Re: Advice Desperately Needed
have you ever actually had an MRI? if not,this really should be your next step before anything else gets done.this would just show possible problem areas.one big thing you need to know regarding EMG is that it will ONLY show actual nerve flow problems due to actual compression or some real damage to the nerves,not show why you are having the pain and other symptoms.this is all that type of test is really good for,showing actual real affected nerve flow in some form,and not much else.so don't place a whole lot of stock in just THAT test,K?i had horrid pain in my c spine from an 'affected/irritated' nerve but not actual compression,so i too was a bit shocked when my EMG came up normal with no nerve flow impairment.that test just doesn't show the reasons for our pain and symptoms,just one thing only.
i am also wondering why you asked about a spinal tap at this point?its a pretty extreme type of test to have before really ever actually knowing just what is causing your symptoms,thats all.an MRI would show much more than any spinal tap would.there are a few things a tap could show,but for an actual Dx of the reasons for your specific types of symptoms,more "structural" types of testing really should be done way before you go that route.there are just some pretty big risks with the tap that you don;t want to take on unless it is absolutely needed,thats all.there are much better ways of looking at your spine/nerves and cord than the tap.what type of specialist are you currently seeing for this?
all i am saying is to make certain you have that MRI done with contrast BEFORE going right to the spinal tap.you can have many different types of nerve involvement going on that can cause really incredible types of pain and symptoms without actual nerve impingement going on(and your EMG would still show 'normal"),trust me on that one.stenosis and herniations and bone spurs are just a few things that could actually cause the type of nerve pain and symptoms you are currently having.that MRI really IS needed before anything else just to see whats going on in that affected area.going right to a possible MS Dx without any proof of that is a bit extreme when your doc has not fully evaluated that problem area with certain scans yet.just get that contrasted MRI before you let anything else be done on you.this could hold the answers to your nerve issues.good luck and please keep me posted on how things are going,K?Marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.