them a baseline to work from too.very very helpful for them and you too.
it sounds like these upcoming tests are good ones for you right now.the brain and the c spine are two really crucial areas where something could be going on and really do need to be looked at.just make certain they do a set with contrast.this just really helps to highlight areas that do not always show real well on plain MRI,espescially within the brain.but it does help with the spine too.hopefully you will be able to actually pinpoint something as the cause here.i wish you lots of luck with this and hope you can at least get some answers soon.please keep me posted on all things,K?now make those phone calls.marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.