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Old 03-18-2008, 10:05 AM   #1
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HelpJulie HB User
Neuropathy? What do I have?

2 years ago I was running (as usual) and felt a sharp pain pierce the left side of my left foot. I was wearing old shoes with poor support and had just made the seasonal switch from treadmill to outdoors. My diagnosis was sharp pain while walking, continued pain without walking, and a tingling sensation. Within two weeks I went to my first doctor and began my array of tests. Nothing showed on x-rays (have had numerous ones done). The only thing that showed on an MRI was arthritis in my big toe. A bone scan months later revealed severe trauma in my entire left foot. 8 months after the initial injury I went to an orthopedic surgeon who diagnosed me with nerve damage and put me on neurontin/gabapentin. Immediately I could walk with significantly less pain, but the pain never went away. (Side note: Meanwhile, lower back pain developed from 5 months walked unevenly in a walking boot as well as severe shooting pain in my right leg IT band area—nothing showed on xrays or MRI and I’m still undergoing physical therapy). The initial injury was closest to the 4-5 area. My surgeon believed that doing surgery between 3-4 would take care of the pain between 4-5. 15 months after the injury I underwent surgery. I had a 3-4 neurectomy and a 2-3 neurolysis. My pain lessened after surgery but never went away completely. I had to resume taking neurontin to help with pain. A few months after surgery I began to also experience pain in my right foot (same pain only started gradually instead of from an athletic injury—began at 4-5 and gradually spread everywhere). I was fitted for my 3rd pair of orthotics. A few weeks later I was walking and felt a sharp pain pierce the right side of my left foot, particularly in the toe area. Now I have pain in both feet just about everywhere. It is painful to walk. Does anyone have any idea what is going on with me? My doctors are puzzled. At one point they suggested neurological testing (diabetes, syphilis, alcoholism, leprosy); however, bloodwork doesn’t suggest diabetes, syphilis is medically impossible for me, I don’t drink, and leprosy??? This started as an athletic injury (so to seem) but now is everywhere on both feet. Can anyone help me?! What is going on with me???

 
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Old 03-19-2008, 02:55 PM   #2
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Re: Neuropathy? What do I have?

Sorry there's nothing I can tell you that would help but I wanted to tell you that I sympathize with your pain. I too have foot pain and it is terrible to deal with. I had a morton's neuroma removed Dec. 28,07 and I am having a terrible time also. I don't think that they got the right neuroma or whatever. Now I have the same trouble plus some new ones from the surgery. I had a bunionectomy and osteotomy 18 months ago and have never been 'normal'. I had the screw from that surgery removed when I had the neuroma removed because it was moving around causing pain. I don't think that either of the surgeries helped me at all. This constant daily foot pain is getting harder and harder to deal with. They aren't nearly as bad if I stay off them but who can do that all the time. So, yeah I really feel for you. No one can understand this until they've experienced it. Are you still seeing your dr? Are you going to have any more tests? I hope to God you find answers. I hope we all do.

 
Old 03-20-2008, 10:55 PM   #3
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woondog HB User
Re: Neuropathy? What do I have?

Sorry to hear of your pain. I agree that I don't think you have diabetes related pn.
Although diabetic pain from pn varies with the individual, the average pn sufferer
has "lightening strikes" of pain, where pain repetitiously strikes you in your toe, your
foot and other places, goes away for 20 seconds then strikes again. I am not
a doctor....but after 25 years of pain even after using Neuronton, etc. I am now
pain free 95% of the time with an evening dose of nortryptilene and two dilaudid
pills...one in am and the other before bed. the woondog

 
Old 03-21-2008, 05:32 PM   #4
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shurely HB User
Re: Neuropathy? What do I have?

woondog, Do the meds you're on have very many bad side effects?

 
Old 03-21-2008, 07:22 PM   #5
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woondog HB User
Re: Neuropathy? What do I have?

as far as I can determine, I am not suffering from any side effects. woondog

 
Old 03-22-2008, 03:07 PM   #6
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Re: Neuropathy? What do I have?

I will be going to a new orthopoedic specialist at the end of the month. I will let you know if I get any answers. Thank you so much for your response. I'm sorry for your pain too!

 
Old 03-24-2008, 12:25 PM   #7
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Aussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB User
Re: Neuropathy? What do I have?

Quote:
Originally Posted by HelpJulie View Post
2 years ago I was running (as usual) and felt a sharp pain pierce the left side of my left foot. I was wearing old shoes with poor support and had just made the seasonal switch from treadmill to outdoors. My diagnosis was sharp pain while walking, continued pain without walking, and a tingling sensation. Within two weeks I went to my first doctor and began my array of tests. Nothing showed on x-rays (have had numerous ones done). The only thing that showed on an MRI was arthritis in my big toe. A bone scan months later revealed severe trauma in my entire left foot. 8 months after the initial injury I went to an orthopedic surgeon who diagnosed me with nerve damage and put me on neurontin/gabapentin. Immediately I could walk with significantly less pain, but the pain never went away. (Side note: Meanwhile, lower back pain developed from 5 months walked unevenly in a walking boot as well as severe shooting pain in my right leg IT band area—nothing showed on xrays or MRI and I’m still undergoing physical therapy). The initial injury was closest to the 4-5 area. My surgeon believed that doing surgery between 3-4 would take care of the pain between 4-5. 15 months after the injury I underwent surgery. I had a 3-4 neurectomy and a 2-3 neurolysis. My pain lessened after surgery but never went away completely. I had to resume taking neurontin to help with pain. A few months after surgery I began to also experience pain in my right foot (same pain only started gradually instead of from an athletic injury—began at 4-5 and gradually spread everywhere). I was fitted for my 3rd pair of orthotics. A few weeks later I was walking and felt a sharp pain pierce the right side of my left foot, particularly in the toe area. Now I have pain in both feet just about everywhere. It is painful to walk. Does anyone have any idea what is going on with me? My doctors are puzzled. At one point they suggested neurological testing (diabetes, syphilis, alcoholism, leprosy); however, bloodwork doesn’t suggest diabetes, syphilis is medically impossible for me, I don’t drink, and leprosy??? This started as an athletic injury (so to seem) but now is everywhere on both feet. Can anyone help me?! What is going on with me???
Hi Julie, i would find a neuro that specializes in Peripheral Neuropathy, besides diabetes there are many, many other possibilities that can cause nerve damage that should be tested for, could be as simple as a vitamin deficiency like B1, B12, B6, vitamin E or even folate deficinency but there are heaps of other reasons that can be tested by blood and urine tests.
good luck with it anyway
Aussie

 
Old 04-06-2008, 12:26 AM   #8
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woondog HB User
Re: Neuropathy? What do I have?

hi there. it is me again. There is one thing I want to make perfectly clear...
there is no need for you to suffer from pain. This is 2008 and doctors
have a huge ammunition of pain killers to take your pain away. These
doctors are worrying about a few things before they prescribe heavy
duty narcotics because of fear of law suits, fear (unfounded) of
turning you into a junkie, and concerned that the narcotic is worse than
the effects of pain. This is all bull. If you can stand the pain...great
but if it bothers you like it did me for a whole lot of years, with pain
so excrutiating that I would double up with pain........I found nortryptlene
and dilaudid and I am living happily ever after. Neuronton worked for
me for a number of years but after years of usage, the effect of Neuronton
wore off and I needed a step up in drug selection.
As you probably know, every patient is different so what works for me
might not work for you. So, if you can't stand the pain...tell your
doctor. If he does not give you the proper drugs to wipe out your pain,
it is time to say Sayonara to him or her and get new doctors until
you find the right one. the woondob

 
Old 04-16-2008, 10:55 AM   #9
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cream9518 HB User
Re: Neuropathy? What do I have?

Hats off to you woondog-both my GP and neuro said taking a narcotic (lyrica a narcotic? 200mgs a day?) and also 5mgs of percocet when I cannot stand the pain that comes with PN. Worried myself to becoming a junkie, but it helps me a lot and if it helps me why not!

 
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