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Old 01-16-2008, 04:55 PM   #1
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catspajamas HB User
Talking vasculits and periferal neurapathy...

New to the board and love what I see...people in the same boat as me...hope we all find a cure soon....My pn is caused by vasculitis and I was on statin cholesteral drugs which made the problem much worse...I have been fighting this now for 7 years....just went off neurontin cause I was having hand tremors, involuntary body /extremity jerks and was very unsteady on my feet...also brain foggy... My doctor is weaning me off the neurontin and starting lyrica...I am also on cymbalta and he wants me off that too...I also have fibromyalgia which is another type of pain...My pain is mostly in my feet and ankles, but of late I have had crawly feelings in my chin area and sharp stabbing electric things from my ear to my chin...they only last a few seconds..thank god...at least with the drugs I am mobile again. Do most of you go to a neurologist?...we have to travel 2 hours to see one in our area...would one benefit me?...I had all my tests at Mayos..they were the ones who diagnosed me...sorry this is so long...you will find I am gabby.....cats
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Old 01-17-2008, 06:19 AM   #2
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Re: vasculits and periferal neurapathy...

Yes a neurologist would be beneficial, I would think. I can relate to traveling to see a specialist. I live in East Central Illinois and travel to Chicago (about 3 hours). We do have neurologist in this area but the health care here has a lot to be desired. I hope things get better for you soon!

 
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