my neuropathy is moving to my hands.... - Neuropathy Message Board

mimi214nc · 04-12-2008, 09:38 PM

I've had neuropathy in my feet for about 5 yrs now. The doctor's have had me on every medicine I can think of all of which has either stopped working after awhile or I had bad side effect's from it. The neuropathy is going to my hand's now I'm afraid as I am experiencing the same sympthom's as I did when it started in my feet.....tingling itching ect... I can only take ultram for the pain because I am allergic to everything, which really is bad for someone in my condition. My family all feel bad for me but as we all know unless you know the pain of neuropathy you cannot even try to describe it.So I am sorta stuck here with no help in sight. If anyone knows of any new drug's please let me know.I have taken ..Neurontin, Lycrica, Topamax, Quiene, and so much more then I can think of now. I am currently trying the B12 solution but so far nothing..Thank's for anything you can tell me and thank's so much for being here and knowing how I feel.

cream9518 · 04-13-2008, 10:24 AM

Dear Mimi, My heart goes out to you and I understand your pain. I have been diagnosed with PN a couple of years ago. Started with burning feet and now I have burning and numbness from ankles up my legs. Dont know what I will do if it starts in my hands. I am an artist who does water color drawings and it scares me if I will have a problem with that. It is hard to explain to people when I tell them about the pain you have with PN. There are times when I am walking and have no feeling in my feet. The neuro thought that Lyrica would help but so far it has not. Tried all the same medications that you have taken. He took me off a high dose of Lyrica and put me on 200mgs a day and told me to come back in four months. What next? I guess there is really no cure for PN.
I have a degenerated cervical disc and both my ortho and neuro docs said that it is not the cause. Guess just have to learn to live with this.

Aussie100 · 04-14-2008, 10:36 PM

Hello Mimi, when i was using Tramadol [ ultram same thing] but i noticed after a while, i built up a tolerance for that med, i was on 2 x 300 mg slow release Tramadol daily, seeing i couldn't take any of the other strong meds the only way
i found relief was if i backed off to 200 mg twice a day for about a week, put up with it all

, then went back up to the 300 mg it worked again for me every time.
I also took Endep 150 mg at night and 25 mg in the mornings, that helped the burning.

With b12 supplementation, its best to take a good quality multi B every day as well, as the b12 needs the other B vitamins to make it work better, and if your taking the best form of b12 [methylcobalamin] it is best to take it separately on an empty stomache, for better absorption.

Just remembered, i know one guy that couldn't get any relief from the typical drugs for PN, but has found great relief using the fentanyl patch.

I really hope you can find some relief, best wishes

Bluesky4041 · 04-16-2008, 07:12 AM

Quote:

Originally Posted by mimi214nc

I've had neuropathy in my feet for about 5 yrs now. The doctor's have had me on every medicine I can think of all of which has either stopped working after awhile or I had bad side effect's from it. The neuropathy is going to my hand's now I'm afraid as I am experiencing the same sympthom's as I did when it started in my feet.....tingling itching ect... I can only take ultram for the pain because I am allergic to everything, which really is bad for someone in my condition. My family all feel bad for me but as we all know unless you know the pain of neuropathy you cannot even try to describe it.So I am sorta stuck here with no help in sight. If anyone knows of any new drug's please let me know.I have taken ..Neurontin, Lycrica, Topamax, Quiene, and so much more then I can think of now. I am currently trying the B12 solution but so far nothing..Thank's for anything you can tell me and thank's so much for being here and knowing how I feel.

Bluesky4041 · 04-16-2008, 07:55 AM

I have neuropathy, started in my feet over two years ago and moving up my legs. Now it's moving into my hands. Doctors don't know anything. I tried Lyrica and all the other crap the doctors want to shove down your throat to see if anything works. But they don't even know what it is caused from. I suspect it's environmental, GMO's or may be DU! We are picking up traces of DU world wide now.
The only relief I ever got so far is from Hydrocodone. Two, 10mg tabs per day and I felt better than ever. I could do everything I use to do but even better and longer. It may make you a little dizzy at first but once you get use to them they WORK! Well they worked for me for a year, at least until I lost my Ins and my new doctor is paranoid and said no to scheduled II narcotics. Unfortunately doctors are afraid of the DEA sending them to prison forever! After the DEA terrorist wipes out the doctors practice, then they go after the doc’s family, bank accounts and homes. I don't blame the doctors; it's the government and DEA. We are no longer a free nation as you may have figured out by now.
They (the government)could care less about Americans and their needs. Mexico may be where I have to live to get medical treatment because my INS is now gone.
It's cheap and they care more about your health in Mexico than in America.
In America, it's every man for himself and getting worse by the day.
I don't think I can live this way much longer, so if I can't get to Mexico
I'll....

Well, I believe it will soon be an epidemic, so be prepared!