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Old 02-03-2008, 12:23 AM   #1
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Burning/numbness nerve central pain & wheal & flare reaction/tmj/oro-facial pain

Hi Im new here and scheduled to go to apain clinic.
Has anyone here have the wheal & flare reaction? You draw two circles on your chest just above your breasts and see how fast they turn red. Its some sort of allergic reaction I believe?// Anyone know?
Have you also been told you have pain sensitization and amplification?
If so, have you been on any benzodiazepines including, clonazepam?

I have been told over the years that I have tmj (after bad wisdom tooth extraction), pain in jaw bones & teeth, visible lump on face next to nose (trigeminal area?) , then chronic atypical facial neuropathic pain/oro-facial, then fibromyalgia, then myosfascial pain, then complex regional pain syndrome....??? My Sx involve burning/freezing R side of face/throat specific areas/head/brain/ R hand, R foot burns & swells. Some numbness, tingling, orofacial pain.

 
Old 02-12-2008, 05:37 PM   #2
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Re: Burning/numbness nerve central pain & wheal & flare reaction/tmj/oro-facial pain

(trigeminal area?) were you dignosed with that? did you see a Nurlogist? Talk to the doctors who gave you the medication its sounds like your allegric to the medication a bad reaction.
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Old 02-26-2008, 05:35 PM   #3
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Re: Burning/numbness nerve central pain & wheal & flare reaction/tmj/oro-facial pain

Quote:
Originally Posted by HealthynutNY View Post
(trigeminal area?) were you dignosed with that? did you see a Nurlogist? Talk to the doctors who gave you the medication its sounds like your allegric to the medication a bad reaction.
Thanks for the reply. I tried to come off the rivotril(clonazepam) a benzodiazepine/ by crossing over to valium and doing a slow taper. I experienced more of the burning throat and choking and burning other areas of face, osophagus and spine & IBS that I have experienced for years.
Unfortunately the burning was accompanied by spasticity of throat, facial, jaw (right side greater) muscles, sphincters, especially osephageal lower, entire length ofosephagus burning and spasming and into throat, mouth burns to other end. I had tons of coping strategies but all failed me, especially with the facial cramping (think it was trigeminal). Did ask doc for referral to neurologist..he refused many times...said he wouldn't find anything.

The worst of it is that my throat/neck on R side has been burning for years and I always thought it was neuropathy, now I think it could've been withdrawal from the drug causing damage. The area at the back of the soft palate on the right is all red and scarred (has been increasing in size over the years) . I have used an occlusal splint at night to counteract all the spasticity in face and throat muscles. Close to very low Valium I found it impossible to swallow on this side.

Due to the widespread nature and intesity of the sx whilst trying to get off the valium, I stopped the taper at 5mg. Doc added nexium and avanza (remeron) and during the last 5 months I now feel the burning and needling pain on the left side of neck & throat just under left ear. Same process that has been happening for years on the right side. Im sooo scared. Don't know what to do. Have an appt. with an ENT coming up. But it seems even moving my arms, neck can trigger the pain. It seems progressive because now the left side of the soft palate is becoming red ?(vasculitis?). The doc says they will just treat the Sx and doesn't think the ENt specialist will find anything.

I'm assumin this is a progressive neuropathy? perhaps inflammatory? due to medications and original problem...but I feel so down. I don't like no win, no win situations., Please help me with your comments if you feel you can.

 
Old 03-11-2008, 02:31 PM   #4
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Re: Burning/numbness nerve central pain & wheal & flare reaction/tmj/oro-facial pain

[QUOTE=vital33;3460273]Did ask doc for referral to neurologist..he refused many times...said he wouldn't find anything.

The doc says they will just treat the Sx and doesn't think the ENt specialist will find anything.


I just caught your post while looking for some other information on-line, but had to reply. My children and I have neurological disease(s). I really, really think you need to get to a neurologist, and your doc should have sent you there a long, long time ago. Why does he keep saying no one will find anything? I hope you can get someone better to help you and get some relief from what sounds very painful and scary. God bless.

 
Old 03-11-2008, 07:11 PM   #5
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Re: Burning/numbness nerve central pain & wheal & flare reaction/tmj/oro-facial pain

Hi, Sooo sorry for your pain. Sounds like trigeminal neuralgia. My Mom has it and like you, tried all kinds of meds before finding one that works. 7 if I remember correctly. Finally, Neurologist gave her Cymbalta of all things. It works great for her, some side affects but better them then the pain.

Don't give up trying, you will find a solution.

 
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