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Old 04-14-2008, 07:37 AM   #1
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jennylay78 HB User
Sensory Neuropathy

Hi everyone. I've had Sensory Neuropathy for a few years now and can't obtain any help from any consultants. Anyone have any advice for pain relief or a cure?

Last edited by jennylay78; 04-14-2008 at 07:38 AM.

 
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Old 04-14-2008, 02:51 PM   #2
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Aussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB UserAussie100 HB User
Re: Sensory Neuropathy

Quote:
Originally Posted by jennylay78 View Post
Hi everyone. I've had Sensory Neuropathy for a few years now and can't obtain any help from any consultants. Anyone have any advice for pain relief or a cure?
Hi Jenny, what tests have they done on you to evaluate your condition ?
like have they done a 3 or up to 5 hour Glucose tolerance to test for prediabetes, some doc's think that a simple fasting glucose test will show up diabetes [ a major cause ] but some don't realize that nerve damage can happen even in a prediabetic state, tests for vitamin deficiencies like b12, b1, b6 and vitamin E, folate, toxins, some medications and even to much alcohol or Gluten sensitivity can cause PN and the list goes on and on.

If any of those very basic tests above have not been done, i would find a neuro that specializes in neuropathy to give you the best chance of finding the cause, the cure remains in finding the culprit that's causing your nerve damage.

Some meds may lesson the severity, like Tramadol SR, amitriptyline or anticonvulsants, NSAIDs, Lyrica, if burning is present some have found relief from using Biofreeze and or B1 [thiamine ] taken in divided doses during the day and Benfortamine [ a very strong b1 ]

best wishes
Aussie

 
Old 04-15-2008, 10:48 AM   #3
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anwise67 HB User
Re: Sensory Neuropathy

Hi Jenny. I also have sensory neuropathy. I was just wandering what your symptoms are so maybe we can compare notes.
Ali

 
Old 04-16-2008, 09:49 AM   #4
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jennylay78 HB User
Re: Sensory Neuropathy

Hi Aussie. Well done on the info. As much or more than from health profesionals. A Neuro did blood tests and even checked for leprosy due to living in Ecuador and Brunei. I suggested excess alcohol - from net surfing - living in weird countries, water not safe! Diagnosis - SN due to cause unknown prob. virus and cure unknown. Have tried Acupuncture, Hypnotherapy, Massage, Physio to no avail. Have stuck with yoga and swimming. Am taking Benfotamine and using a footbath nerve rebuilder. Am managing to walk - just - but legs increasingly numb and weak. No regular alcohol. Thanx for help. Jenny. Orkney Isles.

 
Old 04-16-2008, 09:58 AM   #5
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Re: Sensory Neuropathy

Hi Ali. Good to hear from you. I had a sudden onset of symptoms over about 1 week.Tight bands round my ankles and felt like walking on large smooth pebbles. Temperatures were confusing. Cold tiles or water felt hot.Loss of balance in the dark. And I also crashed my car.My husband was away working in South America and I was living on red wine and twiglets but the G.P diagnoses SN due to virus cause unknown and cure unknown. Had useful info from Aussie 100 which may be useful and read my reply to him.I was a supervisor in a nursing home and overnight went to looking after others to needing help myself. Bit of a shock.Can't accept my limitations have always been active and stil try and play a bit of golf but can't manage matches anymore. Use ski poles cos I won't yet use a stick. Best Wishes Jenny Orkney Isles.

 
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